Patients Initiated Timeline Marking of Events in Parkinson’s Disease: Visualization of Time Correlation between Patients Marked Events and Acquired Data from Sensors
The reality of a Parkinson’s Disease patient involves coping with the condition 24 hours a day for the rest of her or his life. A continuous decay of physical and sometimes cognitive functions makes activities of daily life progressively more difficult to accomplish. Many keep a diary where they take note of feelings, relevant events related to the daily routines, reaction to the medication, etc. Such diaries may prove extremely useful for a better understanding of the disease progression, both by the patient and by the doctor. The SENSE-PARK project went a step forward: it combines the patient diary notes (self-reported) with information gathered from movement sensors (automatic measurement) and a visualization mechanism combining the two. A system has been designed, prototyped and tested. Parkinson’s medical specialists, user experience experts, technologists and most important the patients themselves, were involved in this process.
KeywordsParkinson’s Disease (PD) People with Parkinson’s (PwP’s) patient diaries marking of events symptom timeline chronic disease management self-management second level prevention activities of daily living (ADL) movement sensor accelerometer monitoring degenerative disease time correlation User Centred Design (UCD) participatory design
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