Abstract
Crohn’s disease and ulcerative colitis, collectively known as inflammatory bowel disease (IBD), affect approximately 1.6 million Americans and as many as 70,000 new cases are diagnosed every year. Living with these chronic diseases presents unique challenges to patients, their families, and health care providers. IBD also has a substantial financial impact on both patients individually and the national economy in general. This chapter explores some of these issues and the resources available.
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References
The facts about inflammatory bowel disease. Crohn’s & Colitis Foundation of America, November 2014. p. 16–7.
Kappelman MD, Moore KR, Allen JK, Cook SF. Recent trends in the prevalence of Crohn’s disease and ulcerative colitis in a commercially insured US population. Dig Dis Sci. 2013;58:519–25.
Kappelman MD. Evaluation of the Patient Reported Outcomes Measurement Information System (PROMIS) in a large cohort of patients with inflammatory bowel diseases. In: Digestive Diseases Week Conference, May 2012.
Longobardi T, Jacobs P, Bernstein CN. Work losses related to inflammatory bowel disease in the United States: results from the National Health Interview Survey. Am J Gastroenterol. 2003;98:1064–72.
Additional Resources
Crohn’s & Colitis Foundation of America (www.ccfa.org).
CCFA’s Irwin M. and Suzanne R. Rosenthal IBD Resource Center (IBD Help Center) (888-694-8872).
CCFA Educational Brochures (online.ccfa.org/brochures):
Living with Crohn’s Disease
Living with Ulcerative Colitis
Crohn’s Disease and Ulcerative Colitis: A Guide for Parents
Crohn’s Disease and Ulcerative Colitis: A Guide for Teachers and Other School Personnel
Managing Flares and Other IBD Symptoms
Understanding IBD Medications and Side Effects
Surgery for Crohn’s Disease and Ulcerative Colitis
IBD Fact Book
Selected Books
Kane SV. IBD self-management: the AGA guide to Crohn’s disease and ulcerative colitis. 2nd ed. Bethesda, MD: American Gastroenterological Association Institute; 2014.
Saibil F. Crohn’s disease and ulcerative colitis: everything you need to know the complete practical guide. 3rd ed. Canada: Firefly Books; 2011.
Warner AS, Barto AE. 100 questions and answers about Crohn’s disease and ulcerative colitis: a Lahey clinic guide. Burlington: MA. Jones and Bartlett Publishers; 2010.
Farraye FA. Questions and answers about ulcerative colitis. Sudbury, MA: Jones and Bartlett Learning, LLC; 2011.
Oliva-Hemker M, Ziring D, Bousvaros A, editors. Your child with inflammatory bowel disease: a family guide for caregiving (A Johns Hopkins Press Health Book). Baltimore, MD: North American Society for Pediatric Gastroenterology, Hepatology and Nutrition; 2010.
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Williams, A., Merrick, M. (2017). Patient Perspective on Inflammatory Bowel Disease. In: Baumgart, D. (eds) Crohn's Disease and Ulcerative Colitis. Springer, Cham. https://doi.org/10.1007/978-3-319-33703-6_62
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DOI: https://doi.org/10.1007/978-3-319-33703-6_62
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