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Death and Dying

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Ageing in a Nursing Home
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Abstract

Silence on the subject of death is evident in contemporary nursing homes, where almost every person has one or more incurable medical conditions, up to one-third dying within 6 weeks of admission (Tjernberg & Bökberg, 2020); yet its name is not readily spoken. With a dominant focus on wellness, describing ways in which living in a nursing home may be enhanced, the subject of death is seldom brought to the fore.

This chapter emphasises the importance of preparation for death and how the conversation needs to include staff and other health professionals, residents, families and volunteers. Different perceptions and perspectives on the subject are described, including grief, loss and bereavement. Procedural matters are discussed, with information about notification, certification and documentation. Examples show the disparate community responses to death and dying, including various cultural characteristics.

While (some of) the stories are based on factual situations, real names and other details have been altered to protect the identity of the persons concerned. Resemblance to any particular person is therefore purely coincidental.

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References

  • Baker, B. (2007). Old age in a new age: The promise of transformative nursing homes. Vanderbilt University Press.

    Book  Google Scholar 

  • Barbato, M. (2009). The dying game. International Conference on Ageing and spirituality, Aukland, NZ.

    Google Scholar 

  • Becker, E. (1973). The denial of death. The Free Press.

    Google Scholar 

  • Bergman, J., & Laviana, A. (2016). Opportunities to maximize value with integrated palliative care. Journal of Multidisciplinary Healthcare, (9), 219–226.

    Article  Google Scholar 

  • Callahan, D. (1990). What kind of life: the limits of medical progress. Simon and Schuster.

    Google Scholar 

  • Chochinov, H. (2012). Dignity therapy: Final words for final days. Oxford University Press.

    Book  Google Scholar 

  • Djivre, S., Levin, E., Schinke, R., & Porter, E. (2012). Five residents speak: The meaning of living with dying in a long-term care home. Death Studies, 36(6), 486–518.

    Article  Google Scholar 

  • Faber, H. (1984). Striking sails: A pastoral-psychological view of growing older in our society (K. R. Mitchell, Trans.). Abingdon Press.

    Google Scholar 

  • Ferrah, N., Ibrahim, J., Kipsaina, C., & Bugeja, L. (2017). Death following recent admission into nursing home from community living: A systematic review into the transition process. 1–21. https://doi.org/10.1177/0898264316686575.

  • Fleming, J., & Farquhar, M. (2016). Death and the oldest old: Attitudes and preferences for end-of-life care: Qualitative research within a population-based cohort study. PLoS One, 1–25. https://doi.org/10.1371/journal.pone.0150686

  • Hertz, R. (1960). Death and the right hand (R. a. C. Needham, Trans.). Cohen & West.

    Google Scholar 

  • Hitchcock, K. (2015). Dear life: On caring for the elderly. Quarterly Essay, 57, 1–78.

    Google Scholar 

  • Hudson, P., Hall, C., Boughey, A., & Roulston, A. (2018). Bereavement support standards and bereavement care pathway for quality palliative care. Palliative & Supportive Care, 16(4), 375–387. https://doi.org/10.1017/S1478951517000451

    Article  Google Scholar 

  • Hudson, P., Kristjanson, L., Ashby, M., Kelly, B., Schofield, P., Hudson, R., Aranda, S., O’Connor, M., & Street, A. (2006). Desire for hastened death in patients with advanced disease and the evidence base of clinical guidelines: A systematic review. Palliative Medicine, 20, 693–701.

    Article  PubMed  Google Scholar 

  • Hudson, R. (2014). Palliative care for the older person: Cloak or cover-up? Journal of Religion, Spirituality, & Aging, 26(2–3), 186–200.

    Article  Google Scholar 

  • Hudson, R., & O’Connor, M. (2007). Palliative care and aged care: A guide to practice. Ausmed Publications.

    Google Scholar 

  • Ibrahim, J. (2018). Spotlight on the harsh reality of suicide in Australian nursing homes. Australian Nursing & Midwifery Journal, 25(9), 4.

