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Involving Patients in Hospital-Based HTA: Experiences, Approaches, and Future Directions

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Hospital-Based Health Technology Assessment

Abstract

Policy makers, healthcare managers, and HTA producers are increasingly interested in exploring strategies for involving the public and patients in HTA activities [1, 7]. While public involvement in HTA can be a response to the need for more transparency and accountability in decisions regarding funding of drugs, devices, and healthcare procedures [1, 20], patient involvement in HTA can be seen as a way to enhance the relevance of the technologies and services that are provided by considering end users’ needs and values [8, 23]. Experiential knowledge regarding a particular health condition or the use of a given technology can be gained through patient consultation, including direct patient input [12, 30]. Furthermore, involving patients in health decision-making promotes their empowerment and can improve adherence to therapy and/or reporting of adverse effects, which could ultimately improve their health and well-being [30, 33].

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References

  1. Abelson J, Giacomini M, Lehoux P, Gauvin FP (2007) Bringing ‘the public’ into health technology assessment and coverage policy decisions: from principles to practice. Health Policy 82(1):37–50

    Article  PubMed  Google Scholar 

  2. ADHOPHTA (2015) Periodic report summary 1 – ADHOPHTA (Adopting Hospital Based Health Technology Assessment in EU). Retrieved 18 Nov 2015, from http://cordis.europa.eu/result/rcn/155715_en.html

  3. Attieh R, Gagnon M-P (2012) Implementation of local/hospital-based health technology assessment initiatives in low- and middle-income countries. Int J Technol Assess Health Care 28(04):445–451

    Article  PubMed  Google Scholar 

  4. Australian Commission on Safety and Quality in Health Care (2011, 30 Apr 2015) Accreditation and the NSQHS standards. Retrieved 9 Nov 2015, from http://www.safetyandquality.gov.au/our-work/accreditation-and-the-nsqhs-standards/

  5. Battista RN (2006) Expanding the scientific basis of health technology assessment: a research agenda for the next decade. Int J Technol Assess Health Care 22(3):275–280

    Article  PubMed  Google Scholar 

  6. Boscolo P, Ciani O, Torbica A (2012) Hospital based HTA in Italy: diffusion and potential impact. Paper presented at the ISPOR 15th Annual Europeean Congress, Berlin, Germany, November 3-7

    Google Scholar 

  7. Bridges JF, Jones C (2007) Patient-based health technology assessment: a vision of the future. Int J Technol Assess Health Care 23(1):30–35

    Article  PubMed  Google Scholar 

  8. British Medical Association (2011) Patient and public involvement – a toolkit for doctors. British Medical Association, London

    Google Scholar 

  9. CADTH (2010) Health technology update – issue 13: research and practice. Canadian Agency for Drugs and Technologies in Health, Ottawa

    Google Scholar 

  10. Cicchetti A, Marchetti M, Dibidino R, Corio M (2007) Hospital based health technology assessment world-wide survey: hospital based health technology assessment sub-interest group. Accessed on 3rd June 2016, from http://www.htai.org/fileadmin/HTAi_Files/ISG/HospitalBasedHTA/2008Files/HospitalBasedHTAISGSurveyReport.pdf

  11. Craig GM (2008) Involving users in developing health services. BMJ 336(7639):286–287

    Article  PubMed  PubMed Central  Google Scholar 

  12. Facey K, Boivin A, Gracia J, Hansen HP, Lo Scalzo A, Mossman J et al (2010) Patients’ perspectives in health technology assessment: a route to robust evidence and fair deliberation. Int J Technol Assess Health Care 26(3):334–340

    Article  PubMed  Google Scholar 

  13. Fudge N, Wolfe CD, McKevitt C (2008) Assessing the promise of user involvement in health service development: ethnographic study. BMJ 336(7639):313–317

