Abstract
Due to dementia, people lose the ability to deal with complex tasks such as cooking. We can support this group by designing new tools to keep them active and enhance their feeling of self-worth. Previous studies have focused on step-by-step guidance for people with dementia using innovative technology, which is often too complicated to learn and set up for the users. In this paper, we designed and evaluated an intuitive, non-intimidating, step-by-step recipe tool for people living with dementia. The tool is designed for collaboration to stimulate socialisation between people with dementia or with a caregiver. The design was evaluated in situ, with 36 individuals at varying stages of dementia. Participants were instructed to cook a dish using the recipe tool and reflect on its usability. The step-by-step approach of the tool appeared highly suitable for people with dementia, and added visuals helped with understanding the recipe. The level of initiative shown by the participants with dementia seemed to depend on the amount of trust shown by the caregiver. We found that collaboration between participants during cooking as facilitated by the tool was enjoyable and highly suited for both at-home and meeting centre settings. We offer several suggestions for designing step-by-step tools and encourage facilitating more collaborative, non-intimidating activities for people with dementia and their caregivers.
Keywords
- Dementia
- Cooking
- Step-by-step
This is a preview of subscription content, access via your institution.
Buying options
Tax calculation will be finalised at checkout
Purchases are for personal use only
Learn about institutional subscriptionsReferences
World Health Organisation (2021) Dementia. September 02. https://www.who.int/news-room/fact-sheets/detail/dementia. Accessed 27 January 2022
Livingston G et al (2020) Dementia prevention, intervention, and care: 2020 report of the Lancet commission. Lancet London England 396(10248):413–446. https://doi.org/10.1016/S0140-6736(20)30367-6
de Bruijn RF et al (2015) The potential for prevention of dementia across two decades: the prospective, population-based Rotterdam Study. BMC Med 13(1):132. https://doi.org/10.1186/s12916-015-0377-5
Dementia Care Central (2020) Seven stages of dementia | Symptoms, progression & durations, April 24. https://www.dementiacarecentral.com/aboutdementia/facts/stages/. Accessed 27 January 2022
Brankaert R (2016) Design for dementia : a design-driven living lab approach to involve people with dementia and their context, Phd Thesis 1. Research TU/e/Graduation TU/e), Technische Universiteit Eindhoven, Eindhoven
Dechamps A et al (2011) Effects of different learning methods for instrumental activities of daily living in patients with Alzheimer’s dementia: a pilot study. Am J Alzheimers Dis Other Demen 26(4):273–281. https://doi.org/10.1177/1533317511404394
Desai AK, Grossberg GT, Sheth DN (2004) Activities of daily living in patients with dementia. CNS Drugs 18(13):853–875. https://doi.org/10.2165/00023210-200418130-00003
Giovannetti T, Bettcher BM, Libon DJ, Brennan L, Sestito N, Kessler RK (2007) Environmental adaptations improve everyday action performance in Alzheimer’s disease: empirical support from performance-based assessment. Neuropsychology 21(4):448. https://doi.org/10.1037/0894-4105.21.4.448
Chevignard MP, Taillefer C, Picq C, Poncet F, Noulhiane M, Pradat-Diehl P (2008) Ecological assessment of the dysexecutive syndrome using execution of a cooking task. Neuropsychol Rehabil 18(4):461–485. https://doi.org/10.1080/09602010701643472
Giovannetti T, Libon DJ, Buxbaum LJ, Schwartz MF (2002) Naturalistic action impairments in dementia. Neuropsychologia 40(8):1220–1232. https://doi.org/10.1016/S0028-3932(01)00229-9
Mis R, Giovannetti T (2020) Decline in everyday functioning in MCI and dementia: a neuropsychological perspective. In: Vascular disease, Alzheimer’s disease, and mild cognitive impairment: advancing an integrated approach. Oxford University Press, New York, NY, US, pp 102–128. https://doi.org/10.1093/oso/9780190634230.003.0006
Espiritu DAV, Rashid H, Mast BT, Fitzgerald J, Steinberg J, Lichtenberg PA (2001) Depression, cognitive impairment and function in Alzheimer’s disease. Int J Geriatr Psychiatry 16(11):1098–1103. https://doi.org/10.1002/gps.476
Hargrave R, Reed B, Mungas D (2000) Depressive syndromes and functional disability in dementia. J Geriatr Psychiatry Neurol 13(2):72–77. https://doi.org/10.1177/089198870001300205
Scheltens P (2017) Ik wil Alzheimer genezen, NRC. January 27. https://www.nrc.nl/nieuws/2017/01/27/ik-wil-alzheimer-genezen-6428125-a1543134
Balota D, Faust M (2001) Attention in dementia of the Alzheimer’s type. Handb Neuropsychol 6:51–80
