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Community-Based Residential Options for Adults with Autism and Intellectual Disabilities

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Handbook of Quality of Life for Individuals with Autism Spectrum Disorder

Part of the book series: Autism and Child Psychopathology Series ((ACPS))

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Abstract

This chapter will detail the evolution of community-based housing options for persons with intellectual disabilities (IDs). This history will follow the Olmstead decision and other edicts that were involved that led to widespread deinstitutionalization and the move to the community for persons with ID. An overview will be provided related to the array of services that are offered in residential community-based housing options. The importance of staff training will also be detailed as it relates to the effective teaching of functional skills and increased autonomy in residential settings for persons with ID. The importance of the use of characteristically positive teaching-based interactions will also be covered with respect to fostering independence in these settings. An argument will be made for the use of these types of settings in the community as effective tools for increasing autonomy and facilitating increased community involvement for those with ID.

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Change history

  • 22 March 2023

    The original version of this book was published with an incorrect representation of Fig. 10.4 which has now been corrected.

References

  • Bellamy, G. T., & Horner, R. H. (1987). Beyond high school: Residential and employment options after graduation. In M. Snell (Ed.), Systematic instruction of persons with severe handicaps (pp. 491–510). Merrill.

    Google Scholar 

  • Boles, S., Horner, R. H., & Bellamy, G. T. (1988). Implementing transition programs for supported living. In B. L. Ludlow, A. P. Turnbull, & R. Luckasson (Eds.), Transitions to adult life for people with mental retardation (pp. 101–117). Paul Brookes.

    Google Scholar 

  • Brown, I., Hatton, C., & Emerson, E. (2013). Quality of life indicators for individuals with intellectual disabilities: Extending current practice. Intellectual and Developmental Disabilities, 51(5), 316–332. https://doi.org/10.1352/1934-9556-51.5.316

    Article  PubMed  Google Scholar 

  • Butler, N. S. (1999). In the Most appropriate setting: The rights of mentally disabled individuals under the Americans with Disabilities act in the wake of Olmstead VLC. Catholic. University Law Review, 49, 1021.

    Google Scholar 

  • Campbell, M. (2007). Staff training and challenging behaviour. Who needs it? Journal of Intellectual Disabilities, 11(2), 143–156. https://doi.org/10.1177/1744629507076928

    Article  PubMed  Google Scholar 

  • Clement, T., & Bigby, C. (2010). Group homes for people with intellectual disabilities: Encouraging inclusion and participation. Jessica Kingsley Publishers.

    Google Scholar 

  • Cook, T. M. (1991). The Americans with Disabilities act: The move to integration. Temple. Law Review, 64, 393.

    Google Scholar 

  • Cresswell, M. (2008). Szasz and his interlocutors: Reconsidering Thomas Szasz’s “myth of mental illness” thesis. Journal for the Theory of Social Behaviour, 38(1), 23–44. https://doi.org/10.1111/j.1468-5914.2008.00359.x

    Article  Google Scholar 

  • Daniels, A. C., & Bailey, J. S. (2014). Performance management: Changing behavior that drives organizational effectiveness. Aubrey Daniels International.

    Google Scholar 

  • Goffman, E. (1968). Asylums: Essays on the social situation of mental patients and other inmates. Aldine Transaction.

    Google Scholar 

  • Gorman, M. (1976). Community absorption of the mentally ill: The new challenge. Community Mental Health Journal, 12(2), 119–127. https://doi.org/10.1007/BF01411381

    Article  PubMed  Google Scholar 

  • Gormley, L., Healy, O., Doherty, A., O’Regan, D., & Grey, I. (2020). Staff training in intellectual and developmental disability settings: A scoping review. Journal of Developmental and Physical Disabilities, 32, 187–212. https://doi.org/10.1007/s10882-019-09683-3

    Article  Google Scholar 

  • Green, C. W., & Reid, D. H. (1996). Defining, validating, and increasing indices of happiness among people with profound multiple disabilities. Journal of Applied Behavior Analysis, 29(1), 67–78. https://doi.org/10.1901/jaba.1996.29-67

    Article  PubMed  PubMed Central  Google Scholar 

  • Guercio, J. M. (2020). Assessment of adult core competencies: Teaching skills to adults with autism and severe behavioral challenges. Assessment of adult core competencies curriculum (ACCEA) (For clients with extreme aggression). Hedgehog Publishers.

