Abstract
This chapter addresses issues regarding the conceptualization of health literacy and its measurement from an embodied cognitive perspective. We also present a critical analysis of some aspects of health literacy research, while calling for a realist approach to the design of cognitive assessments that addresses the various abilities underlying health literacy and numeracy, which may better represent the actual processes involved in the comprehension of health information. While health information is ubiquitous in modern society, it is often not easily comprehensible given the literacy abilities of the general population. Health information and health literacy have been researched in isolation of each other, when in actuality, they are two faces of the same coin. It is important to investigate them together, but current assessments treat them separately using tools that do not take into account the complexity of the process of health information understanding. Furthermore, these two components are studied by means of abstract, variable-based models that often obscure the embodied nature of health information and its understanding. Although most researchers in these fields are aware of the limitations of the models and current tools to investigate health information and literacy, an embodied approach to health literacy is still needed to complement the traditional variable-based approach. The process of comprehension of health information is complex, requiring investigation at the microlevel to uncover its component processes. An embodied approach, however, would benefit from a realist philosophy that may serve to provide an epistemological framework for guiding research.
The first principle is that you must not fool yourself, and you are the easiest person to fool
—Richard P. Feynman, Cargo Cult Science, 1974
Much of the fascination of statistics lies embedded in our gut feeling—and never trust a gut feeling—that abstract measures summarizing large tables of data must express something more real and fundamental than the data themselves
—Stephen Jay Gould, The Mismeasure of Man, 1981
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References
ABC Canada Literacy Foundation. International Adult Literacy and Skills Survey (IALSS): report summary. Toronto, ON: ABC Canada; 2005.
Acree M. Theories of statistical inference in psychological research: a historico-critical study [dissertation]. Worcerster, MA: Clark University; 1978.
Altin SV, Finke I, Kautz-Freimuth S, Stock S. The evolution of health literacy assessment tools: a systematic review. BMC Public Health. 2014;14:1207.
Arocha JF, Patel VL. Novice diagnostic reasoning in medicine: accounting for evidence. J Learn Sci. 1995;4:355–84.
Arocha JF, Wang D, Patel VL. Identifying reasoning strategies in medical decision making: a methodological guide. J Biomed Inform. 2005;38:154–71.
Baker D. The meaning and the measure of health literacy. J Gen Intern Med. 2006;21:878–83.
Baker D, Williams M, Parker R, Gazmararian J, Nurss J. Development of a brief test to measure functional health literacy. Patient Educ Couns. 1999;38:33–42.
Berger JO, Sellke T. Testing a point null hypothesis: the irreconcilability of p values and evidence. J Am Stat Assoc. 1987;82:112–22.
Berka K. Measurement: its concepts, theories, and problems. Dordrecht: D. Reidel; 1983.
Berland GK, Elliott MN, Morales LS, et al. Health information on the internet: accessibility, quality, and readability in English and Spanish. JAMA. 2001;285:2612–21.
Borsboom D. Measuring the mind: conceptual issues in contemporary psychometrics. Cambridge, NY: Cambridge University Press; 2005. p. viii, 185.
Botash AS, Galloway AE, Booth T, Ploutz-snyder R, Hoffman-Rosenfeld J, Cahill L. Continuing medical education in child sexual abuse: cognitive gains but not expertise. Arch Pediatr Adolesc Med. 2005;159:561–6.
Bransford JD, Johnson MK. Contextual prerequisites for understanding: some investigations of comprehension and recall. J Verbal Learn Verbal Behav. 1972;11:717–26.
Brigo F, Otte WM, Igwe SC, Tezzon F, Nardone R. Clearly written, easily comprehended? The readability of websites providing information on epilepsy. Epilepsy Behav. 2015;44:35–9.
Bunge M. On confusing ‘measure’ with ‘measurement’ in the methodology of behavioral science. In: Bunge M, editor. The methodological unity of science. Dordretch: D. Reidel; 1973. p. 105–22.
Bunge M. Semantics: sense and reference. Dordrecht: Reidel; 1974. p. xii, 185.
Bunge M. Quality, quantity, pseudoquantity and measurement in social science. J Quant Linguist. 1995;2:1–10.
Bunge M. Finding philosophy in social science. New Haven: Yale University Press; 1996. p. xii, 432.
Bunge M. Chasing reality: strife over realism. Toronto: University of Toronto Press; 2014. p. xiv, 342.
Carreiras M, Monahan PJ, Lizarazu M, Duñabeitia JA, Molinaro N. Numbers are not like words: different pathways for literacy and numeracy. Neuroimage. 2015;118:79–89.
