Abstract
Person-centered care (PCC) is the “gold standard” to providing care in Post-Acute and Long-Term Care (PA/LTC) (The American Geriatrics Society Expert Panel on Person-Centered Care, J Am Geriatr Soc 64(1):15–8, 2016, Li and Porock, Int J Nurs Stud 51:1395–415, 2014). The core principle of PCC is to empower a person to communicate his/her values, preferences, and life goals to develop a person-centered and individualized care plan. Due to the high prevalence of cognitive impairment, family members are frequently asked to provide information about the person’s goals of life and life story to support the development of a congruent care plan. For many family members this responsibility can be overwhelming. However, the facility interdisciplinary team (IDT) and front-line staff can provide input to support the family.
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References
The American Geriatrics Society Expert Panel on Person-Centered Care. Person-centered care: a definition and essential elements. J Am Geriatr Soc. 2016;64(1):15–8.
Appendix PP State Operations Manual (Revised 11/22/2017) (PDF).
Li J, Porock D. Resident outcomes of person-centered care in long-term care: a narrative review of interventional research. Int J Nurs Stud. 2014;51:1395–415.
Lane ML, Hirst SP, Hawranik P. What do family members really want when older adults transition to a nursing home? J Gerontol Nurs. 2017;43(11):9–14.
McMahan RD, Tellez I, Sudore RLL. Deconstructing the complexities of advance care planning outcomes: what do we know and where do we go? A scoping review. J Am Geriatr Soc. 2021;69:234–44.
Sudor RL, Lum HD, You JJ, et al. Defining advance care planning for adults: a consensus definition for a multidisciplinary Delphi panel. J Pain Symptom Manag. 2017;53(5):821–832.e1.
Hanson LC, Zimmerman S, Song M, et al. Effect of the goals of care intervention for advanced dementia: a randomized trial. JAMA Intern Med. 2017;177(1):24–31.
Bloom MV, Smith DA. Brief mental health interventions for the family physician. New York: Springer; 2012. p. 260–82.
McGoldrick M, Gerson R, Petry S. Genograms: assessment and treatment. 4th ed. New York: W.W. Norton & Company; 2020.
Pantilat SZ. Communicating with seriously ill patients: better words to say. JAMA. 2009;301:1279–81.
Lee TH. Zoom family meeting. N Engl J Med. 2021;384:1586–7.
Center to Advance Palliative Care and the National Palliative Care Research Center. America’s care of serious illness: a state-by-state report care on access to palliative care in our nation’s hospitals. New York: Center to Advance Palliative Care; 2019.
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Brechtelsbauer, D. (2023). Working with Families and Person-Centered Care. In: Winn, P., Fenstemacher, P.A., Stefanacci, R.G., DeLong, R.S. (eds) Post-Acute and Long-Term Care Medicine. Current Clinical Practice. Humana, Cham. https://doi.org/10.1007/978-3-031-28628-5_16
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