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Abstract

Public health has only recently begun to consider the health needs of people with developmental and other disabilities, and a public health perspective has much to offer clinical practice and applied research. This chapter provides a basic overview of a public health perspective; describes the recent evolution in how public health views disability; illustrates application of a public health approach to the current health problem of obesity and its importance for chronic disease, particularly for people with disabilities; and summarizes the value of a public health perspective to intellectual and developmental disabilities.

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References

  1. Institute of Medicine. The future of public health. Washington, DC: National Academy Press; 1988.

    Google Scholar 

  2. Kindig D, Stoddart G. What is population health? Am J Public Health. 2003;93(3):380–3.

    Article  PubMed  PubMed Central  Google Scholar 

  3. Shortell SM. Bridging the divide between health and health care. JAMA. 2013;309(11):1121–2.

    Article  CAS  PubMed  Google Scholar 

  4. Sox HC. Resolving the tension between population health and individual health care. JAMA. 2013;310(18):1933–4.

    Article  CAS  PubMed  Google Scholar 

  5. World Health Organization. Glossary of globalization, trade and health terms. http://www.who.int/trade/glossary/story076/en/

  6. Rosen G. A history of public health. Baltimore: Johns Hopkins University Press; 1993.

    Google Scholar 

  7. Last JM. A dictionary of epidemiology. Oxford: Oxford University Press; 2000.

    Google Scholar 

  8. Winslow CEA. The untilled fields of public health. Science. 1920;51(1306):23–33.

    Article  CAS  PubMed  Google Scholar 

  9. Patterson KD, Pyle GF. The geography and mortality of the 1918 influenza pandemic. Bull Hist Med. 1991;65(1):4–21.

    CAS  PubMed  Google Scholar 

  10. Flexner A. Medical education in the United States and Canada: a report to the Carnegie foundation for the advancement of teaching. New York: Carnegie Foundation for the Advancement of Teaching; 1910. Bulletin 4.

    Google Scholar 

  11. Hanlon JJ. Public health: administration and practice. St Louis: Mosby; 1950.

    Google Scholar 

  12. Marmot MG, Smith GD, Stansfeld S, Patel C, North F, Head J, White I, Brunner E, Feeney A. Health inequalities among British civil servants: the Whitehall II study. Lancet. 1991;338(8758):58–9.

    Google Scholar 

  13. Goldberg M, Leclerc A, Bonenfant S, Chastang JF, Schmaus A, Kaniewski N, Zins M. Cohort profile: the GAZEL Cohort study. Int J Epidemiol. 2007;36:32–9.

    Article  PubMed  Google Scholar 

  14. Wilkinson RG, Marmot MG. Social determinants of health: the solid facts. Geneva: World Health Organization; 2003.

    Google Scholar 

  15. Marmot M. Social determinants of health inequalities. Lancet. 2005;365(9464):1099–104.

    Article  PubMed  Google Scholar 

  16. Marmot M, Wilkinson R. Social determinants of health. Oxford: Oxford University Press; 2009.

    Google Scholar 

  17. US Department of Health and Human Services. Healthy people 2020. Washington, DC: Office Disease Prevention Health Promotion, Healthy People; 2014.

    Google Scholar 

  18. Novick LF, Mays GP. Public health administration: principles for population-based management. Gaithersburg: Aspen; 2001. p. 3.

    Google Scholar 

  19. Turnock BJ. Public health: what it is and how it works. 2nd ed. Gaithersburg: Aspen; 2001.

    Google Scholar 

  20. Fujiura GT, Rutkowski-Kmitta V, Owen R. Make measurable what is not so: national monitoring of the status of persons with intellectual disability. Am J Intellect Dev Disabil. 2010;35(10):244–58.

    Article  Google Scholar 

  21. Krahn G, Fox MH, Campbell VA, Ramon I, Jesien G. Developing a health surveillance system for people with intellectual disabilities in the United States. J Policy Pract Intellect Disabil. 2010;7(3):155–66.

