Active Parents, Parental Activism: The Adipose Stem Cell In Vitro Lab Study
- 184 Downloads
The chapter documents the personal journey of a working professional who took on the seemingly impossible task of finding a cure for his 4-year-old son, who in 2005 was diagnosed with Duchenne muscular dystrophy (DMD), a muscle-wasting condition. The chapter traces the deeply personal account of accepting, resisting, and rejecting the diagnosis and the intractable finality it presented. This account emerges from an autobiographical space and narrates the birth of an ‘active parent’ who with ten other ‘active parents’ (connected to more than 200 parents) took on the challenge of finding an adipose stem cell-based cure for DMD.