Psychosocial Aspects, Parental Reactions and Needs in Idiopathic (Self-Limited) Focal Epilepsies
This chapter details my research on psychosocial aspects, parental reactions and needs in idiopathic (self-limited) focal epilepsies. This is the first study to provide quantitative and qualitative evidence that idiopathic focal epilepsies have a dramatic impact on parents, with multiple emotional, psychological, social and medical ramifications. The results are based on a questionnaire that I purposely designed and validated and consists of 34 questions, of which 18 are qualitative and 16 quantitative. Unmet negative feelings of panic, fear, and thoughts about death, may affect the parents’ reactions and attitude and consequently their parental role, the functioning of their children and the quality of life of the whole family. Practice parameter guidelines for children with idiopathic focal epilepsies that I issued are detailed.
KeywordsQuestionnaire Parenting Attitudes Fear of death Guidelines Rolandic epilepsy Panayiotopoulos syndrome
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