Abstract
Every underlying disease or condition provides therapists with new challenges. Understanding the frequent problems of children born after extreme prematurity or children after cardiac surgery or born with a congenital diaphragmatic hernia (CDH) and numerous other inborn diseases is necessary and helpful. A trustful relationship with the local team of specialists of every medically fragile child is helpful but not always obtainable. Additionally, cardiologists, surgeons, neonatologists, neurologists, or geneticists all think specifically differently and have diverse experiences and goals. Reading peer-reviewed literature helps understanding the tremendous achievements of pediatrics and pediatric surgery in the past years, while the focus on development and interaction needs to attain respect as well. Depicting the most frequent diagnostic groups in our large clientele as well as in literature may be helpful for therapeutic endeavors concerned with limiting temporarily intended tube feeding. Limitations and abilities of the affected children are discussed—all from the background of an understanding of different pediatric specializations all serving ill children.
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Notes
- 1.
It seems striking that the composition of criminal series in Europe do look for the motive of the perpetrator, whereas US-American series look for proof and evidence and don’t care at all for the thrive of the murderer, which made him or her become a criminal. (See also A. Pfabigan: Mord zum Sonntag, Residenz, Salzburg, 2016. https://www.residenzverlag.com/buch/mord-zum-sonntag, seen on 6/5/21)
- 2.
We cite Hans Asperger being aware of the recent discussion about his involvement in euthanasia during the Nazi-regime in Austria. We refer to recent research showing H. Asperger as a strict obeying Roman Catholic man opposing Nazi race ideology. See also Falk D. Non-complicit: Revisiting Hans Asperger’s Career in Nazi-era Vienna. J Autism Dev Disord. 2020 Jul;50(7):2573–2584. doi: 10.1007/s10803-019-03981-7. PMID: 30887409.
- 3.
See also the outstanding movie coached by a leading child-psychiatrist: Rainman https://en.wikipedia.org/wiki/Rain_Man, seen on June 17, 2021
References
Trabi T, Dunitz-Scheer M, Kratky E, Beckenbach H, Scheer PJ. Inpatient tube weaning in children with long-term feeding tube dependency: a retrospective analysis. Infant Ment Health J. 2010;31(6):664–81. https://doi.org/10.1002/imhj.20277. PMID: 28543064
The child with multiple impairments. Paediatr Child Health. 2000;5(7):397–412. https://doi.org/10.1093/pch/5.7.397.
https://www.psychiatry.org/psychiatrists/practice/dsm, seen on 6/5/21.
https://www.who.int/standards/classifications/classification-of-diseases. seen on 6/5/21
Pahsini K, Marinschek S, Khan Z, Urlesberger B, Scheer PJ, Dunitz-Scheer M. Tube dependency as a result of prematurity. J Neonatal Perinatal Med. 2018;11(3):311–6. https://doi.org/10.3233/NPM-1799. PMID: 30010147
Romo A, Carceller R, Tobajas J. Intrauterine growth retardation (IUGR): epidemiology and etiology. Pediatr Endocrinol Rev. 2009;6(Suppl 3):332–6. PMID: 19404231
Toftlund LH, Halken S, Agertoft L, Zachariassen G. Catch-up growth, rapid weight growth, and continuous growth from birth to 6 years of age in very-preterm-born children. Neonatology. 2018;114(4):285–93. https://doi.org/10.1159/000489675. Epub 2018 Jul 16. PMID: 30011395
Takeuchi A, Yorifuji T, Hattori M, Tamai K, Nakamura K, Nakamura M, Kageyama M, Kubo T, Ogino T, Kobayashi K, Doi H. Catch-up growth and behavioral development among preterm, small-for-gestational-age children: a nationwide Japanese population-based study. Brain and Development. 2019;41(5):397–405. https://doi.org/10.1016/j.braindev.2018.12.004. Epub 2019 Jan 2. PMID: 30611596
Bhutta ZA, Berkley JA, Bandsma RHJ, Kerac M, Trehan I, Briend A. Severe childhood malnutrition. Nat Rev Dis Primers. 2017;21(3):17067. https://doi.org/10.1038/nrdp.2017.67. PMID: 28933421; PMCID: PMC7004825
Trabi T, Dunitz-Scheer M, Scheer PJ. Weaning in children with congenital heart diseases from nutritional tube is easier than in other children. Cardiology. 2006;106(3):167. https://doi.org/10.1159/000092844. Epub 2006 Apr 24. PMID: 16636548
Cole SZ, Lanham JS. Failure to thrive: an update. Am Fam Physician. 2011;83(7):829–34. PMID: 21524049
https://en.wikipedia.org/wiki/Kairos, seen on 6/12/21.
