Bridging the Gap Between Personalization of Care and Research

  • Maria Giulia Marini


In our contemporary scientific world, where disease and pathways of care are primarily driven by numbers and statistics on the likelihood of disease and success of therapies, a shortsighted view about narrative medicine is that this “cultural wave” can represent the antidote to the use and abuse of the metric and predictive values of clinical trials and clinical practice. At the end of this chapter, we will discover how Narrative Medicine, despite the differing philosophical issues distinguishing it from EBM, can itself produce “metrics” and numbers—tools that are valid for a fast decision-making. Retracing the genesis of narrative medicine, it is true that at its origin it has placed an emphasis on space and time for greater personalization of care. Narrative medicine has set the basic premises that individuals are profoundly different and patients live, feel, think, and act with rhythms and values in similar and dissimilar ways, especially when confronted with complex issues such as those related to illness and the loss of health and wellness (see Chap.  1).


Evidence-based medicine Narrative-based medicine Quantitative research Qualitative research Pathways of care Narrative evidence-based medicine Software semantic tools 


  1. Charon R, Wyer P, Chase H et al (2008) Narrative evidence based medicine. Lancet 371:296–297PubMedCrossRefGoogle Scholar
  2. Greenhalgh T, Hurwitz B (1999) Narrative based medicine in an evidence based world. BMJ 318Google Scholar
  3. Farmelo G (2009) The Strangest Man: the Life of Paul Dirac. Faber and Faber, LondonGoogle Scholar
  4. Kelle U, Laurie H (1995) Computer use in qualitative research and issues of validity. In: Kelle U (ed) Computer-aided qualitative data analysis: theory, methods and practice. Sage, London, pp 19–28Google Scholar
  5. Marini MG, Chesi P, Guazzarotti L et al (2015) Creating through stories of experiences of care for GH deficiency the empowerment toward the excellence – The C.R.ES.C.E.R.E. project, Stories about life with GH deficiency. Submitted to Future Science openGoogle Scholar
  6. Odifreddi P (1989) Classical recursion theory. North-Holland, AmsterdamGoogle Scholar
  7. Sackett DL, Straus SE, Richardson WS et al (2000) Evidence-based medicine: how to practice and teach EBM, 2nd edn. Churchill Livingstone, EdinburghGoogle Scholar
  8. Strategic partnership delivers greater flexibility to qualitative researchers in the UK and around the world, National Centre for Social Research, 17 Oct 2011Google Scholar

Copyright information

© Springer International Publishing Switzerland 2016

Authors and Affiliations

  • Maria Giulia Marini
    • 1
  1. 1.Research and Health Care DirectorFondazione ISTUDMilanItaly

Personalised recommendations