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Swift and Systematic? Identifying and Recording Disability in Forced Migration

  • Mary CrockEmail author
  • Laura Smith-Khan
Chapter
Part of the Social Indicators Research Series book series (SINS, volume 61)

Abstract

In this chapter we reflect on the use of the Washington Group’s functionality approach to identifying disabilities in fieldwork conducted across 3 years and six countries. Funded by the Australian government, researchers from the University of Sydney explored the adequacy of systems used by UNHCR and other agencies to identify disabilities in populations of displaced persons. They found that humanitarian agencies have relied heavily on either self-reporting by persons with disabilities or on the visual identification of impairments. The inadequacies in this approach are apparent in agency records showing disability rates in refugee populations that fall way below the averages suggested by the World Health Organisation in its Global Disabilities Report. We found that the High Commissioner for Refugees was accurate in describing persons with disabilities as the invisible and forgotten refugees. Our research examined the dramatically different results achieved by UNHCR when versions of the Washington Group questions were used in a verification exercise in Pakistan. If a similar approach were adopted in registration procedures across the world, we argue that UNHCR would generate data that aligns more closely with global standards. Data on disabilities is critical to developing accessible programs. Of course, asking the right questions is only one part of a complex equation. The nature of displacement throws up many challenges to identification. Awareness raising and training are crucial, as is the dissemination of information in suitable languages and formats. Empowering refugee communities and groups of refugees with disabilities creates valuable conduits for referrals.

Keywords

Cerebral Palsy Asylum Seeker Displace Person Functional Difficulty Refugee Convention 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

Notes

Acknowledgement

Special thanks to Ron McCallum AO for comments on the chapter in draft. In writing this chapter we acknowledge with gratitude financial assistance received from Mrs Judy Harris and AusAID for the “Protection of Refugees with Disabilities” Project. The views expressed are those of the authors alone.

References

International Law

  1. Convention on the Rights of Persons with Disabilities (opened for signature 30 March 2007, entered into force 3 May 2008) 2515 UNTS 3.Google Scholar
  2. Convention relating to the Status of Refugees (opened for signature 28 July 1951, entered into force 4 October 1967) 189 UNTS 137.Google Scholar
  3. Protocol relating to the Status of Refugees (opened for signature 31 January 1967, entered into force 4 October 1967) 606 UNTS 267.Google Scholar

