Measurement of Quality of Life in Pediatric Inflammatory Bowel Disease

  • Amy Grant
  • Anthony OtleyEmail author


The burden of disease imposed on children and youth by Crohn disease (CD) and ulcerative colitis (UC) may be considerable, as manifested by clinical parameters such as symptoms, number of hospitalizations, growth retardation, and frequent need for surgery [1, 2, 3, 4, 5]. However, increasingly the psychosocial burden of inflammatory bowel disease (IBD) on young patients is being considered alongside these important clinical parameters [6, 7, 8]. One means of assessing the psychosocial burden is through evaluation of health-related quality of life (HRQOL). The purpose of this chapter is to provide the reader with an understanding of the concept of HRQOL, the approaches to its measurement in children, more specifically in pediatric patients with inflammatory bowel disease (IBD). Finally the gaps in knowledge of HRQOL in pediatric IBD and the future directions for research in this area will be discussed.


Health-related quality of life (HRQOL) IMPACT questionnaire Disease-specific HRQOL Generic HRQOL 


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© Springer International Publishing AG 2017

Authors and Affiliations

  1. 1.Division of Gastroenterology, Department of PediatricsIzaak Walton Killam Health CentreNova ScotiaCanada
  2. 2.Division of Gastroenterology, Department of PediatricsDalhousie University, Izaak Walton Killam Health CentreNova ScotiaCanada

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