    Google Scholar 

  • Guercio, J. M., & Cormier, R. J. (2015). Blending stimulus fading procedures with forward chaining to address treatment resistance in an adult with an autism spectrum disorder. Behavior Analysis in Practice, 8(2), 215–218. https://doi.org/10.1007/s40617-015-0060-5

    Article  PubMed  PubMed Central  Google Scholar 

  • Guercio, J. M., & Dixon, M. R. (2010). Improving the quality of staff and participant interaction in an acquired brain injury organization. Journal of Organizational Behavior Management, 30(1), 49–56. https://doi.org/10.1080/01608060903529780

    Article  Google Scholar 

  • Guercio, J. M., & Dixon, M. R. (2011). The observer effect and its impact on staff behavior in an acquired brain injury neurobehavioral treatment setting. Journal of Organizational Behavior Management, 31(1), 43–54. https://doi.org/10.1080/01608061.2010.520142

    Article  Google Scholar 

  • Guercio, J. M., & McMorrow, M. J. (2007). Frequency and types of unwanted behavior exhibited in neurobehavioral rehabilitation. Unpublished manuscript.

    Google Scholar 

  • Guercio, J. M., Dixon, M. R., Soldner, J., Shoemaker, Z., Zlomke, K., Root, S., & Small, S. (2005). Enhancing staff performance measures in an acquired brain injury setting: Combating the habituation to organizational behavioral interventions. Behavioral Interventions, 20(1), 91–99. https://doi.org/10.1002/bin.174

    Article  Google Scholar 

  • Harchik, A. E., & Campbell, A. R. (1998). Supporting people with developmental disabilities in their homes in the community: The role of organizational behavior management. Journal of Organizational Behavior Management, 18(2–3), 83–101. https://doi.org/10.1300/J075v18n02_05

    Article  Google Scholar 

  • Hatton, C., Emerson, E., Rivers, M., Mason, H., Mason, L., Swarbrick, R., & Alborz, A. (1999). Factors associated with staff stress and work satisfaction in services for people with intellectual disability. Journal of Intellectual Disability Research, 43(4), 253–267. https://doi.org/10.1046/j.1365-2788.1999.00208.x

    Article  PubMed  Google Scholar 

  • Hitzing, W. (1987). Community living alternatives for persons with autism and severe behavior problems. In D. J. Cohen & A. Donnellan (Eds.), Handbook of autism and pervasive developmental disorders (pp. 396–410). Wiley.

    Google Scholar 

  • Im, D. S. (2021). Treatment of aggression in adults with autism spectrum disorder: A review. Harvard Review of Psychiatry, 29(1), 35–80. https://doi.org/10.1097/HRP.0000000000000282

    Article  PubMed  PubMed Central  Google Scholar 

  • Ivancic, M. T., & Heise, W. J. (1998). Organizational behavior management in large residential organizations: Moving from institutional to client-centered care. Journal of Organizational Behavior Management, 18(2–3), 61–82. https://doi.org/10.1300/J075v18n02_04

    Article  Google Scholar 

  • Jackson, S. E., & Maslach, C. (1982). After-effects of job-related stress: Families as victims. Journal of Organizational Behavior, 3(1), 63–77. https://doi.org/10.1002/job.4030030106

    Article  Google Scholar 

  • Lakin, K. C., & Stancliffe, R. J. (2007). Residential supports for persons with intellectual and developmental disabilities. Mental Retardation and Developmental Disabilities Research Reviews, 13(2), 151–159. https://doi.org/10.1002/mrdd.20148

    Article  PubMed  Google Scholar 

  • Lakin, K. C., Prouty, R., & Coucouvanis, K. (2006). Changing patterns in size of residential settings for persons with intellectual and developmental disability, 1977–2005. Mental Retardation, 44(4), 306–309. https://doi.org/10.1352/00476765(2006)44[306:CPISOR]2.0.CO;2

    Article  PubMed  Google Scholar 

  • Mac Suibhne, S. (2011). Erving Goffman’s asylums 50 years on. The British Journal of Psychiatry, 198(1), 1–2. https://doi.org/10.1192/bjp.bp.109.077172

    Article  Google Scholar 

  • McMorrow, M. J. (2003). Getting ready to help: A primer on interacting in human service. Paul Brookes.

    Google Scholar 

  • National Center on Birth Defects and Developmental Disabilities (NCBDDD). (2003). Chapter 6: Disability and secondary conditions, vision for a decade. In Healthy people, 2010. Centers for Disease Control and Prevention.

    Google Scholar 

  • O’Brien, J. (1987). A guide to life-style planning. In G. T. Bellamy & B. Wilcox (Eds.), A comprehensive guide to the activities catalog: An alternative curriculum for youths and adults with severe disabilities (pp. 175–189). Paul H. Brookes.