Cherla DV, Sanghvi S, Choudhry OJ, Liu JK, Eloy JA. Readability assessment of internet-based patient education materials related to endoscopic sinus surgery. Laryngoscope. 2012;122:1649–54.
Chi MTH, Feltovich PJ, Glaser R. Categorization and representation of physics problems by experts and novices. Cognit Sci. 1981;5:121–52.
Coughlin LD, Patel VL. Processing of critical information by physicians and medical students. J Med Educ. 1987;62:818–28.
Davis TC, Wolf MS, Bass PF, et al. Low literacy impairs comprehension of prescription drug warning labels. J Gen Intern Med. 2006;21:847–51.
Delazer M, Kemmler G, Benke T. Health numeracy and cognitive decline in advanced age. Neuropsychol Dev Cogn B Aging Neuropsychol Cogn. 2013;20:639–59.
Dolan JG, Cherkasky OA, Li Q, Chin N, Veazie PJ. Should health numeracy be assessed objectively or subjectively. Med Decis Making. 2016;36(7):868–75.
Donelle L, Arocha JF, Hoffman-goetz L. Health literacy and numeracy: key factors in cancer risk comprehension. Chronic Dis Can. 2008;29:1–8.
Donelle L, Hoffman-Goetz L, Gatobu S, Arocha JF. Comprehension of Internet-based numeric cancer information by older adults. Inform Health Soc Care. 2009;34:209–24.
Downs JS, de Bruin WB, Fischhoff B. Parents’ vaccination comprehension and decisions. Vaccine. 2008;26:1595–607.
Fagerlin A, Zikmund-Fisher BJ, Ubel PA, Jankovic A, Derry HA, Smith DM. Measuring numeracy without a math test: development of the subjective numeracy scale. Med Decis Making. 2007;27:672–80.
Flaherty D, Hoffman-Goetz L, Arocha JF. What is consumer health informatics? A systematic review of published definitions. Inform Health Soc Care. 2015;40:91–112.
Flesch R. A new readability yardstick. J Appl Psychol. 1948;32:221.
Foltz PW, Kintsch W, Landauer TK. The measurement of textual coherence with latent semantic analysis. Discourse Processes. 1998;25:285–307.
Frederiksen CH. Representing logical and semantic structure of knowledge acquired from discourse. Cogn Psychol. 1975;7:371–458.
Friedman DB, Hoffman-Goetz L. An exploratory study of older adults’ comprehension of printed cancer information: is readability a key factor. J Health Commun. 2007;12:423–37.
Friedman D, Hoffman-Goetz L, Arocha J. Readability of cancer information on the internet. J Cancer Educ. 2004;19:117–22.
Friedman DB, Hoffman-Goetz L, Arocha JF. Health literacy and the World Wide Web: comparing the readability of leading incident cancers on the Internet. Med Inform Internet Med. 2006;31:67–87.
Gatobu SK, Arocha JF, Hoffman-Goetz L. Numeracy, health numeracy, and older immigrants’ primary language: an observation-oriented exploration. Basic Appl Soc Psychol. 2016;38:185.
Ghane A, Sweeny K. Embodied health: a guiding perspective for research in health psychology. Health Psychol Rev. 2013;7:S159–84.
Gigerenzer G. Mindless statistics. J Socio-Econ. 2004;33:587–606.
Gigerenzer G, Krauss S, Vitouch O. The null ritual: what you always wanted to know about significance testing but were afraid to ask. In: Kaplan D, editor. The Sage handbook of methodology for the social sciences. Thousand Oaks: Sage; 2004. p. 391–408.
Gliner JA, Leech NL, Morgan GA. Problems with null hypothesis significance testing (NHST): what do the textbooks say? J Exp Educ. 2002;71:83–92.
Golbeck A, Ahlersschmidt C, Paschal A, Dismuke S. A definition and operational framework for health numeracy. Am J Prev Med. 2005;29:375–6.
Golbeck A, Paschal A, Jones A, Hsiao T. Correlating reading comprehension and health numeracy among adults with low literacy. Patient Educ Couns. 2011;84:132–4.
Grice JW. Observation oriented modeling: analysis of cause in the behavioral sciences, vol. 242. London: Academic; 2011.
Grice JW, Barrett PT, Schlimgen LA, Abramson CI. Toward a brighter future for psychology as an observation oriented science. Behav Sci. 2012;2:1–22.