Bauer RM (2006) The agnosias. In: Clinical neuropsychology: a pocket handbook for assessment, 2nd edn. American Psychological Association, Washington, DC, US, pp 508–533. https://doi.org/10.1037/11299-020
Rosen HJ (2011) Anosognosia in neurodegenerative disease. Neurocase 17(3):231–241. https://doi.org/10.1080/13554794.2010.522588
Fitzsimmons S, Buettner LL (2003) A therapeutic cooking program for older adults with dementia: effects on agitation and apathy. Am J Recreat Ther 2:23–33
Mihailidis A, Boger JN, Craig T, Hoey J (2008) The COACH prompting system to assist older adults with dementia through handwashing: an efficacy study. BMC Geriatr 8(1):28. https://doi.org/10.1186/1471-2318-8-28
Wolf D, Besserer D, Sejunaite K, Riepe M, Rukzio E (2018) cARe: an augmented reality support system for dementia patients. In: The 31st annual ACM symposium on user interface software and technology adjunct proceedings, New York, NY, USA, October 2018, pp 42–44. https://doi.org/10.1145/3266037.3266095
Yamaguchi T, Foloppe DA, Richard P, Richard E, Allain P (2012) A dual-modal virtual reality kitchen for (Re)learning of everyday cooking activities in Alzheimer’s disease. Presence 21(1):43–57. https://doi.org/10.1162/PRES_a_00080
Lazar A, Thompson H, Demiris G (2014) A systematic review of the use of technology for reminiscence therapy. Health Educ Behav 41(1_suppl):51S-61S, Oct. https://doi.org/10.1177/1090198114537067
van Wijngaarden E, Alma M, The A-M (2019) “The eyes of others” are what really matters: the experience of living with dementia from an insider perspective. PLoS ONE 14(4):e0214724. https://doi.org/10.1371/journal.pone.0214724
Brataas HV, Bjugan H, Wille T, Hellzen O (2010) Experiences of day care and collaboration among people with mild dementia. J Clin Nurs 19(19–20):2839–2848. https://doi.org/10.1111/j.1365-2702.2010.03270.x
Fratiglioni L, Wang H-X, Ericsson K, Maytan M, Winblad B (2000) Influence of social network on occurrence of dementia: a community-based longitudinal study. The Lancet 355(9212):1315–1319. https://doi.org/10.1016/S0140-6736(00)02113-9
Houben M, Brankaert R, Kenning G, Bongers I, Eggen B (2022) Designing for everyday sounds at home with people with dementia and their partners. In: CHI conference on human factors in computing systems, New York, NY, USA, April, pp 1–15. https://doi.org/10.1145/3491102.3501993
Dirkse R, Kessels R, Hoogeveen F, van Dixhoorn I (2011) (Op)nieuw geleerd, oud gedaan: over het lerend vermogen van mensen met dementie. Bohn Stafleu van Loghum (BSL)
Gillies BA (2000) A memory like clockwork: accounts of living through dementia. Aging Ment Health 4(4):366–374. https://doi.org/10.1080/713649961
Stanyon M, Thomas S, Gordon A, Griffiths A (2019) Effects of care assistant communication style on communicative behaviours of residents with dementia: a systematic multiple case study. Scand J Caring Sci 33(1):207–214. https://doi.org/10.1111/scs.12622
Cummings JL, Houlihan JP, Hill MA (1986) The pattern of reading deterioration in dementia of the Alzheimer type: observations and implications. Brain Lang 29(2):315–323. https://doi.org/10.1016/0093-934X(86)90051-9
Memory loss and dementia | Alzheimer’s Society. https://www.alzheimers.org.uk/about-dementia/symptoms-and-diagnosis/symptoms/memory-loss. Accessed 19 May 2022
Dewing J (2008) Process consent and research with older persons living with dementia. Res Ethics 4(2):59–64. https://doi.org/10.1177/174701610800400205.
Berghmans RLP, Meulen RHJT (1995) Ethical issues in research with dementia patients. Int J Geriatr Psychiatry 10(8):647–651. https://doi.org/10.1002/gps.930100803
Communicating and dementia | Alzheimer’s Society. https://www.alzheimers.org.uk/about-dementia/symptoms-and-diagnosis/symptoms/communicating-and-dementia. Accessed 19 May 2022
Mega MS, Cummings JL, Fiorello T, Gornbein J (1996) The spectrum of behavioral changes in Alzheimer’s disease. Neurology 46(1):130–135. https://doi.org/10.1212/WNL.46.1.130
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2023 The Author(s), under exclusive license to Springer Nature Switzerland AG
About this paper
Cite this paper
Ruitenburg, Y., Pasman, G., Brankaert, R. (2023). One Step at a Time: Evaluation of a Step-By-Step Recipe Tool Designed for People with Dementia. In: Houben, M., Brankaert, R., Hendriks, N., Wilkinson, A., Morrissey, K. (eds) Dementia Lab 2022: The Residue of Design. D-Lab 2022. Design For Inclusion, vol 3. Springer, Cham. https://doi.org/10.1007/978-3-031-14466-0_7
Download citation
DOI: https://doi.org/10.1007/978-3-031-14466-0_7
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-031-14465-3
Online ISBN: 978-3-031-14466-0
eBook Packages: EngineeringEngineering (R0)