Diagnosis and Preparing Patients for Their Oncology Consultations

Chapter

Abstract

When a patient is diagnosed with cancer, it is an overwhelming experience. There are a multitude of appointments, tests, consults, and treatments that the patient and family experience to achieve the best outcome. This chapter, through case study examples, highlights the role of the oncology nurse navigator (ONN) in helping patients navigate the complex healthcare system and decrease barriers to care. The role of the ONN is multidimensional. They are often the point of contact for the patient and family throughout the cancer continuum. ONNs serve as an advocate for patients and families providing education on their disease, including treatment options, side effect management, and resources. They facilitate multidisciplinary communication, provide support, and help connect patients with community resources.

References

  1. 1.
    Shah SP, Roth A, Goya R. The Clonal and mutational evolution spectrum of primary triple-negative breast cancers Nature [cited 2017 Mar 16]. 2012. http://www.nature.com/doifinder/10.1038/nature10933,  https://doi.org/10.1038/nature10933.
  2. 2.
    Zardavas D, Phillips WA, Loi S. PIK3CA mutations in breast cancer: reconciling findings from preclinical and clinical data. Breast Cancer Res. 2014;16(1):201.  https://doi.org/10.1186/bcr3605.CrossRefPubMedPubMedCentralGoogle Scholar
  3. 3.
    Herndon SC. Caregiver coping strategies: keeping a gratitude journal. Conquer Patient Voice. 2016;2(5):118–9.Google Scholar
  4. 4.
    Gentry SS. Navigation considerations when working with patients. Oncology nurse navigation delivering patient-centered care across the continuum, vol. 1. 1st ed. Pittsburgh, PA: Oncology Nursing Society; 2014. p. 94–5.Google Scholar
  5. 5.
    Katz A. Woman cancer sex. Hygeia Media. 2009.Google Scholar
  6. 6.
    Katz A. Providing care for the whole patient: sexuality and cancer. The Oncology Nurse APN/PA 9.2. 2016.Google Scholar
  7. 7.
    Pratt-Chapman MP. How you CW an be a champion to LGBTQ cancer patients. In: Paper presented at American Academy of Nurse and Patient Navigators; 2016.Google Scholar
  8. 8.
    www.ons.org/content/2016-congress-archived-session-same-only scarier-cancer-care-and-lgbt-community.
  9. 9.
    Ballard D, Hill JMF. The nurse’s role in health literacy of patients with cancer. Clin J Oncol Nurs. 2016;20:232–4.  https://doi.org/10.1188/16.CJON.232-234.CrossRefPubMedPubMedCentralGoogle Scholar
  10. 10.
  11. 11.
    Thomas MA, Peters EA. Setting specific navigation. Oncology nurse navigation delivering patient-centered care across the continuum. Pittsburgh, PA: Oncology Nursing Society; 2014. p. 196.Google Scholar
  12. 12.
    O’Reilly R, et al. NCCN pediatric osteosarcoma practice guidelines. The National Comprehensive Cancer Network. Oncology (Williston Park). 1996;10(12):1799–806, 1812.Google Scholar
  13. 13.
    Baggott CR, Association of Pediatric Oncology Nurses (U.S.). Nursing care of children and adolescents with cancer, vol. xvi. 3rd ed. Philadelphia: Saunders; 2002. p. 717.Google Scholar
  14. 14.
    Cripe T, Yeager N. Malignant pediatric bone tumors—treatment & management. Cham: Springer; 2015.CrossRefGoogle Scholar
  15. 15.
    Carnevale A, Lieberman E, Cardenas R. Li-Fraumeni syndrome in pediatric patients with soft tissue sarcoma or osteosarcoma. Arch Med Res. 1997;28(3):383–6.PubMedPubMedCentralGoogle Scholar
  16. 16.