Haller H, Krauss S. Misinterpretations of significance: a problem students share with their teachers. Methods Psychol Res Online. 2002;7:1–20.
Hannon B, Daneman M. Age-related changes in reading comprehension: an individual-differences perspective. Exp Aging Res. 2009;35:432–56.
Hoffman-Goetz L, Donelle L, Ahmed R. Health literacy in Canada: a primer for students. Toronto, ON: Canadian Scholars Press; 2014. p. 264.
Hoppe IC, Ahuja NK, Ingargiola MJ, Granick MS. A survey of patient comprehension of readily accessible online educational material regarding plastic surgery procedures. Aesthet Surg J. 2013;33:436–42.
Hubbard R, Lindsay RM. Why p values are not a useful measure of evidence in statistical significance testing. Theory Psychol. 2008;18:69–88.
Jordan JE, Osborne RH, Buchbinder R. Critical appraisal of health literacy indices revealed variable underlying constructs, narrow content and psychometric weaknesses. J Clin Epidemiol. 2011;64:366–79.
Kauchack D, Leroy G. Moving beyond readability metrics for health-related text simplification. IT Professional. 2016;May/June:45–51.
Kazemek FE. A brief discussion of readability formulas. High Sch J. 1984;67:248–51.
Kennaway R. Population statistics cannot be used for reliable individual prediction. Unpublished manuscript; 1998. 25 p.
Kennaway R. When causation does not imply correlation: robust violations of the faithfulness axiom. School of Computing Sciences, University of East Anglia. (June 17, 2013); Unpublished manuscript: 27.
Kiechle ES, Bailey SC, Hedlund LA, Viera AJ, Sheridan SL. Different measures, different outcomes? A systematic review of performance-based versus self-reported measures of health literacy and numeracy. J Gen Intern Med. 2015;30:1538–46.
Kintsch W. Comprehension: a paradigm for cognition. Cambridge, MA: Cambridge University Press; 1998.
Kintsch W. An overview of top-down and bottom-up effects in comprehension: the ci perspective. Discourse Process. 2005;39:125–8.
Kintsch W, Keenan J. Reading rate and retention as a function of the number of propositions in the base structure of sentences. Cogn Psychol. 1973;5:257–74.
Kirk JK, Grzywacz JG, Arcury TA, et al. Performance of health literacy tests among older adults with diabetes. J Gen Intern Med. 2012;27:534–40.
Kobayashi LC, Wardle J, Wolf MS, von Wagner C. Aging and functional health literacy: a systematic review and meta-analysis. J Gerontol B Psychol Sci Soc Sci. 2016;71:445–57.
Lambdin C. Significance tests as sorcery: science is empirical—significance tests are not. Theory Psychol. 2012;22:67–90.
Landauer TK, DS MN, Dennis S, Kintsch W. Handbook of latent semantic analysis. New York: Routledge; 2013.
Lecoutre M-P, Poitevineau J, Lecoutre B. Even statisticians are not immune to misinterpretations of null hypothesis significance tests. Int J Psychol. 2003;38:37–45.
Leroy G, Kauchak D. The effect of word familiarity on actual and perceived text difficulty. J Am Med Inform Assoc. 2014;21:e169–72.
Leroy G, Helmreich S, Cowie JR, Miller T, Zheng W. Evaluating online health information: beyond readability formulas. In: AMIA annual symposium proceedings/AMIA symposium; 2008. p. 394–8.
Leroy G, Helmreich S, Cowie JR. The influence of text characteristics on perceived and actual difficulty of health information. Int J Med Inform. 2010;79:438–49.
Leroy G, Kauchak D, Mouradi O. A user-study measuring the effects of lexical simplification and coherence enhancement on perceived and actual text difficulty. Int J Med Inform. 2013;82:717–30.
Lipkus IM, Samsa G, Rimer BK. General performance on a numeracy scale among highly educated samples. Med Decis Making. 2001;21:37.
Manganello JA. Health literacy and adolescents: a framework and agenda for future research. Health Educ Res. 2008;23:840–7.
McClure E, Ng J, Vitzthum K, Rudd R. A mismatch between patient education materials about sickle cell disease and the literacy level of their intended audience. Prev Chronic Dis. 2016;13
McConnell C. Readability: blind faith in numbers? J Econ Educ. 1983;14:65–71.
McLaughlin GH. Smog grading—a new readability formula. J Read. 1969;22:639–46.
McNaughton CD, Cavanaugh KL, Kripalani S, Rothman RL, Wallston KA. Validation of a short, 3-item version of the subjective numeracy scale. Med Decis Making. 2015;35:932–6.
