Abstract
Thanks to medical advances, more and more children and adolescents with disabilities live into adulthood. This means that more and more are undergoing a transition from childhood to adulthood and thus a transition from child-oriented health-care providers to adult-oriented health-care providers. These transitions can for various reasons be difficult and problematic for many adolescents and their families. Parents of children with disabilities often experience anxiety and additional stress in terms of how life and the future will come to be for the adolescent. Although these transitions from childhood to adulthood are seen as difficult and even traumatic, the result of the transition is often good or at least acceptable. Adolescents with moderate or lighter disabilities seem to have the most difficulties in finding their way and often end up in social isolation and excluded from full involvement in the community.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
Avieli H, Band-Winterstein T, Zamir A (2022) Juggling between caregiving and self-actualization: older parents’ lifelong experience of caring for an adult child with developmental disabilities. PLoS One 17(11):e0276779. https://doi.org/10.1371/journal.pone.0276779
DeLoach CP (1994) Attitudes towards disability: impact on sexual development and forging of intimate relationships. JARC 25:18–25
DeWit W, van Oorsouw WMWJ, Embregts PJCM (2021) Attitudes towards sexuality and related caregiver support of people with intellectual disabilities: a systematic review on the perspectives of people with intellectual disabilities. JARID 35:75–87
Dixon R (2006) A framework for managing bullying that involves students who are deaf or hearing impaired. Deaf Educ Int 8:11–32
Edwards TC, Patrick DL, Topolski TD (2003) Quality of life of adolescents with perceived disabilities. J Pediatr Psychol 28:233–241
Engel-Yeger B, Jarus T, Anaby D, Law M (2009) Differences in patterns of participation between youths with cerebral palsy and typically developing peers. Am J Occup Ther 63:96–104
Foley RM, Dudzinski M (1995) Human sexuality education: are special educators prepared to meet the educational needs of disabled youths? J Sex Educ Ther 21:182–191
Foxhall K (2006) Beginning to begin: reports from the battle on obesity. Am J Public Health 96:2106–2112
Jemtå L, Dahl M, Fugl-Meyer KS, Stensman R (2005) Well-being among children and adolescents with mobility impairment in relation to demographic data and disability characteristics. Acta Pediatr 94:616–623
Jemtå L, Fugl-Meyer KS, Öberg K (2008) On intimacy, sexual activities and exposure to sexual abuse among children and adolescents with mobility impairments. Acta Pediatr 97:641–646
Kempton W (1998) Socialization and sexuality: a comprehensive training guide for professionals helping people with disabilities that hinder learning. Peachtree City GA: McGowan Publications
Liou TH, Pi-Sunyer FX, Laferrere B (2005) Physical disability and obesity. Nutr Rev 63:321–331
Livingston MH, Stewart D, Rosenbaum PL, Russell DJ (2011) Exploring issues of participation among adolescents with cerebral palsy: what’s important to them? Phys Occup Ther Pediatr 31:275–287
Lotstein D, McPherson M, Strickland B, Newacheck P (2005) Transition planning for youth with special health care needs: results from the national survey of children with special health care needs. Pediatrics 115:1562–1568
Maag JW, Irvin DM, Reid R, Vasa SF (1994) Prevalence and predictors of substance use: a comparison between adolescents with and without learning disabilities. J Learn Disabil 27:223–234
Majnemer A, Shikako-Thomas K, Chokron N, Law M, Shevell M, Chilingaryan G (2010) Leisure activity preferences for 6- to 12- year-old children with cerebral palsy. DMCN 52:167–173
Manuel JC, Balkrishnan R, Camacho F, Smoth BP, Koman LA (2003) Factors associated with self-esteem in pre-adolescents and adolescents with cerebral palsy. J Adolesc Health 32:456–458