    Article  Google Scholar 

  22. Benjamin G, Mitra M, Graham C, Krahn G, Luce S, Fox M, Hootman J, Ghiya N, Popovic T. Where in health is disability? Public health practices to include people with disabilities. MMWR. 2013;62(34):697–701.

    Google Scholar 

  23. Centers for Disease Control and Prevention. The public health system and the 10 essential public health services. http://www.cdc.gov/nphpsp/essentialservices.html

  24. Frieden TR. A framework for public health action: the health impact pyramid. Am J Public Health. 2010;100(4):590–5.

    Article  PubMed  PubMed Central  Google Scholar 

  25. US Department of Health and Human Services, U.S. Public Health Service. The public health workforce: an agenda for the 21st century, a report of the public health functions project. Washington, DC: US Government Printing Office; 1997.

    Google Scholar 

  26. Turnock BJ, Handler A, Hall W, Potsic S, Nalluri R, Vaughn EH. Local health department effectiveness in addressing the core functions of public health. Public Health Rep. 1994;109(5):653–8.

    CAS  PubMed  PubMed Central  Google Scholar 

  27. Centers for Disease Control and Prevention. National public health performance standards. http://www.cdc.gov/nphpsp/

  28. Lollar DJ, Crews JE. Redefining the role of public health in disability. Annu Rev Public Health. 2003;24:195–208.

    Article  PubMed  Google Scholar 

  29. Lollar DJ, Andresen EM, editors. Public health perspectives on disability: epidemiology to ethics and beyond. Dordrecht: Springer; 2011.

    Google Scholar 

  30. New South Wales Council on Intellectual Disability. Health and people with intellectual disability. NSW Council for Intellectual Disability, 2003. http://www.nswcid.or.au/systemic/position/health.html

  31. Ouellette-Kuntz H, Garcin N, Lewis ME, Minnes P, Martin C, Holden JJ. Addressing health disparities through promoting equity for individuals with intellectual disability. Can J Public Health. 2005;96(S2):S8–22.

    PubMed  Google Scholar 

  32. Scottish Executive Health Department. Promoting heath, supporting inclusion: the national review of the contribution of all nurses and midwives to the care and support of people with learning disabilities, 2002. http://www.scotland.gov.uk/Publications/2002/07/15072/8573

  33. UK Department of Health. Valuing people: a new strategy for learning disability for the 21st century. London: HMSO; 2001. p. 2001.

    Google Scholar 

  34. US Department of Health and Human Services. Closing the gap: a national blueprint for improving the health of individuals with mental retardation Report of the surgeon general’s conference on health disparities and mental retardation. Washington, DC: US Public Health Service; 2002. p. 2002.

    Google Scholar 

  35. United Nations. Convention on the rights of persons with disabilities, 2006. http://www.un.org/disabilities/convention/conventionfull.shtml

  36. Drum CE, Krahn G, Peterson J, Horner-Johnson W, Newton K. Health of people with disabilities: determinants and disparities. In: Drum CE, Krahn G, Bersani H, editors. Disability and public health. Washington, DC: American Public Health Association, American Association Intellectual Developmental Disabilities; 2009.

    Chapter  Google Scholar 

  37. Krahn GL, Campbell VA. Evolving views of disability and public health: the roles of advocacy and public health. Disabil Health J. 2011;4(1):12–8.

    Article  PubMed  Google Scholar 

  38. Havercamp SM, Scandlin D, Roth M. Health disparities among adults with developmental disabilities, adults with other disabilities, and adults not reporting disability in North Carolina. Public Health Rep. 2004;119(4):418–26.

    Article  PubMed  PubMed Central  Google Scholar 

  39. Iezzoni LI. Eliminating health and health care disparities among the growing population of people with disabilities. Health Aff (Millwood). 2011;30(10):1947–54.

    Article  Google Scholar 

  40. Krahn GL, Fox M. Health disparities of people with intellectual disabilities: what do we know and what do we do? J Appl Res Intellect Disabil. 2013. doi:10.1111/jar.12067.

    PubMed  PubMed Central  Google Scholar 

  41. Black MC, Breiding MJ. Adverse health conditions and health risk behaviors associated with intimate partner violence – United States, 2005. MMWR. 2008;57(5):113–7.