Other Sources

  1. Abdel-Messih, I. A., El-Setouhy, M., Crouch, M. M., & Earhart, K. C. (2008). Developing cultural competence and overcoming ethical challenges in the informed consent process: An experience from Egypt. Journal of Research Administration, 39(2), 33–40.Google Scholar
  2. Bloch, A. (2007). Methodological challenges for national and multi-sited comparative survey research. Journal of Refugee Studies, 20(2), 230–247.CrossRefGoogle Scholar
  3. Crock, M., Ernst, C., & McCallum, R. (2013). Where disability and displacement intersect: Asylum seekers and refugees with disabilities. International Journal of Refugee Law, 24(4), 735–764.CrossRefGoogle Scholar
  4. Davis, N. A. (2005). Invisible disability. Ethics, 116(1), 153–213.CrossRefGoogle Scholar
  5. Fennell, E. B., & Dikel, T. N. (2001). Cognitive and neuropsychological functioning in children with cerebral palsy. Child Neurology, 16(1), 58–63.Google Scholar
  6. Garand, L., Lingler, J. H., Conner, K. O., & Dew, M. A. (2009). Diagnostic labels, stigma and participation in research related to dementia and mild cognitive impairment. Research in Gerontological Nursing, 2(2), 112–121.CrossRefGoogle Scholar
  7. Harrell-Bond, B., & Voutira, E. (2007). In search of “invisible” actors: Barriers to access in refugee research. Refugee Studies, 20(2), 281–298.CrossRefGoogle Scholar
  8. Hart, N., Crock, M., McCallum, R., & Saul, B. (2014). Making every life count: Ensuring equality for persons with disabilities in emergency situations. Monash University Law Review, 40(1), 148–154.Google Scholar
  9. HelpAge International and Handicap International. (2014). Hidden victims of the Syrian crisis: Disabled, injured and older refugees. London: HelpAge International; Lyon: Handicap International. http://www.helpage.org/download/537207495fe87
  10. Pakistan Office of the Chief Commissioner for Afghan Refugees (CCAR) and UNHCR. (2011). Population profiling, verification and response survey of Afghans in Pakistan. Islamabad: UNHCR Pakistan.Google Scholar
  11. Sario, U. K. (2012). Study into persons with disabilities: Analysis of availability of and access to basic services and rights of disabled refugees in Malaysia. Kuala Lumpur: UNHCR Malaysia.Google Scholar
  12. Smith-Khan, L., Crock, M., Saul, B., & McCallum, R. (2015a). To “promote, protect and ensure”: Overcoming obstacles to identifying disability in forced migration. Journal of Refugee Studies, 28(1), 38–68.CrossRefGoogle Scholar
  13. Smith-Khan, L., Crock, M., McCallum, R., & Saul, B. (2015b). “Up to now I am suffering”: Justice, sexual violence and disability amongst refugees in Uganda. International Journal of Migration and Border Studies, 1(4), 348–371.CrossRefGoogle Scholar
  14. UNHCR. (2003). Handbook for registration: Procedures and standards for registration, population data management and documentation. Geneva: UNHCR. http://www.refworld.org/pdfid/3f967dc14.pdf
  15. UNHCR. (2004 September 1). UNHCR seeks ProGres in refugee registration. 1 September 2004. Geneva: UNHCR. http://www.unhcr.org/print/4135e9aa4.html
  16. UNHCR. (2009 June 10). Guidance on the use of standardized specific needs codes, DIPS/DOS, 10 June 2009. Geneva: UNHCR. http://data.unhcr.org/imtoolkit/chapters/view/registration-in-emergencies/lang:eng
  17. UNHCR. (2010). Heightened risk identification tool (2nd ed.). Geneva: UNHCR. http://www.refworld.org/docid/4c46c6860.html
  18. UNHCR. (2011a). Age, gender and diversity policy. Geneva: UNHCR. http://www.unhcr.org/543b922a6.html
  19. UNHCR. (2011b). Need to know guidance: Working with persons with disabilities in forced displacement. Geneva: UNHCR. http://www.unhcr.org/4ec3c81c9.pdf
  20. UNHCR. (2012). Who we help. http://www.unhcr.or.id/en/who-we-help. Accessed 3 Feb 2012.
  21. UNHCR. (2013a). Resettlement assessment tool: Refugees with disabilities. http://www.unhcr.org/51de6e7a9.html
  22. UNHCR. (2013b). UNHCR Uganda, Sub-Office Mbarara Fact Sheet. Mbarara: UNHCR.Google Scholar
  23. UNHCR Executive Committee. (2010 October 12). Conclusion on refugees with disabilities and other persons with disabilities protected and assisted by UNHCR, Conclusion No 110 (LXI), 12 October 2010. http://www.unhcr.org/4cbeb1a99.html
  24. Washington Group on Disability Statistics. (2011 November). Washington Group: Extended question set on functioning (WG ES-F), Version 9, November 2011. http://www.cdc.gov/nchs/data/washington_group/WG_Extended_Question_Set_on_Functioning.pdf
  25. Women’s Refugee Commission (WRC). (2008). Disabilities among Refugees and Conflict-affected Populations. New York: Women's Refugee Commission.Google Scholar
  26. World Health Organization (WHO). (2011). World report on disability. Geneva: World Health Organization and World Bank.Google Scholar

Copyright information

© Springer International Publishing Switzerland 2016

Authors and Affiliations

  1. 1.Faculty of LawUniversity of SydneySydneyAustralia
  2. 2.Linguistics DepartmentMacquarie UniversitySydneyAustralia

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