Abstract
This chapter focuses on people’s motivation for becoming involved in healthy volunteering. I show how healthy volunteers start their volunteering journeys and question assumptions of healthy volunteers as ‘risky’ and ‘reckless’ individuals. The discussion considers why financial rewards in clinical drug trials become significant to some people who take part in clinical drug trials as healthy volunteers. In exploring motivations of healthy volunteers, I challenge the principle of voluntarism by considering how socioeconomic circumstances play a role in influencing people to healthy volunteers.
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References
Abadie, R. (2010). The professional guinea pig: Big pharma and the risky world of human subjects. London: Duke University Press.
Back, L. (2015). Why everyday life matters: Class, community and making life livable. Sociology, 49(5), 820–836.
Bloor, M. (1995). The sociology of HIV transmission. London: Sage.
Callon, M., & Rabeharisoa, V. (2004). Gino’s lesson on humanity: Genetics, mutual entanglements and the sociologist’s role. Economy and Society, 33(1), 1–27.
Elliott, C. (2014, July 28). The best-selling, billion-dollar pills tested on homeless people: How the destitute and the mentally ill are being used as human lab rats. Medium. https://medium.com/matter/did-big-pharma-test-your-meds-on-homeless-people-a6d8d3fc7dfe.
Featherstone, K. (2003). The experience of trial participation [Editorial]. The Journal of Rheumatology, 30(4), 646–647.
Fisher, J. A. (2007). Coming soon to a physician near you: Medical neoliberalism and pharmaceutical clinical drug trials. Harvard Health Policy Review: A Student Publication of the Harvard Interfaculty Initiative in Health Policy, 8(1), 61.
Lyng, S. (2009 [2008]). Edgework, risk, and uncertainty. In J. Zinn (Ed.), Social theories of risk and uncertainty: An introduction (pp. 106–135). Oxford: Blackwell Publishers.
Montgomerie, J., & Williams, K. (2009). Financialised capitalism: After the crisis and beyond neoliberalism. Competition & Change, 13(2), 99–107.
Morris, N., & Bàlmer, B. (2006). Volunteer human subjects’ understandings of their participation in a biomedical research experiment. Social Science and Medicine, 62(4), 998–1008.
Nappo, S. A., Iafrate, G. B., & Sanchez, Z. M. (2013). Motives for participating in a clinical research trial: A pilot study in Brazil. BMC Public Health, 13(1), 19.
Nurgat, Z. A., et al. (2005). Patient motivations surrounding participation in phase I and phase II clinical drug trials of cancer chemotherapy. British Journal of Cancer, 92(6), 1001–1005.
Peretti-Watel, P., & Moatti, J. (2006). Understanding risk behaviours: How the sociology of deviance may contribute? The case of drug-taking. Social Science and Medicine, 63(3), 675–679.
Schutz, A. (1970). Reflections on the problem of relevance (R. M. Zaner, Trans.). New Haven: Yale University Press.
Scott, J. C. (1977). The moral economy of the peasant: Rebellion and subsistence in Southeast Asia. New Haven: Yale University Press.
Stiglitz, J. E. (2012). The price of inequality: How today’s divided society endangers our future. New York: W. W. Norton.
Stunkel, L., & Grady, C. (2011). More than the money: A review of the literature examining healthy volunteer motivations. Contemporary Clinical Drug Trials, 32(3), 342–352.
Tishler, C. L., & Bartholomae, S. (2002). The recruitment of normal healthy volunteers: A review of the literature on the use of financial incentives. The Journal of Clinical Pharmacology, 42(4), 365–375.
Truong, T. H., et al. (2011). Altruism among participants in cancer clinical drug trials. Clinical Drug Trials (London, England), 8(5): 616–623.
Will, C. M., & Weiner, K. (2014). Sustained multiplicity in everyday cholesterol reduction: Repertoires and practices in talk about “healthy living”. Sociology of Health & Illness, 36(2), 291–304.
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Mwale, S. (2017). ‘Context Is Everything’: The Reality of Becoming a Human Guinea Pig. In: Healthy Volunteers in Commercial Clinical Drug Trials. Palgrave Macmillan, Cham. https://doi.org/10.1007/978-3-319-59214-5_5
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DOI: https://doi.org/10.1007/978-3-319-59214-5_5
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