    Article  PubMed  PubMed Central  Google Scholar 

  14. Gagnon M (2014) Hospital-based health technology assessment: developments to date. Pharmacoeconomics 32(9):819–824

    Article  PubMed  Google Scholar 

  15. Gagnon M, Ben Abdeljelil A, Desmartis M, Légaré F, Ouimet M, Gagnon J et al (2011) Opportunities to promote efficiency in hospital decision-making through the use of health technology assessment, CHSRF series of reports on cost drivers and health system efficiency: Paper 7. Canadian Health Services Research Foundation, Ottawa

    Google Scholar 

  16. Gagnon M, Desmartis M, Gagnon J, St-Pierre M, Rhainds M, Coulombe M et al (2015) Framework for user involvement in health technology assessment at the local level: views of health managers, user representatives, and clinicians. Int J Technol Assess Health Care 31(1–2):68–77

    Article  PubMed  Google Scholar 

  17. Gagnon M, Desmartis M, Lepage-Savary D, Gagnon J, St-Pierre M, Rhainds M et al (2011) Introducing patients’ and the public’s perspectives to health technology assessment: a systematic review of international experiences. Int J Technol Assess Health Care 27(1):31–42

    Article  PubMed  Google Scholar 

  18. Gagnon M, Gagnon J, St-Pierre M, Gauvin FP, Piron F, Rhainds M et al (2012) Involving patients in HTA activities at local level: a study protocol based on the collaboration between researchers and knowledge users. BMC Health Serv Res 12:14

    Article  PubMed  PubMed Central  Google Scholar 

  19. Gagnon M, Lepage-Savary D, Gagnon J, St-Pierre M, Simard C, Rhainds M et al (2009) Introducing patient perspective in health technology assessment at the local level. BMC Health Serv Res 9:54

    Article  PubMed  PubMed Central  Google Scholar 

  20. Gauvin F, Abelson J, Giacomini M, Eyles J, Lavis JN (2010) “It all depends”: conceptualizing public involvement in the context of health technology assessment agencies. Soc Sci Med 70(10):1518–1526

    Article  PubMed  Google Scholar 

  21. Gauvin F, Abelson J, Lavis J (2014) Evidence brief: strengthening public and patient engagement in health technology assessment in Ontario. McMaster Health Forum, Hamilton

    Google Scholar 

  22. Hailey D, Werkö S, Bakri R, Cameron A, Göhlen B, Myles S et al (2013) Involvement of consumers in health technology assessment activities by INAHTA agencies. Int J Technol Assess Health Care 29(1):79–83

    Article  PubMed  Google Scholar 

  23. Health Equality Europe (2008) Understanding Health Technology Assessment (HTA) Health Equality Europe. Accessed on 3rd June 2016, from http://img.eurordis.org/newsletter/pdf/nov-2010/58-1%20HEE%20Guide%20To%20HTA%20for%20Patients%20English.pdf

  24. Hospital Based Health Technology Assessment Sub-Interest Group (2008) Hospital based health technology assessment world-wide survey: Health Technology Assessment International (HTAi). Accessed on 3rd June 2016, from http://www.htai.org/fileadmin/HTAi_Files/ISG/HospitalBasedHTA/2008Files/HospitalBasedHTAISGSurveyReport.pdf

  25. Kelson M, Akl EA, Bastian H, Cluzeau F, Curtis JR, Guyatt G et al (2012) Integrating values and consumer involvement in guidelines with the patient at the center: article 8 in integrating and coordinating efforts in COPD guideline development. An official ATS/ERS workshop report. Proc Am Thorac Soc 9(5):262–268

    Article  PubMed  Google Scholar 

  26. Müller D (2014) Hospital based HTA in LMIC. Retrieved 18 Nov 2015, from http://www.who.int/medical_devices/Sat_pm_REG_8_MULLER.pdf

  27. Neale J, Strang J (2015) Blending qualitative and quantitative research methods to optimize patient reported outcome measures (PROMs). Addiction 110(8):1215–1216