    Google Scholar 

  • Prouty, R. W., Smith, G., & Lakin, K. C. (2006). Residential services for persons with developmental disabilities: Status and trends through 2003. Research and Training Center on Community Living.

    Google Scholar 

  • Racino, J. A. (1995). Community living for adults with developmental disabilities: A housing and support approach. Journal of the Association for Persons with Severe Handicaps, 20(4), 300–310. https://doi.org/10.1177/154079699602000406

    Article  Google Scholar 

  • Racino, J. A., & Knoll, J. (1986). Life in the community: Developing non-facility based services. TASH Newsletter, 12(9), 6.

    Google Scholar 

  • Reid, D. H., & Parsons, M. B. (2002). Working with staff to overcome challenging behavior among people who have severe disabilities: A guide for getting support plans carried out (Vol. 1). Habilitative Management Consultants.

    Google Scholar 

  • Robertson, J., Hatton, C., Felce, D., Meek, A., Carr, D., Knapp, M., & Lowe, K. (2005). Staff stress and morale in community-based settings for people with intellectual disabilities and challenging behaviour: A brief report. Journal of Applied Research in Intellectual Disabilities, 18(3), 271–277. https://doi.org/10.1111/j.1468-3148.2005.00233.x

    Article  Google Scholar 

  • Sharrard, H. E. (1992). Feeling the strain: Job stress and satisfaction of direct-care staff in the mental handicap service. The British Journal of Mental Subnormality, 38(74), 32–38. https://doi.org/10.1179/bjdd.1992.005

    Article  Google Scholar 

  • Shorter, E. (2000). The Kennedy family and the story of mental retardation. Temple University Press.

    Google Scholar 

  • Singh, N. N., Lancioni, G. E., Karazsia, B. T., Myers, R. E., Kim, E., Chan, J., & Janson, M. (2019). Surfing the urge: An informal mindfulness practice for the self-management of aggression by adolescents with autism spectrum disorder. Journal of Contextual Behavioral Science, 12, 170–177. https://doi.org/10.1016/j.jcbs.2018.10.003

    Article  Google Scholar 

  • Stancliffe, R. J., & Lakin, K. C. (2005). Costs and outcomes of community services for people with intellectual disabilities. Paul H Brookes Publishing.

    Google Scholar 

  • Sturmey, P. (1998). History and contribution of organizational behavior management to services for persons with developmental disabilities. Journal of Organizational Behavior Management, 18(2–3), 7–32. https://doi.org/10.1300/J075v18n02_02

    Article  Google Scholar 

  • Sundram, C. J. (1999). Pitfalls in the pursuit of life, liberty, and happiness. Mental Retardation, 37(1), 62–67. https://doi.org/10.1352/0047-6765(1999)037<0062:PITPOL>2.0.CO;2

    Article  PubMed  Google Scholar 

  • Szasz, T. S. (1961). The uses of naming and the origin of the myth of mental illness. American Psychologist, 16(2), 59–65. https://doi.org/10.1037/h0040842

    Article  Google Scholar 

  • Torrey, E. F. (2014). American psychosis: How the federal government destroyed the mental illness treatment system. Oxford University Press.

    Google Scholar 

  • Tøssebro, J., Bonfils, I. S., Teittinen, A., Tideman, M., Traustadottir, R., & Vesala, H. T. (2012). Normalization fifty years beyond—Current trends in the Nordic countries. Journal of Policy and Practice in Intellectual Disabilities, 9(2), 134–146. https://doi.org/10.1111/j.1741-1130.2012.00340.x

    Article  Google Scholar 

  • van Oorsouw, W. M., Embregts, P. J., Bosman, A. M., & Jahoda, A. (2009). Training staff serving clients with intellectual disabilities: A meta-analysis of aspects determining effectiveness. Research in Developmental Disabilities, 30(3), 503–511. https://doi.org/10.1016/j.ridd.2008.07.011

    Article  PubMed  Google Scholar 

  • Wilson, A. N., Kasson, E. M., Gratz, O., & Guercio, J. M. (2015). Exploring the clinical utility of a stimulus avoidance assessment to enhance a relaxation training model. Behavior Analysis in Practice, 8(1), 57–61. https://doi.org/10.1007/s40617-014-0035-y

    Article  PubMed  Google Scholar 

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Guercio, J.M. (2022). Community-Based Residential Options for Adults with Autism and Intellectual Disabilities. In: Leaf, J.B., Cihon, J.H., Ferguson, J.L., Gerhardt, P.F. (eds) Handbook of Quality of Life for Individuals with Autism Spectrum Disorder. Autism and Child Psychopathology Series. Springer, Cham. https://doi.org/10.1007/978-3-030-98507-3_10

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