Abstract
The assessment of quality of life (QoL) has become progressively important over the past 25 years. In clinical settings this is usually called health related quality of life (HRQoL), which has become well-established as an essential patient reported outcome measure (PROM). A related concept, which is garnering increasing interest, is subjective well-being. Despite some commonalities, HRQoL and well-being should be treated as separate concepts; they should not be used as synonyms. In short, HRQoL refers to the cognitive appraisal which a patient makes about the impact their health has on their daily life, whilst well-being concerns a patient’s emotional response to their wound, its treatment and their future. This chapter explores these concepts in more detail, beginning by explaining the theoretical foundations of QoL and wellbeing, and describing the conceptual models that can be applied to wound care. Ways of measuring QoL and well-being are also discussed, before finally the implications for practice, and the benefits for patient care are determined.
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Adni T, Martin K, Mudge E. The psychosocial impact of chronic wounds on patients with severe epidermolysis bullosa. J Wound Care. 2012;21(11):528–38.
Brown A. Chronic leg ulcers, part 1: do they affect a patient’s social life? Br J Nurs. 2005a;14(17):894–8.
Brown A. Chronic leg ulcers, part 2: do they affect a patient’s social life? Br J Nurs. 2005b;14(18):986–9.
Brown G. Speech to the volunteering conference, London, 2005c. 31 Jan 2005.
Byrne O, Kelly M. Living with a chronic leg ulcer. J Commun Nurs. 2010;24(5):46–54.
Cella DF. FACIT Manual. Manual of the functional assessment of chronic illness therapy (FACIT) measurement system. Version 4; 1997
Centers for Disease Control and Prevention. Well-being concepts. 2011. Available from: http://www.cdc.gov/hrqol/wellbeing.htm.
Cole-King A, Harding KG. Psychological factors and delayed healing in chronic wounds. Psychosom Med. 2001;63:216–20.
Colver A. Study protocol: SPARCLE–a multi-centre European study of the relationship of environment to participation and quality of life in children with cerebral palsy. BMC Public Health. 2006;6(1):105.
Douglas V. Living with a chronic leg ulcer: an insight into patients’ experiences and feelings. J Wound Care. 2001;10(9):355–60.
Draper P, Thompson DR. The quality of life- a concept for research practice. J Res Nurs. 2001;6(3):648–57.
Eagle M. Wound assessment: the patient and the wound. Wound Essentials. 2009;4:14–24.
Ebbeskog B, Ekman S-L. Elderly persons’ experiences of living with venous leg ulcer: living in a dialectical relationship between freedom and imprisonment. Scand J Caring Sci. 2001a;15:235–43.
Ebbeskog B, Ekman S-L. Older patients’ experience of dressing changes on venous leg ulcers: more than just a docile patient. J Clin Nurs. 2001b;14(10):1223–31.
Ebbeskog B, Emami A. Older patients’ experience of dressing changes on venous leg ulcers: more than just a docile patient. J Clin Nurs. 2005;14(10):1223–31.
Eiser C, Eiser J. Social comparisons and quality of life among survivors of childhood cancer and their mothers. Psychol Health. 2000;15:435–50.
Fagervik-Morton H, Price P. Chronic ulcers and everyday living: patients’ perspective in the United Kingdom. Wounds. 2009;21(12):318–23.
Fayers P, Machin D. Quality of life: the assessment, analysis and interpretation of patient-reported outcomes. Chichester: John Wiley & Sons Ltd; 2007.
Finlayson K, Edwards H, Courtney M. The impact of psychosocial factors on adherence to compression therapy to prevent recurrence of venous leg ulcers. J Clin Nurs. 2010;29:1289–97.
Finlayson K, Edwards H, Courtney M. Relationships between preventive activities, psychosocial factors and recurrence of venous leg ulcers: a prospective study. J Adv Nurs. 2011;67(10):2180–90.
Flaherty E. The views of patients living with healed venous leg ulcers. Nurs Stand. 2005;19(45):78–89.
Flett R, Harcourt B, Alpass F. Psychosocial aspects of chronic lower leg ulceration in the elderly. West J Nurs Res. 1994;16(2):183–93.
