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Patient Support Groups and International Centers for AIBD

  • Joost M. MeijerEmail author
  • Marcel F. Jonkman
Chapter

Abstract

Patients and their families should be informed about disease, prognosis, available treatment options, process of clinical follow-up, and possible adverse events or complications. Patients should also be informed about the existence of local or national patient support groups or patients’ associations. These associations contribute to promote knowledge of the disease and improve patients’ access to information, healthcare, and social services, and they can help in referring patients to centers of expertise for AIBD.

Keywords

Autoimmune bullous diseases Patient support groups Centers of expertise Biologics 

Copyright information

© Springer International Publishing Switzerland 2016

Authors and Affiliations

  1. 1.Department of DermatologyCenter for Blistering Diseases, University Medical Center Groningen, University of GroningenGroningenthe Netherlands

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