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Research and Ethics in Pediatric Oncology

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Pediatric Cancer in Africa

Learning Objectives

By the end of this chapter, you will be able to:

  • Know the ethical requirements of the Pediatric Oncology Research.

  • Understand the ethical importance of respect for persons and informed consent.

  • Understand the ethical issue of end-of-life care.

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Suggested Reading

  • Committee on Bioethics of the American Academy of Pediatrics (1995) Informed consent, parental permission, and assent in pediatric practice. Pediatrics 95:314–317

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  • Emanuel EJ, Wendler D, Grady C (2000) What makes clinical research ethical? JAMA 283:2701–2711

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  • Devine S, Dagher RN, Weiss KD, Santana VM (2008) Good clinical practice and the conduct of clinical studies in pediatric oncology. Pediatr Clin North Am 55:187–209

    Article  PubMed  PubMed Central  Google Scholar 

  • Joffe S, Fernández CV, Pentz RD et al (2006) Involving children with cancer in decision-making about research participation. J Pediatr 149:862–868

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  • Varelas PN, Abdelhak T, Hacein-Bey L (2008) Withdrawal of life-sustaining therapies and brain death in the intensive care unit. Semin Neurol 28:726–735

    Article  PubMed  Google Scholar 

  • Burns JP, Truog RD (2007) Futility: a concept in evolution. Chest 132:1987–1993

    Article  PubMed  Google Scholar 

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Harif, M., Stefan, D.C. (2017). Research and Ethics in Pediatric Oncology. In: Pediatric Cancer in Africa. Springer, Cham. https://doi.org/10.1007/978-3-319-17936-0_31

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  • DOI: https://doi.org/10.1007/978-3-319-17936-0_31

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  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-17935-3

  • Online ISBN: 978-3-319-17936-0

  • eBook Packages: MedicineMedicine (R0)

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