Galloway S, Bell D, Hamilton C, Scullion AC. Well-being and quality of life: measuring the benefits of culture and sport- a literature review and thinkpiece. Series: Education (Scotland. Social Research), Edinburgh: Scottish Government; 2006.
Green J, Jester R. Health-related quality of life and chronic venous leg ulceration: part 1. Wound Care. 2009;14(12):12–7.
Herber OR, Schnepp W, Rieger MA. A systematic review on the impact of leg ulceration on patients’ quality of life. Health Qual Life Outcomes. 2007;5(44):1–12.
Higginson IJ, Carr AJ. Using quality of life measures in the clinical setting. BMJ. 2001;1294:322–30.
Hopkins A. Disrupted lives: investigating coping strategies for non-healing leg ulcers. Br J Nurs. 2004a;13(9):556–63.
Hopkins A. The use of qualitative research methodologies to explore leg ulceration. J Tissue Viability. 2004b;14(4):142–7.
Husband LL. Venous ulceration: the pattern of pain and the paradox. Clin Effect Nurs. 2001;5(1):35–40.
International consensus. Optimising wellbeing in people living with a wound. An expert working group review. London: Wounds International; 2012. Available from: http://www.woundsinternational.com.
Jones A, Spindler H, Jorgensen MM, Zachariae R. The effect of situation-evoked anxiety and gender on pain report using the cold pressor test. Scand J Psychol. 2002;43(4):307–13.
Jones J, Barr W, Robinson J, Carlisle C. Depression in patients with chronic venous ulceration. Br J Nurs. 2006;15(11):17–23.
Jones JE, Robinson J, Barr W, Carlisle C. Impact of exudate and odour from chronic venous leg ulceration. Nurs Stand. 2008a;22(45):53–61.
Jones RA, Taylor AG, Bourguignon C. Family interactions among African American Prostate Cancer Survivors. Fam Community Health. 2008b;31(3):213–20.
Lach LM, Ronen GM, Rosenbaum PL, Cunningham C, Boyle MH, Bowman S, Streiner D. Health-related quality of life in youth with epilepsy: theoretical model for clinicians and researchers. Part I: the role of epilepsy and co-morbidity. Qual Life Res. 2006;15(7):1161–71.
Langemo DK. Quality of life and pressure ulcers: what is the impact? Wounds. 2005;17(1):3–7.
Lyons G. The life satisfaction matrix: an instrument and procedure for assessing the subjective quality of life of individuals with profound multiple disabilities. J Intellect Disabil Res. 2005;49(10):766–9.
Mapplebeck L. Case study: psychosocial aspects of chronic bilateral venous leg ulcers. Br J Community Nurs. 2008;13(3):S33–8.
Moffatt C, Vowden K, Price P, Vowden P. Psychosocial factors in delayed healing. In hard-to-heal wounds: a holistic approach. European Wound Management Association Position Statement. 2008. Available from: http://ewma.org/fileadmin/user_upload/EWMA/pdf/Position_Documents/2008/English_EWMA_Hard2Heal_2008.pdf.
Morrison RS, Meier DE, Capello CF. Geriatric palliative care. New York: Oxford University Press; 2003.
Mudge E, Holloway S, Simmonds W, Price P. Living with venous leg ulceration: issues concerning adherence. Br J Nurs. 2006;15(21):1166–71.
Palfreyman SM, Tod AM, Brazier JE, Michaels JA. A systematic review of health-related quality of life instruments used for people with venous ulcers: an assessment of their suitability and psychometric properties. J Clin Nurs. 2010;19(19):2673–703.
Pawlyn J, Carnaby S. Profound intellectual and multiple disabilities: nursing complex needs. Chichester: Wiley-Blackwell; 2009.
Persoon A, Heinen M, van der Vleuten C, de Rooij M, van de Kerkhof P, van Achterberg T. Leg ulcers: a review of their impact on daily life. J Clin Nurs. 2004;13(3):341–54.
