Skip to main content

Disparities and Diversity in Biomedical Research

  • Chapter
Diversity and Inclusion in Quality Patient Care

Abstract

There is convincing evidence that not all segments of the population have benefited equally from the scientific advances of the past several decades. Persistent differences exist in health status and health care outcomes as a function of race, ethnicity, English language proficiency, insurance status, and other social, economic, and demographic characteristics. Achieving health equity across all population groups is a national priority that will require vision and commitment from all sectors; however, the research community is central to attaining this goal. This undertaking involves significant conceptual, methodological, and practical challenges, as well as consideration of the current scientific context within which research on minority populations occurs. The elimination of health disparities will require the engagement of the entire spectrum of basic, clinical, health services and behavioral research to inform our understanding of the underlying mechanisms that cause disparities and the development of evidence-based interventions to eliminate them. The collection of granular data on individual demographic and social characteristics in all research studies and in all health care settings is an essential component to meeting these challenges. Development of a culturally competent and diverse research workforce is also critical to the elimination of health disparities. Innovative pipeline programs are needed to engage Black, Latino, Native American, and disadvantaged youth in research exposure and training activities to increase the diversity of the research workforce.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 84.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  1. Centers for Disease Control and Prevention (CDC). CDC health disparities and inequalities report – United States, 2011. MMWR Surveill Summ. 2011;60(Suppl):1–2.

    Google Scholar 

  2. Centers for Disease Control and Prevention (CDC). CDC health disparities and inequalities report - United States. MMWR Surveill Summ. 2013;62 Suppl 3:9–18.

    Google Scholar 

  3. Heckler MM. Report of the Secretary’s task force on Black and minority health. Washington, DC: United States Department of Health and Human Services; 1985.

    Google Scholar 

  4. Agency for Healthcare Research & Quality [Internet]. Rockville (MD): Agency for Healthcare Research and Quality; [cited 2015 Feb 18]. National Healthcare Quality & Disparities Reports; [about 1 p.]. Available from: http://www.ahrq.gov/research/findings/nhqrdr

  5. Department of Health and Human Services - USA. The Secretary’s advisory committee on national health promotion and disease prevention objectives for 2020. Phase I report: Recommendations for the framework and format of Healthy People 2020. Department of Health & Human Services - USA; 28 Oct 2008.

    Google Scholar 

  6. Institute of Medicine (US) Committee on the Review and Assessment of the NIH’s Strategic Research Plan and Budget to Reduce and Ultimately Eliminate Health Disparities, Thomson GE, Mitchell F, Williams MB, editors. Examining the health disparities research plan of the national institutes of health: unfinished business. Washington, DC: National Academies Press; 2006.

    Google Scholar 

  7. Gracia JN, Ruffin J. Partnership, research, and leadership to advance health equity and eliminate health disparities. Am J Public Health. 2014;104 Suppl 4:S520–1.

    Article  PubMed Central  PubMed  Google Scholar 

  8. Working Group on Diversity in the Biomedical Research Workforce (WGDBRW), The Advisory Committee to the Director (ACD). National institutes of health draft report of the advisory committee to the director working group on diversity in the biomedical research workforce. National Institutes of Health; 13 Jun 2012.

    Google Scholar 

  9. Hong L, Page SE. Groups of diverse problem solvers can outperform groups of high-ability problem solvers. Proc Natl Acad Sci U S A. 2004;101(46):16385–9. Epub 2004 Nov 8.

    Article  CAS  PubMed Central  PubMed  Google Scholar 

  10. Sessa VI, Taylor JJ. Executive selection: strategies for success. San Francisco: Jossey-Bass; 2000.

    Google Scholar 

  11. Leung AK, Maddux WW, Galinsky AD, Chiu CY. Multicultural experience enhances creativity: the when and how. Am Psychol. 2008;63(3):169–81.

    Article  PubMed  Google Scholar 

  12. Stoff DM, Forsyth A, Marquez ED, McClure S. Introduction: the case for diversity in research on mental health and HIV/AIDS. Am J Public Health. 2009;99 Suppl 1:S8–15.