Marinschek S, Pahsini K, Scheer PJ, Dunitz-Scheer M. Long-term outcomes of an interdisciplinary tube weaning program: a quantitative study. J Pediatr Gastroenterol Nutr. 2019;68(4):591–4. https://doi.org/10.1097/MPG.0000000000002264. PMID: 30633107
Pahsini K, Marinschek S, Khan Z, Dunitz-Scheer M, Scheer PJ. Unintended adverse effects of enteral nutrition support: parental perspective. J Pediatr Gastroenterol Nutr. 2016;62(1):169–73. https://doi.org/10.1097/MPG.0000000000000919. PMID: 26704669
Khan Z, Marinschek S, Pahsini K, Scheer P, Morris N, Urlesberger B, Dunitz-Scheer M. Nutritional/growth status in a large cohort of medically fragile children receiving long-term enteral nutrition support. J Pediatr Gastroenterol Nutr. 2016;62(1):157–60. https://doi.org/10.1097/MPG.0000000000000931. PMID: 26237372
Castillo-Morales R, Brondo J, Hoyer H, Limbrock GJ. Die Behandlung von kau-, Schluck- und Sprechstörungen bei behinderten Kindern mit der orofazialen Regulationstherapie nach Castillo-Morales: Aufgabe fĂ¼r Pädiater und Zahnarzt [treatment of chewing, swallowing and speech defects in handicapped children with Castillo-Morales orofacial regulator therapy: advice for pediatricians and dentists]. Zahnarztl Mitt. 1985;75(9):935–42. 947-51. PMID: 2931921
Gripp KW, Rauen KA. Costello Syndrome. In: Adam MP, Ardinger HH, Pagon RA, Wallace SE, LJH B, Mirzaa G, Amemiya A, editors. GeneReviews® [Internet]. Seattle, WA: University of Washington, Seattle; 2006. Aug 29 [updated 2019 Aug 29] 1993–2021. PMID: 20301680.
Frazzoni M, Piccoli M, Conigliaro R, Frazzoni L, Melotti G. Laparoscopic fundoplication for gastroesophageal reflux disease. World J Gastroenterol. 2014;20(39):14272–9. https://doi.org/10.3748/wjg.v20.i39.14272. PMID: 25339814; PMCID: PMC4202356
Shah N, Rodriguez M, Louis DS, Lindley K, Milla PJ. Feeding difficulties and foregut dysmotility in Noonan's syndrome. Arch Dis Child. 1999;81(1):28–31. https://doi.org/10.1136/adc.81.1.28. PMID: 10373129; PMCID: PMC1717976
Parma B, Cianci P, Decimi V, Mariani M, Provero MC, Funari C, Tajè S, Apuril E, Cereda A, Panceri R, Maitz S, Fossati C, Selicorni A. Complex nutritional deficiencies in a large cohort of Italian patients with Cornelia de Lange syndrome spectrum. Am J Med Genet A. 2020;182(9):2094–101. https://doi.org/10.1002/ajmg.a.61749. Epub 2020 Jul 9. PMID: 32648352
Ravel A, Mircher C, Rebillat AS, Cieuta-Walti C, Megarbane A. Feeding problems and gastrointestinal diseases in Down syndrome. Arch Pediatr. 2020;27(1):53–60. https://doi.org/10.1016/j.arcped.2019.11.008. Epub 2019 Nov 26. PMID: 31784293
Chatoor I, Ganiban J, Surles J, Doussard-Roosevelt J. Physiological regulation and infantile anorexia: a pilot study. J Am Acad Child Adolesc Psychiatry. 2004;43(8):1019–25. https://doi.org/10.1097/01.chi.0000126977.64579.4e. PMID: 15266197
Dunitz M, Scheer PJ, Trojovsky A, Kaschnitz W, Kvas E, Macari S. Changes in psychopathology of parents of NOFT (non-organic failure to thrive) infants during treatment. Eur Child Adolesc Psychiatry. 1996;5(2):93–100. https://doi.org/10.1007/BF01989501. PMID: 8814415
Sanchack KE, Thomas CA. Autism spectrum disorder: primary care principles. Am Fam Physician. 2016;94(12):972–9. PMID: 28075089
de Giambattista C, Ventura P, Trerotoli P, Margari M, Palumbi R, Margari L. Subtyping the autism spectrum disorder: comparison of children with high functioning autism and Asperger syndrome. J Autism Dev Disord. 2019;49(1):138–50. https://doi.org/10.1007/s10803-018-3689-4. PMID: 30043350; PMCID: PMC6331497
Heilpädagogik: EinfĂ¼hrung in die Psychopathologie des Kindes FĂ¼r Ă„rƶte, Lehrer, Psychologen, Richter und FĂ¼rsorgerinnen (German Edition) 4. Aufl. 1965. Softcover reprint of the original 4th ed. 1965 Auflage.