Price P, Harding KG. Cardiff wound impact schedule: the development of a condition-specific questionnaire to assess health related quality of life in patients with chronic wounds of the lower limb. Int Wound J. 2004;1(1):10–3.
Rapley M. Quality of life research: a critical introduction. London: Sage; 2003.
Reddy M, Kohr R, Queen D, Keast D, Sibbald RG. Practical treatment of wound pain and trauma: a patient-centered approach. An overview. Ostomy Wound Manage. 2003;49(4 Suppl):2–15.
Rozanski A, Blumenthanl JA, Kaplan J. Impact of psychological factors on the pathogenesis of cardiovascular disease and implications for therapy. Circulation. 1999;99:2192–217.
Sen CK, Gordillo GM, Roy S, Kirsner R, Lambert L, Hunt TK, Longaker MT. Human skin wounds: a major and snowballing threat to public health and the economy. Wound Repair Regen. 2009;17(6):763–71.
Shukla VK, Shukla D, Singh A, Tripathi AK, Sushil J, Somprakas B. Risk assessment for pressure ulcer: a hospital-based study. J Wound Ostomy Cont Nurs. 2008;35(4):407–11.
Stanton AL, Collins CA, Sworowski L. Adjustment to chronic illness: theory and research. In: Baum A, Revenson TA, Singer JE, editors. Handbook of health psychology. Mahwah: Lawrence Erlbaum Associate; 2001. p. 387–404.
Suls J, Martin R, Wheeler L. Social comparison: why, with whom, and with what effect? J Assoc Psychol Sci. 2002;11(5):159–63.
Upton D, Andrews A. Sleep disruption in patients with chronic leg ulcers. J Wound Care. 2013;22(8):389–94.
Upton D, Andrews A. Negative pressure wound therapy: improving the patient experience, part two of three. J Wound Care. 2013a;22(11):582–91.
Upton D, Andrews A. Negative pressure wound therapy: improving the patient experience, part one of three. J Wound Care. 2013b;22(10):552–7.
Upton D, Andrews A. Pain and trauma in negative pressure wound therapy: a review. Int Wound J. 2013; Advance online publication.
Upton D, Solowiej K. Pain and stress as contributors to delayed wound healing. Wound Pract Res. 2010;18(3):114–22.
Upton D, Hender C, Solowiej K. Mood disorders in patients with acute and chronic wounds: a health professional perspective. J Wound Care. 2012;21(1):42–8.
Upton D, Stephens D, Andrews A. Patients’ experience of negative pressure wound therapy. J Wound Care. 2013;22(1):34–9.
Upton D, Andrews A, Upton P. Venous leg ulcers: what about well-being? J Wound Care. 2014;23(1):14–7.
Varni JW, Burwinkle TM, Seid M, Skarr D. The PedsQL™ 4.0 as a pediatric population health measure: feasibility, reliability, and validity. Ambul Pediatr. 2003;3:329–41.
Wallander JL. Quality of life measurement in children and adolescents: Issues, instruments, and applications. J Clin Psychol. 2001;57(4):571–85.
Walshe C. Living with a venous leg ulcer: a descriptive study of patients’ experiences. J Adv Nurs. 1995;22(6):1092–100.
Wheeler L, Miyake K. Social comparison in every day life. J Pers Soc Psychol. 1992;62(5):760–73.
WHO. Preamble to the constitution of the world health organization as adopted by the international health conference, New York, 19–22 June, 1946; signed on 22 July 1946 by the representatives of 61 States (Official Records of the World Health Organization, no. 2, p. 100) and entered into force on 7 April 1948; 1948.
WHO. WHOQOL: measuring quality of life. Geneva: WHO; 1997.
Woo KY. Wound-related pain: anxiety, stress and wound healing. Wounds UK. 2010;6(4):92–8.
Zikmund V. Health, well-being, and the quality of life: Some psychosomatic reflections. Neuro Endocrinol Lett. 2003;24(6):401.
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Upton, D., Upton, P. (2015). Quality of Life and Well-Being. In: Psychology of Wounds and Wound Care in Clinical Practice. Springer, Cham. https://doi.org/10.1007/978-3-319-09653-7_4
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