Psychosocial Impact of Epilepsy

  • Thalia Valeta
Chapter

Abstract

Epilepsy is associated with significant neurobiological, cognitive, psychological, and social problems.

The psychosocial impact of epilepsy is multitude with numerous and often complex synergistically interacting medical, psychological, economic, educational, personal, and social repercussions. It depends on several factors: severity of epilepsy; neurological dysfunction; complexity of clinical management and side effects of antiepileptic drugs; family environment; perception of the disorder; restrictions in the activities; the level of health care and social support, and the extent of resources available to deal with the epilepsy. Recently, there are several well organized collaborative efforts to improve care and minimize the psychosocial impact of epilepsy.

Keywords

Epilepsy psychopathology Newly diagnosed epilepsy Children with epilepsy Women with epilepsy Elderly with epilepsy Atlas of epilepsy Stigma 

References

  1. 1.
    Fisher RS, van Emde BW, Blume W, Elger C, Genton P, Lee P, et al. Epileptic seizures and epilepsy: definitions proposed by the International League Against Epilepsy (ILAE) and the International Bureau for Epilepsy (IBE). Epilepsia. 2005;46:470–2.CrossRefGoogle Scholar
  2. 2.
    Hermann B, Jacoby A. The psychosocial impact of epilepsy in adults. Epilepsy Behav. 2009;15(Suppl 1):S11–6.CrossRefGoogle Scholar
  3. 3.
    Camfield PR. Problems for people with epilepsy beyond seizures. Epilepsia. 2007;48(Suppl 9):1–2.CrossRefGoogle Scholar
  4. 4.
    Sillanpaa M, Cross HJ. The psychosocial impact of epilepsy in childhood. Epilepsy Behav. 2009;15(Suppl 1):S5–10.CrossRefGoogle Scholar
  5. 5.
    Quintas R, Raggi A, Giovannetti AM, Pagani M, Sabariego C, Cieza A, et al. Psychosocial difficulties in people with epilepsy: a systematic review of literature from 2005 until 2010. Epilepsy Behav. 2012;25:60–7.CrossRefGoogle Scholar
  6. 6.
    The psychosocial burden of epilepsy: ameliorating the impact. Proceedings of a workshop, 2008, Oxford, UK. Epilepsy Behav. 2009;15(Suppl 1):S1–71.Google Scholar
  7. 7.
    Rodenburg R, Stams GJ, Meijer AM, Aldenkamp AP, Dekovic M. Psychopathology in children with epilepsy: a meta-analysis. J Pediatr Psychol. 2005;30:453–68.CrossRefGoogle Scholar
  8. 8.
    Rodenburg R, Meijer AM, Dekovic M, Aldenkamp AP. Family factors and psychopathology in children with epilepsy: a literature review. Epilepsy Behav. 2005;6:488–503.CrossRefGoogle Scholar
  9. 9.
    Ramaglia G, Romeo A, Viri M, Lodi M, Sacchi S, Cioffi G. Impact of idiopathic epilepsy on mothers and fathers: strain, burden of care, worries and perception of vulnerability. Epilepsia. 2007;48:1810–3.CrossRefGoogle Scholar
  10. 10.
    Valeta T. Psychosocial aspects, parental reactions and needs in idiopathic focal epilepsies. Epileptic Disord. 2016;18:19–22.Google Scholar
  11. 11.
    Valeta T. Impact of epilepsies on women and related psychosocial issues. In: Panayiotopoulos CP, Crawford P, Tomson T, editors. Epilepsies in girls and women, vol. 4. Oxford: Medicinae; 2008. p. 190–7.Google Scholar
  12. 12.
    Manacheril R, Faheem U, Labiner D, Drake K, Chong J. Psychosocial impact of epilepsy in older adults. Healthcare (Basel). 2015;3:1271–83.CrossRefGoogle Scholar
  13. 13.
    Cunningham C, Newton R, Appleton R, Hosking G, McKinlay I. Epilepsy—giving the diagnosis. A survey of British paediatric neurologists. Seizure. 2002;11:500–11.CrossRefGoogle Scholar
  14. 14.
    World Health Organization. Atlas epilepsy care in the World 2005. Geneva: World Health Organisation; 2005.Google Scholar

Copyright information

© Springer International Publishing AG 2017

Authors and Affiliations

  • Thalia Valeta
    • 1
    • 2
  1. 1.First Neurology and Psychiatry ClinicUniversity of Athens, Aeginition HospitalAthensGreece
  2. 2.Department of Clinical Neurophysiology and EpilepsiesSt. Thomas’ HospitalLondonUK

Personalised recommendations