Abstract
This chapter describes ethical considerations for behavior analysts when providing applied behavior analysis (ABA)-based services for adults with autism spectrum disorders. The framework for this chapter is based on the Behavior Analyst Certification Board (BACB) Ethics Code for Behavior Analysts, the need for consent for services, funding of adult services, related legal and regulatory matters, and evidence-based procedures.
This is a preview of subscription content, log in via an institution to check access.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
Similar content being viewed by others
References
Americans With Disabilities Act of 1990, 42 U.S.C. § 12101 et seq (1990). https://www.ada.gov/pubs/adastatute08.html
Autism and Developmental Disabilities Monitoring Network Surveillance Year 2008 Principal Investigators, & Centers for Disease Control and Prevention. (2012). Prevalence of autism spectrum disorders – Autism and Developmental Disabilities Monitoring Network, 14 sites, United States, 2008. Morbidity and Mortality Weekly Report. Surveillance Summaries (Washington, DC: 2002), 61(3), 1–19.
Autism Speaks. (2021). Autism insurance reform in 50 states. https://www.autismspeaks.org/state-regulated-health-benefit-plans
Behavior Analyst Certification Board. (2020). Ethics code for behavior analysts. Author.
Brodhead, M. T., Cox, S. P., & Quigley, S. P. (2018). Practical ethics for effective treatment of autism spectrum disorder. Academic Press.
Centers for Medicaid and Medicare Services. (2010). Autism spectrum disorders (ASDs) services final report on environmental scan. https://impaqint.com/sites/default/files/project-reports/Autism_Spectrum_Disorders.pdf
Centers for Medicaid and Medicare Services. (2011). Report on state services to individuals with autism spectrum disorders (ASD). https://www.cms.gov/apps/files/9-state-report.pdf
Civil Rights of Institutionalized Persons, 42 U.S.C. § et seq (1997). https://www.govinfo.gov/content/pkg/USCODE-2019-title42/pdf/USCODE-2019-title42-chap21-subchapI-A-sec1997.pdf
Davignon, M. N., Qian, Y., Massolo, M., & Croen, L. A. (2018). Psychiatric and medication conditions in transition-aged individuals with ASD. Pediatrics, 141(S4), S335–S345. https://doi.org/10.1542/peds.2016-4300K
Davis, C. A., Reichle, J. E., & Southard, K. L. (2000). High probability requests sequences and a preferred item as a distractor: Increasing successful transitions in children with behavior problems. Education and Treatment of Children, 23, 423–440.
Developmental Disabilities Monitoring Network Surveillance Year 2010 Principal Investigators, & Centers for Disease Control and Prevention (CDC). (2014). Prevalence of autism spectrum disorder among children aged 8 years - autism and developmental disabilities monitoring network, 11 sites, United States, 2010. Morbidity and Mortality Weekly Report. Surveillance Summaries (Washington, DC: 2002), 63(2), 1–21.
