‘They Are Still the Same as You on the Outside Just a Bit Different on the Inside’: Raising Awareness of Dementia Through the School Curriculum

Abstract

Whilst memory loss is a significant feature of dementia, it is important to remember that people experience dementia in very unique and individual ways. In addition to physical symptoms, people living with dementia can be impacted upon by a range of behavioural and psychological symptoms which are debilitating for the person experiencing them and challenging for those around them, whether in a familial or caring capacity. Behaviour is often misunderstood when it is not considered within the context of a person’s individual life history. Following a person-centred approach is therefore an essential part of appreciating someone’s identity and identifying the underlying reason for the behaviour.

Maintaining ‘personhood’ in dementia is key to supporting a person to ‘live well’. Whilst this will not alter the physical progression of the disease, it will greatly enhance the quality of life and experiences of a person living with dementia. Warmth, empathy, respect and inclusion of people with dementia all help to maintain personhood and reduce the impact of the secondary symptoms of dementia. Raising awareness of dementia and helping people feel included and connected within their communities has been made a priority in developing dementia-friendly communities. Creating dementia-friendly environments is embodied within current policy and is underpinned by good quality education which dispels myths, challenges stigma and builds confidence, understanding and knowledge.