Abstract
The assessment of children with juvenile idiopathic arthritis (JIA) has been traditionally focused on disease-centered outcomes, such as disease activity, clinical remission, articular and extra-articular damage, and results of laboratory indicators of systemic inflammation [1–3].
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References
Duffy CM. Health outcome in pediatric rheumatic diseases. Curr Opin Rheumatol. 2004;16:102-108.
Ravelli A. Toward an understanding of the long-term outcome of juvenile idiopathic arthritis. Clin Exp Rheumatol. 2004;22:271-275.
Viola S, Felici E, Magni-Manzoni S et al. Development and validation of a clinical index for assessment of long-term damage in juvenile idiopathic arthritis. Arthritis Rheum. 2005;52:2092-2102.
Ruperto N, Levinson JE, Ravelli A, et al. Long-term health outcomes and quality of life in American and Italian inception cohorts of patients with juvenile rheumatoid arthritis. I. Outcome status. J Rheumatol. 1997;24:945-951.
Tucker LB. Whose life is it anyway? Understanding quality of life in children with rheumatic diseases. J Rheumatol. 2000;27:8-11.
Burgos-Vargas R. Assessment of quality of life in children with rheumatic disease. J Rheumatol. 1999;26:1432-1435.
Coulton CJ, Zborowsky E, Lipton J, Newman AJ. Assessment of the reliability and validity of the Arthritis Impact Measurement Scales for children with juvenile arthritis. Arthritis Rheum. 1987;30:819-824.
Howe S, Levinson J, Shear E et al. Development of a disability measurement tool for juvenile rheumatoid arthritis. The juvenile arthritis functional assessment report for children and their parents. Arthritis Rheum. 1991;34:873-880.
Singh G, Athreya BH, Fries JF, Goldsmith DP. Measurement of health status in children with juvenile rheumatoid arthritis. Arthritis Rheum. 1994;37:1761-1769.
Wright FV, Law M, Crombie V, Goldsmith CH, Dent P. Development of a self-report functional status index for juvenile rheumatoid arthritis. J Rheumatol. 1994;21:536-544.
Duffy CM, Arsenault L, Duffy KN, Paquin JD, Strawczynski H. The Juvenile Arthritis Quality of Life Questionnaire–development of a new responsive index for juvenile rheumatoid arthritis and juvenile spondyloarthritides. J Rheumatol. 1997;24:738-746.
Landgraf JM, Abetz L, Ware JE Jr. The Child Health Questionnaire (CHQ): A User‘s Manual. First Edition. Boston, MA: The Health Institute, New England Medical Center; 1996.
Varni JW, Seid M, Knight TS, Burwinkle T, Brown J, Szer IS. The PedsQL in pediatric rheumatology: reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory Generic Core Scales and Rheumatology Module. Arthritis Rheum. 2002;46:714-725.
Ruperto N, Martini A. International research networks in pediatric rheumatology: the PRINTO perspective. Curr Opin Rheumatol. 2004;16:566-570.
Ruperto N, Ravelli A, Pistorio A et al. Cross-cultural adaptation and psychometric evaluation of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ) in 32 countries. Review of the general methodology. Clin Exp Rheumatol. 2001;19:S1-S9.
Guillemin F, Bombardier C, Beaton D. Cross-cultural adaptation of health-related quality of life measures: literature review and proposed guidelines. J Clin Epidemiol. 1993;46:1417-1432.
Oliveira S, Ravelli A, Pistorio A et al. Proxy-reported health-related quality of life of patients with juvenile idiopathic arthritis: the Pediatric Rheumatology International Trials Organization multinational quality of life cohort study. Arthritis Rheum. 2007;57:35-43.
Ruperto N, Lovell DJ, Li T et al. Abatacept improves health-related quality of life, pain, sleep quality, and daily participation in subjects with juvenile idiopathic arthritis. Arthritis Care Res (Hoboken). 2010;62:1542-1551.
Robinson RF, Nahata MC, Hayes JR, Rennebohm R, Higgins G. Quality-of-life measurements in juvenile rheumatoid arthritis patients treated with etanercept. Clin Drug Investig. 2003;23:511-518.
Silva CA, Aikawa NE, Bonfa E. Vaccinations in juvenile chronic inflammatory diseases: an update. Nat Rev Rheumatol. 2013;9:532-543.
Heijstek MW, Ott de Bruin LM, Borrow R et al. Vaccination in paediatric patients with autoimmune rheumatic diseases: a systemic literature review for the European League against Rheumatism evidence-based recommendations. Autoimmun Rev. 2011;11:112-122.
Heijstek MW, Ott de Bruin LM, Bijl M et al. EULAR recommendations for vaccination in paediatric patients with rheumatic diseases. Ann Rheum Dis. 2011;70:1704-1712.
Verazza S, Negro G, Marafon D, Consolaro A, Martini A, Ravelli A. Possible discontinuation of therapies after clinical remission in juvenile idiopathic arthritis. Clin Exp Rheumatol. 2013;31:S98-S101.
Foell D, Wulffraat N, Wedderburn LR et al. Methotrexate withdrawal at 6 vs 12 months in juvenile idiopathic arthritis in remission: a randomized clinical trial. JAMA. 2010;303:1266-1273.
White PH. Transition: a future promise for children and adolescents with special health care needs and disabilities. Rheum Dis Clin North Am. 2002;28:687-703.
Tucker LB, Cabral DA. Transition of the adolescent patient with rheumatic disease: issues to consider. Rheum Dis Clin North Am. 2007;33:661-672.
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Ravelli, A. (2016). Specific Issues. In: Handbook of Juvenile Idiopathic Arthritis. Adis, Cham. https://doi.org/10.1007/978-3-319-08102-1_8
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DOI: https://doi.org/10.1007/978-3-319-08102-1_8
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