Dietz, P. M., Rose, C. E., McArthur, D., & Maenner, M. (2020). National and state estimates of adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 50(12), 4258–4266. https://doi.org/10.1007/s10803-020-04494-4
Kogan, M. D., Vladutiu, C. J., Schieve, L. A., Ghandour, R. M., Blumberg, S. J., Zablotsky, B., Perrin, J. M., Shattuck, K. A., Kuhlthau, K. A., Harwood, R. L., & Lu, M. C. (2018). The prevalence of parent-reported autism spectrum disorder among US children. Pediatrics, 142(6). https://doi.org/10.1542/peds.2017-4161
Leaf, J. B., Sato, S. K., Javed, A., Arthur, S. M., Creem, A. N., Cihon, J. H., Ferguson, J. L., & Oppenheim-Leaf, M. L. (2021). The evidence-based practices for children, youth, and young adults with autism report: Concerns and critiques. Behavioral Interventions, 36(2), 457–472. https://doi.org/10.1002/bin.1771
Missouri Autism Guidelines Initiative. (2012). Autism spectrum disorders: Guide to evidence-based intervention. www.autismguidelines.dmh.mo.gov
National Autism Center. (2015). Findings and conclusions: National standards project, phase 2. Author. http://www.autismdiagnostics.com/assets/Resources/NSP2.pdf
Newhouse-Oisten, M. K., Peck, K. M., Conway, A. A., & Frieder, J. E. (2017). Ethical considerations for interdisciplinary collaboration with prescribing professionals. Behavior Analysis in Practice, 10(2), 145–153. https://doi.org/10.1007/s40617-017-0184-x
Rast, J. E., Roux, A. M., Anderson, K. A., Croen, L. A., Kuo, A. A., Shea, L. L., & Shattuck, P. T. (2020). National autism indicators report: Health and health care. https://drexel.edu/~/media/Files/autismoutcomes/publications/NAIR%20Health%202020.ashx
Roux, A. M., Rast, J. E., Anderson, K. A., & Shattuck, P. T. (2017). National autism indicators reports: Developmental disability services and outcomes in adulthood. https://drexel.edu/~/media/Files/autismoutcomes/publications/Natl%20Autism%20Indicators%20Report%202017_Final.ashx
Steinbrenner, J. R., Hume, K., Odom, S. L., Morin, K. L., Nowell, S. W., Tomaszewski, B., … Savage, M. N. (2020). Evidence-based practices for children, youth, and young adults with autism. The University of North Carolina, Frank Porter Graham Child Development Institute, National Clearinghouse on Autism Evidence and Practice Review Team.
The Council of Autism Service Providers. (2020). Applied behavior analysis treatment of autism spectrum disorder: Practice guidelines for healthcare funders and managers. https://casproviders.org/wp-content/uploads/2020/03/ABA-ASD-Practice-Guidelines.pdf
US Legal. (2021, September). Assent law and legal definition. https://definitions.uslegal.com/a/assent/
Van Houten, R., Axelrod, S., Bailey, J. S., Favell, J. E., Foxx, R. M., Iwata, B. A., & Lovaas, O. I. (1988). The right to effective behavioral treatment. Journal of Applied Behavior Analysis, 21(4), 381–384. https://doi.org/10.1901/jaba.1988.21.381
Vohra, R., Madhavan, S., Sambamoorthi, U., StPeter, C., Poe, S., Dwibedi, N., & Ajmera, M. (2016). Prescription drug use and polypharmacy among Medicaid-enrolled adults with autism: A retrospective cross-sectional analysis. Drugs-Real World Outcomes, 3(4), 409–425. https://doi.org/10.1007/s40801-016-0096-z
Voting Accessibility for the Elderly and Handicapped Act. 42 U.S.C. § 98–435 et seq (1973).
Zerbo, O., Massolo, M. L., Qian, Y., & Croen, L. A. (2015). A study of physician knowledge and experience with autism in adults in a large integrated healthcare system. Journal of Autism and Developmental Disorders, 45(12), 4002–4014. https://doi.org/10.1007/s10803-015-2579-2
Zerbo, O., Qian, Y., Ray, T., Sidney, S., Rich, S., Massolo, M., & Croen, L. A. (2019). Health care service utilization and cost among adults with autism spectrum disorders in a US integrated health care system. Autism in Adulthood, 1(1), 27–36. https://doi.org/10.1089/aut.2018.0004
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2022 The Author(s), under exclusive license to Springer Nature Switzerland AG
About this chapter
Cite this chapter
Olive, M.L. (2022). Ethical Considerations and Dignity for Adults with Autism Spectrum Disorders. In: Leaf, J.B., Cihon, J.H., Ferguson, J.L., Gerhardt, P.F. (eds) Handbook of Quality of Life for Individuals with Autism Spectrum Disorder. Autism and Child Psychopathology Series. Springer, Cham. https://doi.org/10.1007/978-3-030-98507-3_13
Download citation
DOI: https://doi.org/10.1007/978-3-030-98507-3_13
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-030-98506-6
Online ISBN: 978-3-030-98507-3
eBook Packages: Behavioral Science and PsychologyBehavioral Science and Psychology (R0)