    Google Scholar 

  42. World Health Organization. World report on disability, 2011. http://whqlibdoc.who.int/publications/2011/9789240685215_eng.pdf?ua=1

  43. World Health Organization. International classification of functioning, disability and health: ICF. Geneva: World Health Organization; 2001.

    Google Scholar 

  44. World Health Organization. Global status report on noncommunicable diseases. Geneva: WHO; 2011.

    Google Scholar 

  45. World Health Organization. The top ten causes of death. http://www.who.int/mediacentre/factsheets/fs310/en/index.html

  46. Hoyert DL, Xu JQ. Deaths: preliminary data for 2011, National vital statistics reports; vol. 61, no. 6. Hyattsville, MD: National Center for Health Statistics; 2012.

    Google Scholar 

  47. World Health Organization. Obesity: preventing and managing the global epidemic. Technical Report Series #894. http://whqlibdoc.who.int/trs/WHO_TRS_894.pdf

  48. Stancliffe RJ, Lakin KC, Larson S, Engler J, Bershadsky J, Taub S, et al. Overweight and obesity among adults with intellectual disabilities who use intellectual disability/developmental disability services in 20 US States. Am J Intellect Dev Disabil. 2011;116(6):401–18.

    Article  PubMed  Google Scholar 

  49. Guide to Community Preventive Services. Centers for disease control and prevention. www.thecommunityguide.org

  50. Marks B, Sisirak J, Chang Y. Efficacy of the health matters program train-the-trainer model. J Appl Res Intellect Disabil. 2013;26(4):319–34.

    Article  PubMed  Google Scholar 

  51. Horner-Johnson W, Drum C, Abdullah N. A randomized trial of a health promotion intervention for adults with disabilities. Disabil Health J. 2011;4:254–61.

    Article  PubMed  Google Scholar 

  52. McDermott S, Whitner W, Thomas-Koger M, Mann J, Clarkson J, Barnes T, Bao H, Meriwether R. An efficacy trial of ‘steps to your health’, a health promotion programme for adults with intellectual disability. Health Educ J. 2012;71(3):278–90.

    Article  PubMed  PubMed Central  Google Scholar 

  53. Ravesloot C, Seekins T, Cahill T, Lindgren S, Nary DE, White G. Health promotion for people with disabilities: development and evaluation of the living well with a disability program. Health Educ Res. 2007;22(4):522–31.

    Article  CAS  PubMed  Google Scholar 

  54. MENU-AIDS, Humphries K, Traci MA, Pepper AC, Seekins T. Nutrition education and support program for community-dwelling adults with intellectual disabilities. Intellect Dev Disabil. 2008;46(5):335–45.

    Article  Google Scholar 

  55. Special Olympics. Obesity is an issue of great importance, not only in the United States, but around the world. http://www.specialolympics.org/Sections/What_We_Do/Healthy_Athletes/Healthy_Foods.aspx

  56. The Arc. Promoting health and nutrition in Schenectady County, New York. http://blog.thearc.org/tag/obesity/

  57. Fujiura GT. The political arithmetic of disability and the American family: a demographic perspective. Fam Relat. 2014;63(1):7–19.

    Article  Google Scholar 

  58. US Department of Labor. Office of disability employment policy. http://www.dol.gov/odep/. Accessed 11 Feb 2014.

  59. United Nations. (ENABLE) fact sheet: employment of persons with disabilities. United Nations Department of Public Information, DPI/2486. http://www.un.org/disabilities/documents/toolaction/employmentfs.pdf

  60. Siperstein GN, Parker RC, Drascher M. National snapshot of adults with intellectual disabilities in the labor force. J Vocat Rehabil. 2013;39:157–65.

    Google Scholar 

  61. Viana MC, Gruber MJ, Shahly V, Alhamzawi A, Alonso J, Andrade LH, et al. Family burden related to mental and physical disorders in the world: results from the WHO World Mental Health (WMH) surveys. Rev Bras Psiquiatr. 2013;35(2):115–25.