Meade CD, Smyth CF. Readability formulas: cautions and criteria. Patient Educ Couns. 1991;17:153–8.
Meehl PE. Theoretical risks and tabular asterisks: Sir Karl, Sir Ronald, and the slow progress of soft psychology. J Consult Clin Psychol. 1978;46:806–34.
Michell J. Quantitative science and the definition of measurement in psychology. Br J Psychol. 1997;88:355–83.
Michell J. Measurement in psychology: a critical history of a methodological concept. Cambridge: Cambridge University Press; 1999.
Michell J. The quantitative imperative. Theory Psychol. 2003;13:5–31.
Moeller K, Fischer U, Link T, et al. Learning and development of embodied numerosity. Cogn Process. 2012;13(Suppl 1):S271–4.
Morrison AK, Schapira MM, Hoffmann RG, Brousseau DC. Measuring health literacy in caregivers of children: a comparison of the newest vital sign and S-TOFHLA. Clin Pediatr (Phila). 2014;53:1264–70.
Muñoz R, Okan Y, Garcia-Retamero R. Habilidades numéricas y salud: Una revisión crÃtica. Rev Latinoam Psicol. 2015;47:111–23.
Murphy PW, Davis TC, Long SW, Jackson RH, Decker BC. Rapid estimate of adult literacy in medicine (REALM): a quick reading test for patients. J Read. 1993;37:124–30.
Nielsen-Bohlman L, Panzer AM, Kindig DA, editors. Health literacy: a prescription to end confusion. Washington, DC: National Academies Press; 2004.
Nutbeam D. Defining and measuring health literacy: what can we learn from literacy studies [editorial]. Int J Public Health. 2009;54(5):303.
O’Connor M, Casey L, Clough B. Measuring mental health literacy—a review of scale-based measures. J Ment Health. 2014;23:197–204.
Osborn CY, Wallston KA, Shpigel A, Cavanaugh K, Kripalani S, Rothman RL. Development and validation of the General Health Numeracy Test (GHNT). Patient Educ Couns. 2013;91:350–6.
Paasche-Orlow MK, Wolf MS. The causal pathways linking health literacy to health outcomes. Am J Health Behav. 2007;31(Suppl 1):S19–26.
Parker RM, Baker DW, Williams MV, Nurss JR. The test of functional health literacy in adults: a new instrument for measuring patients’ literacy skills. J Gen Intern Med. 1995;10:537–41.
Patel VL, Arocha JF, Kaufman DR. Diagnostic reasoning and medical expertise. Psychol Learn Motiv. 1994;31:137–252.
Patel VL, Arocha JF, Kaufman DR. A primer on aspects of cognition for medical informatics. J Am Med Inform Assoc. 2001;8:324–43.
Peters P, Smith A, Funk Y, Boyages J. Language, terminology and the readability of online cancer information. Med Humanit. 2016;42:36–41.
Pires C, Vigário M, Cavaco A. Readability of medicinal package leaflets: a systematic review. Rev Saúde Pública. 2015;49:1–13.
Pleasant A, McKinney J, Rikard RV. Health literacy measurement: a proposed research agenda. J Health Commun. 2011;16(Suppl 3):11–21.
Poitevineau J, Lecoutre B. Interpretation of significance levels by psychological researchers: The .05 Cliff effect may be overstated. Psychon Bull Rev. 2001;8:847–50.
Powers WT. Quantitative analysis of purposive systems: some spadework at the foundations of scientific psychology. Psychol Rev. 1978;85:417.
Powers WT. Control theory and statistical generalizations. Am Behav Sci. 1990;34(1):24–31.
Powers WT. Making sense of behavior: the meaning of control. New Canaan: Benchmark Publications; 1998. p. x, 180.
Powers WT. Living control systems III: the fact of control. Bloomfield: Benchmark Publications; 2008. p. xiii, 204.
Ramirez-Zohfeld V, Rademaker AW, Dolan NC, et al. Comparing the performance of the S-TOFHLA and NVS among and between English and Spanish speakers. J Health Commun. 2015;20:1458–64.
Ratzan SC, Parker RM. Health literacy—identification and response. J Health Commun. 2006;11:713–5.
Reyna VF, Nelson WL, Han PK, Dieckmann NF. How numeracy influences risk comprehension and medical decision making. Psychol Bull. 2009;135:943–73.
Rozeboom WW. The fallacy of the null-hypothesis significance test. Psychol Bull. 1960;57:416–28.