McGregor S, Forlin C (2005) Attitude of students towards peers with disabilities: relocating students from and Education Support Centre to an inclusive middle school setting. Int J Whole Sch 1:18–30
Mitra M, Mouradfian V (2013) Dating violence and associated health risks among high school students with disabilities. Matern Child Health J 17:1088–1094
Pettersson K, Rodby-Bousquet E (2021) Living conditions and social outcomes in adults with cerebral palsy. Front Neurol 21. https://doi.org/10.3389/fneur.2021.749389
Pirpiris M, Gates PE, McCarty JJ (2006) Function and well-being in ambulatory children with cerebral palsy. J Pediatr Orthop 26:119–124
Robertson J, Emerson E, Gregory N, Hatton C, Turner S, Kessissoglou S, Hallam A (2000) Lifestyle related risk factors for poor health in residential settings for people with intellectual disabilities. Res Dev Disabil 21:469–486
Scal P, Ireland M (2005) Addressing transition to adult health care for adolescents with special health care needs. Pediatrics 115:1607–1612
Seals E (2016) Life disparities for adults living with disabilities and their families. https://www.disabled-world.com/disability/life-disparities.php
Servais L, Jacques D, Leach R et al (2002) Contraception of women with intellectual disabilities: prevalence and determinants. J Intellect Disabil Res 46:108–119
Simeonson RJ, McMillen J, Huntington GS (2002) Secondary conditions in children with disabilities: spina bifida as an example. Dev Disabil Res Rev 8:198–205
Smart M (2004) Transition planning and the needs of young people and their carers: the alumni project. British Journal of Special Education 31:128–137
Stavropoulos D, Hallberg U, Mohlin B, Hagberg C (2011) Living with Crouzon syndrome part II: how do young adults with Crouzon syndrome handle their life situation? Int J Paediatr Dent 21:35–42
Steele CA, Kalnins IV, Rossen BE, Biggar DW, Bortolussi JA, Jutai JW (2004) Age related health risk behaviors of adolescents with physical disabilities. Soz Praventivmed 49:132–141
Stevens SE, Steele CA, Jutai JW, Kalnins IV, Bortolussi JA, Biggar WD (1996) Adolescents with physical disabilities: some psychosocial aspects of health. J Adolesc Health 19:157–164
Stewart DA, Law MC, Rosenbaum P, Willms DG (2001) A qualitative study of the transition to adulthood for youth with physical disabilities. Phys Occup Ther Pediatr 21:3–21
Sultan Sheriff D (2022) Human sexuality. In: Stapleton DH, Bossie SV, Hall AL, Lowery LO (eds) Sexuality and disability. Book Metrics, London, United Kingdom
Suris JC, Resnick MD, Cassuto N, Blum RW (1996) Sexual behavior of adolescents with chronic disease and disability. J Adolesc Health 19:124–131
Tamm M, Skär L (2000) How I play: roles and relations in the play situations of children with restricted mobility. Scand J Occup Ther 7:174–182
Whitaker S, Hughes M (2003) Prevalence and influences on smoking in people with learning disabilities. Br J Dev Disabil 49:91–97
WHO (2020) The top 10 causes of death. https://www.who.int/news-room/fact-sheets/detail/the-top-10-causes-of-death
Wilson PE, Clayton GH (2010) Sports and disability. PM&R 1:46–54
Zaff JF, Moore K, Papillo AR, Williams S (2003) Implications of extracurricular activity participation during adolescence on positive outcomes. J Res Adolesc 18:599–630
Author information
Authors and Affiliations
Rights and permissions
Copyright information
© 2023 The Author(s), under exclusive license to Springer Nature Switzerland AG
About this chapter
Cite this chapter
Hallberg, U., Klingberg, G. (2023). On the Road to Adulthood. In: Children with Special Needs . SpringerBriefs in Social Work. Springer, Cham. https://doi.org/10.1007/978-3-031-28513-4_5
Download citation
DOI: https://doi.org/10.1007/978-3-031-28513-4_5
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-031-28512-7
Online ISBN: 978-3-031-28513-4
eBook Packages: MedicineMedicine (R0)