    Article  PubMed Central  PubMed  Google Scholar 

  13. Satcher D. Embracing culture, enhancing diversity, and strengthening research. Am J Public Health. 2009;99 Suppl 1:S4.

    Article  PubMed Central  PubMed  Google Scholar 

  14. Institute of Medicine (US) Committee on Understanding and Eliminating Racial and Ethnic Disparities in Health Care, Smedley BD, Stith AY, Nelson AR, editors. Unequal treatment: confronting racial and ethnic disparities in health care. Washington, DC: National Academies Press; 2003.

    Google Scholar 

  15. Richardson LD, Irvin CB, Tamayo-Sarver JH. Racial and ethnic disparities in the clinical practice of emergency medicine. Acad Emerg Med. 2003;10(11):1184–8.

    Article  PubMed  Google Scholar 

  16. Dehlendorf C, Bryant AS, Huddleston HG, Jacoby VL, Fujimoto VY. Health disparities: definitions and measurements. Am J Obstet Gynecol. 2010;202(3):212–3.

    Article  PubMed Central  PubMed  Google Scholar 

  17. The White House [Internet]. The White House; [cited 2015 May 5]. Revisions to the Standards for the Classification of Federal Data on Race and Ethnicity; [about 15 p.]. Available from: http://www.whitehouse.gov/omb/fedreg/1997standards.html

  18. United States Census Bureau [Internet]. U.S. Census Bureau; [cited 2015 Feb 26]. 2014 National Population Projections; [about 1 p.]. Available from: https://www.census.gov/population/projections/data/national/2014.html

  19. Williams DR. Race, socioeconomic status, and health. The added effects of racism and dis- crimination. Ann N Y Acad Sci. 1999;896:173–88.

    Article  CAS  PubMed  Google Scholar 

  20. Kawachi I, Daniels N, Robinson DE. Health disparities by race and class: why both matter. Health Aff. 2005;24(2):343–52.

    Article  Google Scholar 

  21. National Partnership for Action to End Health Disparities [Internet]. U.S. Department of Health & Human Services; [updated 2011 Mar 4; cited 2015 May 5]. Health Equity & Disparities; [about 1 p.]. Available from: http://www.minorityhealth.hhs.gov/npa/templates/browse.aspx?lvl=1&lvlid=34

  22. National Science Foundation, National Center for Science and Engineering Statistics. Women, minorities and persons with disabilities in science and engineering: 2013. Arlington, VA: National Science Foundation; 2013. Special Report: NSF 13-304.

    Google Scholar 

  23. Nivet MA, Castillo-Page L. Diversity in the physician workforce: facts & figures 2014. Washington, DC: Association of American Medical Colleges; 2015.

    Google Scholar 

  24. U.S. Department of Health and Human Services (HHS), Health Resources and Services Administration and HHS’ Office of Public Health and Science (OPHS), Office of Minority Health (OMH). Pipeline programs to improve racial and ethnic diversity in the health professions: An inventory of federal programs, assessment of evaluation approaches, and critical review of the research literature. Apr 2009.

    Google Scholar 

  25. Ginther DK, Schaffer WT, Schnell J, Masimore B, Liu F, Haak LL, et al. Race, ethnicity, and NIH research awards. Science. 2011;333(6045):1015–9.

    Article  CAS  PubMed Central  PubMed  Google Scholar 

  26. National Institutes of Health [Internet]. Bethesda (MD): U.S. Department of Health & Human Services; [updated 2014 Oct 22; cited 2015 May 5]. Overview [about 1 p.]. Available from: https://commonfund.nih.gov/diversity/overview

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Lynne D. Richardson M.D. .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2016 Springer International Publishing Switzerland

About this chapter

Cite this chapter

Holden, L., Richardson, L.D. (2016). Disparities and Diversity in Biomedical Research. In: Martin, M., Heron, S., Moreno-Walton, L., Jones, A. (eds) Diversity and Inclusion in Quality Patient Care. Springer, Cham. https://doi.org/10.1007/978-3-319-22840-2_18

Download citation

  • DOI: https://doi.org/10.1007/978-3-319-22840-2_18

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-22839-6

  • Online ISBN: 978-3-319-22840-2

  • eBook Packages: MedicineMedicine (R0)

Publish with us

Policies and ethics