Schapira MM, Fletcher KE, Gilligan MA, et al. A framework for health numeracy: how patients use quantitative skills in health care. J Health Commun. 2008;13:501–17.
Schapira MM, Walker CM, Cappaert KJ, et al. The numeracy understanding in medicine instrument: a measure of health numeracy developed using item response theory. Med Decis Making. 2012;32:851–65.
Serper M, Patzer RE, Curtis LM, et al. Health literacy, cognitive ability, and functional health status among older adults. Health Serv Res. 2014;49:1249–67.
Sivaramakrishnan M, Arocha JF, Patel VL. Cognitive assessment and health education in children from two different cultures. Soc Sci Med. 1998;47:697–712.
Smith TW. Measurement in health psychology research. In: Friedman HS, Silver RC, editors. Foundations of health psychology. New York: Oxford University Press; 2007. p. 19–51.
Smith KH. Aging and health literacy. J Consum Health Internet. 2014;18:94–100.
Sokal AD. Transgressing the boundaries: towards a transformative hermeneutics of quantum gravity. Social Text. 1996;46/47:217–52.
Sokal AD. The Sokal hoax: the sham that shook the academy. Lincoln: University of Nebraska Press; 2000. p. ix, 271.
Sokal AD, Bricmont J. Fashionable nonsense: postmodern intellectuals’ abuse of science. New York: Picador; 1998. p. xiv, 300.
Sørensen K, Van den Broucke S, Fullam J, et al. Health literacy and public health: a systematic review and integration of definitions and models. BMC Public Health. 2012;12:80.
Squiers L, Peinado S, Berkman N, Boudewyns V, McCormack L. The health literacy skills framework. J Health Commun. 2012;17(Suppl 3):30–54.
Stevens SS. The operational basis of psychology. Am J Psychol. 1935;47:323–30.
Stevens SS. On the theory of scales of measurement. Science. 1946;103:677–80.
Stonbraker S, Schnall R, Larson E. Tools to measure health literacy among Spanish speakers: an integrative review of the literature. Patient Educ Couns. 2015;98(12):1513–23.
Ta-Min R, Arocha JF, Hoffman-Goetz L. Assessing readability and comprehensibility of web-based cancer information. J Inf Technol Healthcare. 2007;5:300–12.
Thomson MD, Hoffman-Goetz L. Cancer information comprehension by English-as-a-second-language immigrant women. J Health Commun. 2011;16:17–33.
Trafimow D, Marks M. Editorial. Basic Appl Soc Psychol. 2015;37:1–2.
Trendler G. Measurement theory, psychology and the revolution that cannot happen. Theory Psychol. 2009;19:579–99.
Tulsieram KL, Arocha JF, Lee J. Readability and coherence of Department/Ministry of health HPV information. J Cancer Educ. 2016. http://link.springer.com/10.1007/s13187-016
Vail MW, Earp JB, Antón AI. An empirical study of consumer perceptions and comprehension of web site privacy policies. IEEE Trans Eng Manag. 2008;55:442–54.
Vogel SE, Keller C, Koschutnig K, et al. The neural correlates of health risk perception in individuals with low and high numeracy. ZDM. 2016;48:337–50.
Waller NG. The fallacy of the null hypothesis in soft psychology. Appl Prev Psychol. 2004;11:83–6.
Weiss BD, Mays MZ, Martz W, et al. Quick assessment of literacy in primary care: the newest vital sign. Ann Fam Med. 2005;3:514–22.
Wray D, Janan D. Readability revisited? The implications of text complexity. Curric J. 2013;24:553–62.
Zamanian M, Heydari P. Readability of texts: state of the art. Theory Pract Lang Stud. 2012;2(1):43–53.
Zikmund-Fisher BJ, Fagerlin A, Ubel PA. Mortality versus survival graphs: improving temporal consistency in perceptions of treatment effectiveness. Patient Educ Couns. 2007a;66:100–7.
Zikmund-Fisher B, Smith D, Ubel P, Fagerlin A. Validation of the subjective numeracy scale: effects of low numeracy on comprehension of risk communications and utility elicitations. Med Decis Making. 2007b;27:663–71.
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Arocha, J.F., Hoffman-Goetz, L. (2017). Toward a Framework for Understanding Embodied Health Literacy. In: Patel, V., Arocha, J., Ancker, J. (eds) Cognitive Informatics in Health and Biomedicine. Health Informatics. Springer, Cham. https://doi.org/10.1007/978-3-319-51732-2_4
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