Quality of Life Tools to Inform Co-design in the Development of Assistive Technologies for People with Dementia and Their Carers

  • Michael P. Craven
  • Maria Laura De Filippis
  • Tom Dening
Part of the Lecture Notes in Computer Science book series (LNCS, volume 8868)


A number of tools exist to measure quality of life (QoL) for people with dementia (PwD). A selection of existing measures are summarised, obtained from an online literature survey, comprising of scales administered either by healthcare professionals with the PwD (self-report) and/or their carers (proxy report) or from observation. It is suggested that a combination of such tools with user satisfaction questionnaires may provide a way to approach the problem of evaluating Assistive Technology (AT) solutions or inform co-design of technological solutions with PwD and their carers.


Assistive Technologies Telecare Ambient Assisted Living User experience Dementia Quality of Life measures Health Technology Assessment 


Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.


  1. 1.
    Scherer, M.J.: Outcomes of assistive technology use on quality of life. Disability & Rehabilitation 18(9), 439–448 (1996)CrossRefMathSciNetGoogle Scholar
  2. 2.
    Lindsay, S., et al.: Empathy, participatory design and people with dementia. In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, pp. 521–530. ACM Press (2012)Google Scholar
  3. 3.
    Ettema, T.P., et al.: A review of quality of life instruments used in dementia. Quality of Life Research 14(3), 675–686 (2005)CrossRefGoogle Scholar
  4. 4.
    Ready, R.E., Ott, B.R.: Quality of life measures for dementia. Health and Quality of Life Outcomes 1(11), 1–9 (2003)Google Scholar
  5. 5.
    Orpwood, R., et al.: Designing technology to support quality of life of people with dementia. Technology and Disability 19(2), 103–112 (2007)Google Scholar
  6. 6.
    Peterson, C.B., Prasad, N.R., Prasad, R.: Assessing assistive technology outcomes with dementia. Gerontechnology 11(2), 259–268 (2012)Google Scholar
  7. 7.
    Ready, R.E., et al.: The Cornell-Brown scale for quality of life in dementia. Alzheimer Disease & Associated Disorders 16(2), 109–115 (2002)CrossRefGoogle Scholar
  8. 8.
    Brod, M., et al.: Conceptualization and measurement of quality of life in dementia: The dementia quality of life instrument (DQoL). The Gerontologist 39(1), 25–36 (1999)CrossRefGoogle Scholar
  9. 9.
    Hoe, J., et al.: Use of the QOL-AD for measuring quality of life in people with severe dementia—the LASER-AD study. Age and Ageing 34(2), 130–135 (2005)CrossRefGoogle Scholar
  10. 10.
    Selai, C.E., et al.: Assessing quality of life in dementia: Preliminary psychometric testing of the Quality of Life Assessment Schedule (QOLAS). Neuropsychological Rehabilitation 11(3-4), 219–243 (2001)CrossRefGoogle Scholar
  11. 11.
    Smith, S., et al.: Measurement of health-related quality of life for people with dementia: development of a new instrument (DEMQOL) and an evaluation of current methodology. Health Technology Assessment 9(10), 1–93 (2005)CrossRefGoogle Scholar
  12. 12.
    Bilotta, C., et al.: Quality of life in older outpatients living alone in the community in Italy. Health & Social Care in the Community 20(1), 32–41 (2012)CrossRefMathSciNetGoogle Scholar
  13. 13.
    Rabins, P.V., et al.: Concepts and methods in the development of the ADRQL: An instrument for assessing health-related quality of life in persons with Alzheimer’s disease. Journal of Mental Health and Aging 5(1), 33–48 (1999)Google Scholar
  14. 14.
    Weiner, M.F., et al.: The quality of life in late-stage dementia (QUALID) scale. Journal of the American Medical Directors Association 1(3), 114–116 (1999)MathSciNetGoogle Scholar
  15. 15.
    Fossey, J., Lee, L., Ballard, C.: Dementia Care Mapping as a research tool for measuring quality of life in care settings: Psychometric pROPERTIES. International Journal of Geriatric Psychiatry 17(11), 1064–1070 (2002)CrossRefGoogle Scholar
  16. 16.
    Jutai, J., Day, H.: Psychosocial impact of assistive devices scale (PIADS). Technology and Disability 14(3), 107–111 (2002)Google Scholar
  17. 17.
    Demers, L., Weiss-Lambrou, R., Ska, B.: The Quebec User Evaluation of Satisfaction with Assistive Technology (QUEST 2. 0): an overview and recent progress. Technology and Disability 14(3), 101–105 (2002)Google Scholar

Copyright information

© Springer International Publishing Switzerland 2014

Authors and Affiliations

  • Michael P. Craven
    • 1
    • 3
  • Maria Laura De Filippis
    • 2
    • 3
  • Tom Dening
    • 2
    • 3
  1. 1.Faculty of EngineeringThe University of Nottingham, Electrical Systems & Optics Research DivisionNottinghamUK
  2. 2.Division of Psychiatry and Applied Psychology, The Institute of Mental HealthThe University of NottinghamNottinghamUK
  3. 3.The Institute of Mental HealthNIHR MindTech Healthcare Technology Co-operativeNottinghamUK

Personalised recommendations