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End-of-Life Considerations

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Palliative Care in Hematologic Malignancies and Serious Blood Disorders

Abstract

Patients with hematologic malignancies are more likely to receive medically intensive treatment than those with solid tumors and are twice as likely to die in the hospital. Providing optimal end-of-life care—which includes advance care planning, empathetic communication, and providing treatments whose benefits outweigh the burdens—is, therefore, imperative. This care extends to identifying the preferred location of death, legacy-making, and reviewing relevant post-mortem options, including organ donation and disposition of remains. Emotional distress is common, and modalities such as meaning-centered psychotherapy and dignity therapy can be helpful. Spiritual pain at the end of life may impact physical/emotional symptoms. Spiritual care can also assist with decision-making and ensure that rituals are observed which may be sacred to the patient and family.

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Authors and Affiliations

  1. Department of Pediatrics, Oregon Health and Science University, Portland, OR, USA

    Robert Macauley, Jessica Bordley & Lindsay Wooster-Halberg

  2. University of Minnesota Medical Center, Minneapolis, MN, USA

    Paul Galchutt

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  1. Robert Macauley
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  2. Jessica Bordley
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  3. Lindsay Wooster-Halberg
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  4. Paul Galchutt
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Correspondence to Robert Macauley , Jessica Bordley or Lindsay Wooster-Halberg .

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  1. Harvard Medical School, Boston, MA, USA

    Christina K. Ullrich

  2. Oregon Health and Science University, Portland, OR, USA

    Eric J. Roeland

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Macauley, R., Bordley, J., Wooster-Halberg, L., Galchutt, P. (2023). End-of-Life Considerations. In: Ullrich, C.K., Roeland, E.J. (eds) Palliative Care in Hematologic Malignancies and Serious Blood Disorders. Springer, Cham. https://doi.org/10.1007/978-3-031-38058-7_23

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