Bettelheim B. The empty fortress: infantile autism and the birth of the self. New York: The Free Press; 1967.
Ekstein R. Children of time and space, of action and impulse: clinical studies on the psychoanalytic treatment of severely disturbed children. New York: Appleton-Century-Crofts; 1966.
Zimmerman DP. Psychotherapy in residential treatment: historical development and critical issues. Child Adolesc Psychiatr Clin N Am. 2004;13(2):347–61. https://doi.org/10.1016/S1056-4993(03)00122-6. PMID: 15062350
Harris J. Leo Kanner and autism: a 75-year perspective. Int Rev Psychiatry. 2018;30(1):3–17. https://doi.org/10.1080/09540261.2018.1455646. Epub 2018 Apr 18. PMID: 29667863
Famitafreshi H, Karimian M. Overview of the recent advances in pathophysiology and treatment for autism. CNS Neurol Disord Drug Targets. 2018;17(8):590–4. https://doi.org/10.2174/1871527317666180706141654. PMID: 29984672
Bishop DVM, Swendsen J. Psychoanalysis in the treatment of autism: why is France a cultural outlier? BJPsych Bull. 2021;45(2):89–93. https://doi.org/10.1192/bjb.2020.138. PMID: 33327979; PMCID: PMC8111966
Larson-Nath C, Biank VF. Clinical review of failure to thrive in pediatric patients. Pediatr Ann. 2016;45(2):e46-9. https://doi.org/10.3928/00904481-20160114-01. PMID: 26878182
UNICEF. Infant and young child feeding. https://data.unicef.org/topic/nutrition/infant-and-young-child-feeding/. Accessed on 1.8.2021.
WORLD BANK. Prevalence of stunting, height for age. (% of children under 5 years). https://data.worldbank.org/indicator/SH.STA.STNT.ZS?end=2020&start=2020&view=bar, Accessed on 01.08.2021.
WHO growth standards for children. https://www.who.int/tools/child-growth-standards/standards. Accessed on 01.08.2021.
Zhang L, Lin JG, Liang S, Sun J, Gao NN, Wu Q, Zhang HY, Liu HJ, Cheng XD, Cao Y, Li Y. Comparison of postnatal growth charts of singleton preterm and term infants using World Health Organization standards at 40-160 weeks postmenstrual age: a Chinese single-center retrospective cohort study. Front Pediatr. 2021;9:595882. https://doi.org/10.3389/fped.2021.595882. PMID: 33791257; PMCID: PMC8005644
UN. Peace, dignity and equality on a healthy planet. Global Issues/ Food. https://www.un.org/en/global-issues/food. Seen on 3.8.2021.
MacLennan AH, Thompson SC, Gecz J. Cerebral palsy: causes, pathways, and the role of genetic variants. Am J Obstet Gynecol. 2015;213(6):779–88. https://doi.org/10.1016/j.ajog.2015.05.034. Epub 2015 May 21. PMID: 26003063
Rempel G. The importance of good nutrition in children with cerebral palsy. Phys Med Rehabil Clin N Am. 2015;26(1):39–56. https://doi.org/10.1016/j.pmr.2014.09.001. PMID: 25479778
https://canchild.ca/en/resources/42-gross-motor-function-classification-system-expanded-revised-gmfcs-e-r. Seen on 06/21/2021.