    Murphy K. Children’s oncology group family handbook for children with cancer, 2nd ed. 2011. https://childrensoncologygroup.org/downloads/COG_Family_Handbook_2nd_Ed_English_HighRes.pdf. Accessed Jun 2017.
  17. 17.
    Dunn J. Case presentation of doxorubicin-induced cardiomyopathy: a short- and long-term side effect of pediatric cancer treatment. J Pediatr Oncol Nurs. 1991;8(2):84.CrossRefGoogle Scholar
  18. 18.
    Ruiz L, et al. Auditory function in pediatric osteosarcoma patients treated with multiple doses of cis-diamminedichloroplatinum(II). Cancer Res. 1989;49(3):742–4.Google Scholar
  19. 19.
    Walker C. Use of art and play therapy in pediatric oncology. J Pediatr Oncol Nurs. 1989;6(4):121–6.Google Scholar
  20. 20.
    Pearson M. Caring for children and adolescents with osteosarcoma: a nursing perspective. Cancer Treat Res. 2009;152:385–94.CrossRefPubMedGoogle Scholar
  21. 21.
    Scialla MA, Canter KS, Chen FF, et al. Implementing the psychosocial standards in pediatric cancer: current staffing and services available. Pediatr Blood Cancer. 2017;64(11).  https://doi.org/10.1002/pbc.26634.CrossRefGoogle Scholar
  22. 22.
    Walker CL. Use of art and play therapy in pediatric oncology. J Assoc Pediatr Oncol Nurses. 1988;5(1–2):34.CrossRefPubMedGoogle Scholar
  23. 23.
    Standley JM, Hanser SB. Music therapy research and applications in pediatric oncology treatment. J Pediatr Oncol Nurs. 1995;12(1):3–8; discussion 9–10.CrossRefPubMedGoogle Scholar
  24. 24.
    Mazlum S, Chaharsough NT, Banihashem A, Vashani HB. The effect of massage therapy on chemotherapy-induced nausea and vomiting in pediatric cancer. Iran J Nurs Midwifery Res. 2013;18(4):280–4.PubMedPubMedCentralGoogle Scholar
  25. 25.
    Zhukovsky DS, Herzog CE, Kaur G, et al. The impact of palliative care consultation on symptom assessment, communication needs, and palliative interventions in pediatric patients with cancer. J Palliat Med. 2009;12(4):343–9.CrossRefPubMedPubMedCentralGoogle Scholar
  26. 26.
    Punzalan M, Hyden G. The role of physical therapy and occupational therapy in the rehabilitation of pediatric and adolescent patients with osteosarcoma. Cancer Treat Res. 2009;152:367–84.CrossRefPubMedPubMedCentralGoogle Scholar
  27. 27.
    Jacobs PA. Limb salvage and rotationplasty for osteosarcoma in children. Clin Orthop Relat Res. 1984;188:217–22.Google Scholar
  28. 28.
    Haugen MS, Landier W, Mandrell BN, et al. Educating families of children newly diagnosed with cancer: insights of a Delphi Panel of Expert Clinicians from the Children’s Oncology roup. J Pediatr Oncol Nurs. 2016;33(6):405–13.CrossRefPubMedPubMedCentralGoogle Scholar
  29. 29.
  30. 30.
    NCCN Guidelines: Colon Cancer: Version 3. https://www.nccn.org/professionals/physician_gls/pdf/rectal.pdf. Accessed June 2017.
  31. 31.
    NCCN Guidelines: Colon Cancer: Version 3. https://www.nccn.org/professionals/physician_gls/guidelines-development.asp. Accessed July 2017.
  32. 32.
    Blaseg KD, Daugherty P, Gamblin KA. Oncology nurse navigation: delivering patient centered care across the continuum. Oncology Nursing Society: Pittsburgh, PA; 2014. (Chapter 2)Google Scholar
  33. 33.

Copyright information

© Springer International Publishing AG, part of Springer Nature 2018

Authors and Affiliations

  • Margaret Rummel
    • 1
  • Paula Sanborn
    • 2
  • Penny Daugherty
    • 3
  1. 1.Abramson Cancer CenterPhiladelphiaUSA
  2. 2.Nationwide Children’s HospitalColumbusUSA
  3. 3.Northside Hospital Cancer InstituteAtlantaUSA

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