    Article  PubMed  Google Scholar 

  62. Ourada VEZ, Walker AJ. A comparison of physical health outcomes for caregiving parents and caregiving adult children. Fam Relat. 2014;63(1):163–77.

    Article  Google Scholar 

  63. Anderson WL, Armour BS, Finkelstein EA, Wiener JM. Estimates of state-level health-care expenditures associated with disability. Public Health Rep. 2010;125(1):44–51.

    PubMed  PubMed Central  Google Scholar 

  64. Brault MW. Americans with disabilities: 2010. Washington, DC: US Department of Commerce; 2012.

    Google Scholar 

  65. Krahn GL, Walker DK, and Correa-De-Araujo R.Persons with disabilities as an unrecognized health disparity population. Amer J Public Health. 2015; 105(S2), S198-S206. doi: 10.2105/AJPH.2014.302182.

    Google Scholar 

  66. Elliott J, Hatton C, Emerson E. The health of people with learning disabilities in the UK: evidence and implications for the NHS. J Integr Care. 2003;11(3):9–17.

    Article  Google Scholar 

  67. Emerson E, Durvasula S. Health inequalities and people with intellectual disabilities: an introduction to the special issue. J Appl Res Intellect Disabil. 2005;18(2):95–6.

    Article  Google Scholar 

  68. Emerson E, Hatton C, Robertson J, Roberts H, Baines S, Evison F, Glover G. People with learning disabilities in England 2011. Cambridge: Learning Disabilities Observatory, Improving Health and Lives (IHAL); 2012.

    Google Scholar 

  69. Reichard A, Stolzle H. Diabetes among adults with cognitive limitations compared to individuals with no cognitive disabilities. Intellect Dev Disabil. 2011;49(3):141–54.

    Article  PubMed  Google Scholar 

  70. Reichard A, Stolzle H, Fox MH. Health disparities among adults with physical disabilities or cognitive limitations compared to individuals with no disabilities in the United States. Disabil Health J. 2011;4(2):59–67.

    Article  PubMed  Google Scholar 

  71. Bonardi A, Lauer E, Hill H, Bishop E, Hill C, Kilpatrick L. Health surveillance in the population with intellectual disability: case definition in state level data. Paper presented at the Annual Meeting and Expo of the American Public Health Association, Boston, 26 Nov 2013.

    Google Scholar 

  72. Houtenville AJ, Lauer EA, Lauer E, Bonardi A. Health of people with intellectual disabilities: can it be surveilled through existing data? Paper presented at the Annual Meeting and Expo of the American Public Health Association, Boston, 26 Nov 2013.

    Google Scholar 

  73. Fox MH, Reichard A. Disability, health, and multiple chronic conditions among people eligible for both medicare and medicaid, 2005–2010. Prev Chronic Dis. 2013;10, E157. doi:10.5888/pcd10.130064.

    Article  PubMed  PubMed Central  Google Scholar 

  74. Krahn G, Reyes M, Fox MH. Chronic conditions and disability: toward a conceptual model for national policy and practice considerations. Disabil Health J. 2014;7(1):13–8.

    Article  PubMed  Google Scholar 

  75. Andresen EM. Epidemiology and biostatistics. In: Lollar DJ, Andresen EM, editors. Public health perspectives on disability: epidemiology to ethics and beyond. Dordrecht: Springer; 2011.

    Google Scholar 

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Acknowledgements

The findings and conclusions in this chapter are those of the authors and do not necessarily represent the official position of the Centers for Disease Control and Prevention.

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Correspondence to Gloria L. Krahn Ph.D., MPH .

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Krahn, G.L., Fox, M.H. (2016). Public Health Perspectives on Intellectual and Developmental Disabilities. In: Rubin, I.L., Merrick, J., Greydanus, D.E., Patel, D.R. (eds) Health Care for People with Intellectual and Developmental Disabilities across the Lifespan. Springer, Cham. https://doi.org/10.1007/978-3-319-18096-0_33

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  • DOI: https://doi.org/10.1007/978-3-319-18096-0_33

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