Oftedal S, Davies PS, Boyd RN, Stevenson RD, Ware RS, Keawutan P, Benfer KA, Bell KL. Longitudinal growth, diet, and physical activity in young children with cerebral palsy. Pediatrics. 2016;138(4):e20161321. https://doi.org/10.1542/peds.2016-1321. Epub 2016 Sep 7. PMID: 27604185
Asgarshirazi M, Farokhzadeh-Soltani M, Keihanidost Z, Shariat M. Evaluation of feeding disorders including gastro-esophageal reflux and oropharyngeal dysfunction in children with cerebral palsy. J Family Reprod Health. 2017;11(4):197–201. PMID: 30288166; PMCID: PMC6168757
Piersigilli F, Van Grambezen B, Hocq C, Danhaive O. Nutrients and microbiota in lung diseases of prematurity: the placenta-gut-lung triangle. Nutrients. 2020;12(2):469. https://doi.org/10.3390/nu12020469. PMID: 32069822; PMCID: PMC7071142
Turck D, Braegger CP, Colombo C, Declercq D, Morton A, Pancheva R, Robberecht E, Stern M, Strandvik B, Wolfe S, Schneider SM, Wilschanski M. ESPEN-ESPGHAN-ECFS guidelines on nutrition care for infants, children, and adults with cystic fibrosis. Clin Nutr. 2016;35(3):557–77. https://doi.org/10.1016/j.clnu.2016.03.004. Epub 2016 Mar 15. PMID: 27068495
Barr PA, Mally PV, Caprio MC. Standardized nutrition protocol for very low-birth-weight infants resulted in less use of parenteral nutrition and associated complications, better growth, and lower rates of necrotizing enterocolitis. JPEN J Parenter Enteral Nutr. 2019;43(4):540–9. https://doi.org/10.1002/jpen.1453. Epub 2018 Nov 9. PMID: 30414179
Ameis D, Khoshgoo N, Keijzer R. Abnormal lung development in congenital diaphragmatic hernia. Semin Pediatr Surg. 2017;26(3):123–8. https://doi.org/10.1053/j.sempedsurg.2017.04.011. Epub 2017 Apr 25. PMID: 28641748
Zaiss I, Kehl S, Link K, Neff W, Schaible T, SĂ¼tterlin M, Siemer J. Associated malformations in congenital diaphragmatic hernia. Am J Perinatol. 2011;28(3):211–8. https://doi.org/10.1055/s-0030-1268235. Epub 2010 Oct 26. PMID: 20979012
Irish MS, Holm BA, Glick PL. Congenital diaphragmatic hernia. A historical review. Clin Perinatol. 1996;23(4):625–53. PMID: 8982561
Dingeldein M. Congenital diaphragmatic hernia: Management & Outcomes. Adv Pediatr Infect Dis. 2018;65(1):241–7. https://doi.org/10.1016/j.yapd.2018.05.001. Epub 2018 Jun 12. PMID: 30053927
Glenn IC, Abdulhai S, Lally PA, Schlager A, Congenital Diaphragmatic Hernia Study Group. Early CDH repair on ECMO: improved survival but no decrease in ECMO duration (a CDH Study Group Investigation). J Pediatr Surg. 2019;54(10):2038–43. https://doi.org/10.1016/j.jpedsurg.2019.01.063. Epub 2019 Feb 27. PMID: 30898400
Costa KM, Saxena AK. Surgical chylothorax in neonates: management and outcomes. World J Pediatr. 2018;14(2):110–5. https://doi.org/10.1007/s12519-018-0134-x. Epub 2018 Mar 5. PMID: 29508361
Waag KL, Loff S, Zahn K, Ali M, Hien S, Kratz M, Neff W, Schaffelder R, Schaible T. Congenital diaphragmatic hernia: a modern day approach. Semin Pediatr Surg. 2008;17(4):244–54. https://doi.org/10.1053/j.sempedsurg.2008.07.009. PMID: 19019293
See also parent report in https://notube.com/author/aureliecharriere, seen on 06/26/2021.
https://notube.com/resources-for-parents-and-family/how-i-found-my-daughters-way-out-from-diaphragmatic-hernia-routine. Seen 06/26/2021
Ammaniti M, Lucarelli L, Cimino S, D'Olimpio F, Chatoor I. Maternal psychopathology and child risk factors in infantile anorexia. Int J Eat Disord. 2010;43(3):233–40. https://doi.org/10.1002/eat.20688. PMID: 19350650
https://www.zerotothree.org/resources/services/dc-0-3r, seen on 07/05/2021.
Kerzner B, Milano K, MacLean WC Jr, Berall G, Stuart S, Chatoor I. A practical approach to classifying and managing feeding difficulties. Pediatrics. 2015;135(2):344–53. https://doi.org/10.1542/peds.2014-1630. Epub 2015 Jan 5. PMID: 25560449
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Dunitz-Scheer, M., Scheer, P.J. (2022). Major Diagnostic Groups Receiving ENT. In: Child-led Tube-management and Tube-weaning. Springer, Cham. https://doi.org/10.1007/978-3-031-09090-5_12
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