Abstract
This chapter investigates the capacity of the health humanities to give space to narratives of experiential knowledge as a means of repair of the self through a re-presentation and articulation of the self on the self’s own terms. Using my nine-image series Painscapes, a series of scanner photographs that imagine what my pain might look like in an x-ray, this chapter exercises an embodied self-articulation that centres my experiential knowledge of pain rather than imposing a traditional medical lens of pain experience. I argue that self-articulation and experiential knowledge allows for connection with the self and community, and offers a way to challenge and begin to heal from the ableism present in social and medical spaces.
Keywords
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- 1.
To access Painscapes: https://teagerbeza.com/projects/painscapes. Image descriptions are provided within the chapter with the exception of “Scar” and “Bending Over”—these image descriptions are provided in the end notes. I chose to add these two images as Figures in the chapter because “Scar” begins Painscapes and “Bending Over” uses most, if not all, of the quilled shapes in one image. The rest of the images are viewable on the website.
- 2.
Image ID: “Scar” is a scanograph of a large tightly wound paper-quilled circle centred at the top with only a quarter of the circle showing. Trailing behind the circle are parts of a paper strip—some iterations are longer than others. The strip that starts right after the circle is glitched from movement. There are cut-off words on the strips—these words are from old drafts of my poems. The series uses strips cut from old drafts of my current in-progress long poem. All of this is rests overtop a deep black background that is present in all the scanographs.
- 3.
Image ID: The scanograph “Bending Over” is composed of various types of paper-quilled circles: tightly wound small circles, tightly wound medium circles, wide centre circles, closed coil circles, and open coiled circles. The circles are clustered in left middle of the image and are positioned to replicate a “bending.”
References
Cadd, Frances. 2020. Life-Writing. In The Routledge Companion to Health Humanities, ed. Paul Crawford, Brian Brown, and Andrea Charise, 276–280. New York: Routledge. https://doi.org/10.4324/9780429469060.
Crawford, Paul. 2020. Introduction: Global Health Humanities and the Rise of the Creative Public Health. In The Routledge Companion to Health Humanities, ed. Paul Crawford, Brian Brown, and Andrea Charise, 1–7. New York: Routledge. https://doi.org/10.4324/9780429469060.
Dreger, Alice Domurat. 2004. ‘The Visible Skeleton Series’: The Art of Laura Ferguson. Perspectives in Biology and Medicine 47 (2): 159–175.
Ferguson, Laura. 2008a. Crouching Figure with Visible Skeleton. The Consciousness of the Body: Visible Skeleton Series. Accessed from lauraferguson.net
———. 2008b. The Story Behind the Art. The Consciousness of the Body: Visible Skeleton Series. Accessed from lauraferguson.net
Gerbeza, Tea. 2021a. Bending Over. Painscapes. Accessed from https://teagerbeza.com/projects/painscapes
———. 2021b. Foot Swelling. Painscapes. Accessed from https://teagerbeza.com/projects/painscapes
———. 2021c. Laying Down. Painscapes. Accessed from https://teagerbeza.com/projects/painscapes.
———. 2021d. Lung Trouble. Painscapes. Accessed from https://teagerbeza.com/projects/painscapes
———. 2021e. Migraine. Painscapes. Accessed from https://teagerbeza.com/projects/painscapes
———. 2021f. Pain in the Morning. Painscapes. Accessed from https://teagerbeza.com/projects/painscapes
———. 2021g. Scar. Painscapes. Accessed from https://teagerbeza.com/projects/painscapes
———. 2021h. Sitting. Painscapes. Accessed from https://teagerbeza.com/projects/painscapes
———. 2021i. Standing Up After a Long Day. Painscapes. Accessed from https://teagerbeza.com/projects/painscapes
Gravendyk, Hillary. 2014. Chronic Poetics. Journal of Modern Literature 38 (1): 1–19.
Hogan, Susan. 2020. Photography. In The Routledge Companion to Health Humanities, ed. Paul Crawford, Brian Brown, and Andrea Charise, 255–261. New York: Routledge. https://doi.org/10.4324/9780429469060.
Invalid, Sins. 2019. Skin, Tooth, and Bone: The Basis of Movement Is Our People. 2nd ed. Self-Published.
Johnson, Merri L., and Robert McRuer. 2014. Cripistemologies: Introduction. Journal of Literary & Cultural Disability Studies 8 (2): 127–147. ProQuest. Accessed from http://cyber.usask.ca/login?url=https://www.proquest.com/scholarly-journals/cripistemologies-introduction/docview/1545106235/se-2?accountid=14739
Lau, Travis Chi Wing. 2020a. Free and Unfeeling? The Pain Cluster. Post 45: Contemporaries. Accessed from https://post45.org/2020/02/free-and-unfeeling/
———. 2020b. Pain, My Kin. Brevity’s Nonfiction Blog. Accessed from https://brevity.wordpress.com/2020/09/21/pain-my-kin/
Lippincott, Rachael. 2020. Scoliosis, Spinal Fusion, and Stomach Punches. In Body Talk: 37 Voices Explore Our Radical Anatomy, ed. Kelly Jensen, 4–13. Algonquin Young Readers.
Matott, Drew Luan, and Gretchen M. Miller. 2020. Papermaking. In The Routledge Companion to Health Humanities, ed. Paul Crawford, Brian Brown, and Andrea Charise, 311–316. Routledge. https://doi.org/10.4324/9780429469060.
Myers, Christiana. 2019. On the Complexity of Cripping the Arts. CanadianArt. Accessed from https://canadianart.ca/features/on-the-complexity-of-cripping-the-arts/
Patsavas, Alyson. 2014. Recovering a Cripistemology of Pain: Leaky Bodies, Connective Tissue, and Feeling Discourse. Journal of Literary & Cultural Disability Studies 8 (2): 203–216.
Samuels, Ellen. 2017. Six Ways of Looking at Crip Time. Disability Studies Quarterly 37 (3): 2017.
Scheuer, Christina. 2011. Bodily Compositions: The Disability Poetics of Karen Fiser and Laurie Clements Lambeth. Journal of Literary & Cultural Disability Studies 5 (2): 155–172. https://doi.org/10.3828/jlcds.2011.13.
Tsaplina, Marina, and Raymond Barfield. 2020. The Role of the Imagination in the Practices of the Health Humanities. In The Routledge Companion to Health Humanities, ed. Paul Crawford, Brian Brown, and Andrea Charise, 111–119. New York: Routledge. https://doi.org/10.4324/9780429469060.
VanDelinder, Debb. 2012. So What Exactly Is Scanography? Debb VanDelinder Visual Artist, Blog. Accessed from http://www.debbvandelinder.com/blog/so-what-exactly-is-scanography
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Gerbeza, T. (2023). Narratives of Repair and the Re-articulation of the Pained Self: A Study in Painscapes. In: Riegel, C., Robinson, K.M. (eds) Health Humanities in Application. Sustainable Development Goals Series. Palgrave Macmillan, Cham. https://doi.org/10.1007/978-3-031-08360-0_5
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