International Patient Survey (Part 1: Dupuytren Disease)
This survey of Dupuytren patients is covering 2235 patients and is the largest patient survey so far. It assesses the patients’ perception of the quality of counseling and of treatments. Both appear to exhibit considerable room for improvement. For patients it is important to find a doctor who is able to inform them about all treatment options and to advise which treatment is best for the specific situation of the patient; for doctors it is important to understand the patient’s personal preferences.
All treatments exhibit mixed ratings with fasciectomy, PNF, and collagenase injection rating about equal and radiotherapy slightly better. PNF and radiotherapy are lacking availability in some countries.
According to our results, smoking and family history are causing an earlier onset of Dupuytren disease. We don’t see an effect of moderately drinking alcohol on the onset of Dupuytren disease.
KeywordsPatients’ expectations Counseling Rating therapies Alcohol Smoking Country differences
Acknowledgments and Conflict of Interest Declaration
The authors wish to thank all patients who participated in this survey. The support of participating organizations and several German clinics in inviting patients to this survey is gratefully acknowledged. Statistical analysis with SPSS was performed by CRO Kottmann, Germany. The authors have no conflict of interest to declare.
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