    Article  PubMed  Google Scholar 

  28. Nilsen ES, Myrhaug HT, Johansen M, Oliver S, Oxman AD (2006) Methods of consumer involvement in developing healthcare policy and research, clinical practice guidelines and patient information material. Cochrane Database Syst Rev 19(3), CD004563

    Google Scholar 

  29. Oliver SR, Rees RW, Clarke-Jones L, Milne R, Oakley AR, Gabbay J et al (2008) A multidimensional conceptual framework for analysing public involvement in health services research. Health Expect 11(1):72–84

    Article  PubMed  PubMed Central  Google Scholar 

  30. Pivik J, Rode E, Ward C (2004) A consumer involvement model for health technology assessment in Canada. Health Policy 69(2):253–268

    Article  PubMed  Google Scholar 

  31. Quebec Ministry of Health and Social Services (2015, 1 Oct 2015) An act respecting health services and social services. Retrieved 9 Nov 2015, from http://www2.publicationsduquebec.gouv.qc.ca/dynamicSearch/telecharge.php?type=2&file=/S_4_2/S4_2_A.html

  32. Rowe G, Frewer LJ (2005) A typology of public engagement mechanisms. Sci Technol Hum Values 30(2):251–290

    Article  Google Scholar 

  33. Segal L (1998) The importance of patient empowerment in health system reform. Health Policy 44(1):31–44

    Article  CAS  PubMed  Google Scholar 

  34. Single AV, Scott A, Wale J (2015) Developing guidance on ethics for patient groups collecting and reporting patient information for health technology assessments. Patient Patient-Cent Outcomes Res 9(1):1–4

    Google Scholar 

  35. Speight J, Barendse SM (2010) FDA guidance on patient reported outcomes. BMJ 340:c2921

    Article  PubMed  Google Scholar 

  36. Tritter JQ (2009) Revolution or evolution: the challenges of conceptualizing patient and public involvement in a consumerist world. Health Expect 12:275–287

    Article  PubMed  PubMed Central  Google Scholar 

  37. Victorian Department of Health and Human Services (2011, 29 Jan 2014) Doing it with us not for us: participation policy. Retrieved 9 Nov 2015, from http://health.vic.gov.au/consumer/policy.htm

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Author information

Authors and Affiliations

  1. Faculté des sciences infirmières, Université Laval, Québec City, QC, Canada

    Marie-Pierre Gagnon PhD

  2. HTAi Patient and Citizen Involvement in HTA Interest Group, Melbourne, Australia

    Janet Wale

  3. Consumer Advocare Network, Toronto, ON, Canada

    Durhane Wong-Rieger

  4. ISQua Expert and Honorary Advisor on Patient Perspective, International Society for Quality in Health Care, Canberra, Australia

    Russel McGowan

Authors
  1. Marie-Pierre Gagnon PhD
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  2. Janet Wale
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  3. Durhane Wong-Rieger
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  4. Russel McGowan
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Corresponding author

Correspondence to Marie-Pierre Gagnon PhD .

Editor information

Editors and Affiliations

  1. Assessment of Innovations and New Technologies, Hospital Clinic Barcelona, Barcelona, Catalonia, Spain

    Laura Sampietro-Colom

  2. Centre for Medical Evidence, Decision Integrity & Clinical Impact (MEDICI), Department of Anesthesia & Perioperative Medicine, Schulich School of Medicine & Dentistry, Western University, London, Ontario, Canada

    Janet Martin

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Gagnon, MP., Wale, J., Wong-Rieger, D., McGowan, R. (2016). Involving Patients in Hospital-Based HTA: Experiences, Approaches, and Future Directions. In: Sampietro-Colom, L., Martin, J. (eds) Hospital-Based Health Technology Assessment. Adis, Cham. https://doi.org/10.1007/978-3-319-39205-9_30

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  • DOI: https://doi.org/10.1007/978-3-319-39205-9_30

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  • Publisher Name: Adis, Cham

  • Print ISBN: 978-3-319-39203-5

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