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End-of-Life Care

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Health Care for People with Intellectual and Developmental Disabilities across the Lifespan

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Abstract

With the advent of the modern hospice movement in mid-twentieth century, longer life expectancy reflective of medical advances, growing attention to ethical issues, and development of palliative medicine, increased attention has been paid to palliative and end-of-life care in general. Similarly, interest in issues pertaining to end-of-life care for people with intellectual and developmental disabilities (IDD) also has gained more attention in the professional and lay media. Despite these developments, there continues to be many misconceptions issues specific to people with IDD at end of life. Current medical, social, ethical, and practical issues, as well as challenges faced by children and adults with IDD, reflect the gains that have been made and the ongoing need for further refinement of systems and supports.

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Author information

Authors and Affiliations

  1. Developmental Pediatrics, JFK Partners, University of Colorado School of Medicine, Children’s Hospital Colorado, 13123 E 16th Ave., Aurora, CO, 80045, USA

    Sandra L. Friedman M.D., MPH

  2. Leadership Education in Neurodevelopmental and Related Disabilities (LEND Program), Institute for Community Inclusion, Boston Children’s Hospital, 300 Longwood Ave, Boston, MA, 02115, USA

    David T. Helm Ph.D.

Authors
  1. Sandra L. Friedman M.D., MPH
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  2. David T. Helm Ph.D.
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Correspondence to Sandra L. Friedman M.D., MPH .

Editor information

Editors and Affiliations

  1. Innovative Solutions for Disadvantage and Disability and Department of Pediatrics, Morehouse School of Medicine, Atlanta, GA, USA

    I. Leslie Rubin

  2. National Institute of Child Health and Human Development and Medical Services, Division for Developmental and Developmental Disabilities, Ministry of Social Affairs and Social Services, Jerusalem, Israel

    Joav Merrick

  3. Department of Pediatric and Adolescent Medicine, Western Michigan University Homer Stryker MD School of Medicine, Western Michigan University, Kalamazoo, MI, USA

    Donald E. Greydanus  & Dilip R. Patel  & 

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Friedman, S.L., Helm, D.T. (2016). End-of-Life Care. In: Rubin, I.L., Merrick, J., Greydanus, D.E., Patel, D.R. (eds) Health Care for People with Intellectual and Developmental Disabilities across the Lifespan. Springer, Cham. https://doi.org/10.1007/978-3-319-18096-0_145

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  • DOI: https://doi.org/10.1007/978-3-319-18096-0_145

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-18095-3

  • Online ISBN: 978-3-319-18096-0

  • eBook Packages: MedicineMedicine (R0)

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