    Google Scholar 

  • Ibrahim, J. E., Bugeja, L., Willoughby, M., Bevan, M., Kipsaina, C., Young, C., Pham, T., & Ranson, D. L. (2017). Premature deaths of nursing home residents: An epidemiological analysis. Medical Journal of Australia, 206(10), 442–447.

    Article  Google Scholar 

  • Ilyich, I. (1976). Limits to medicine: The expropriation of health. Marion Boyars.

    Google Scholar 

  • Jain, B., Kennedy, B., Bugeja, L. C., & Ibrahim, J. E. (2020). Suicide among nursing home residents: Development of recommendations for prevention using a nominal group technique. Journal of Aging & Social Policy, 32(2), 157–171.

    Article  Google Scholar 

  • Johnstone, M.-J. (2012). Bioethics, cultural differences and the problem of moral disagreements in end-of-life care: A terror management theory. Journal of Medicine and Philosophy, 37, 181–200.

    Article  Google Scholar 

  • Johnstone, M.-J. (2013). ‘Death with dignity’ – Doubts and demands. Australian Nursing and Midwifery Journal, 21(4), 26.

    PubMed  Google Scholar 

  • Joosten, M. (2016). A long time coming. Scribe.

    Google Scholar 

  • Kidder, T. (1993). Old friends. Houghton Mifflin Company.

    Google Scholar 

  • Kuhl, D. (2002). What dying people want. ABC Books.

    Google Scholar 

  • Lewis, C. (1961). A grief observed. Faber and Faber.

    Google Scholar 

  • Luther, M. (1956). Luther’s works (Vol. 13). Concordia Publishing House.

    Google Scholar 

  • Murphy, B. J., Bugeja, L. C., Pilgrim, J. L., & Ibrahim, J. (2018). Suicide among nursing home residents in Australia: A national population-based retrospective analysis of medico-legal death investigation information. International Journal of Geriatric Psychiatry, 33(5), 786–796.

    Article  PubMed  Google Scholar 

  • Neuhaus, R. (2000). Born toward dying. First Things, 100(February 2000), 15–22.

    Google Scholar 

  • Nightingale, F. (1969). Notes on nursing: what it is, and what it is not. Dover Publications, inc. (First published by Appleton and Company in 1860).

    Google Scholar 

  • Nuland, S. (1994). How we die: Reflections on life’s final chapter. Alfred A Knopf.

    Google Scholar 

  • O’Connor, M., & Allison, M. (2020). Facilitating a good death in residential aged care settings, with support from community palliative care. Australian Nursing and Midwifery Journal, 26(10), 41.

    Google Scholar 

  • Omori, M., Jayasuriya, J., Scherer, S., Dow, B., Vaughan, M., & Savvas, S. (2020). The language of dying: Communication about end-of-life in residential aged care. Death Studies, 1–11. https://doi.org/https://doi.org/10.1080/07481187.2020.1762263.

  • Palliative Care Australia, Alzheimer’s Australia, COTA Australia, Aged & Community Services Australia, Leading Aged Services Australia, Catholic Health Australia, & Aged Care guild. (2017). Principles for palliative and end-of-life care in residential aged care.

    Google Scholar 

  • Parliament of Victoria. (1987). Inquiry into options for dying with dignity: Second and final report (19). Parliament of Victoria,.

    Google Scholar 

  • Pilotlight Australia. (2007). Dying to know: Bringing death to life. Hardie Grant Books.

    Google Scholar 

  • Radbruch, L., De Lima, L., Knaul, F., Wenk, R., Ali, Z., Bhatnaghar, S., Blanchard, C., Bruera, E., Buitrago, R., & Burla, C. (2020). Redefining palliative care–a new consensus-based definition. Journal of Pain and Symptom Management, 60(4), 754–764.

    Article  PubMed  PubMed Central  Google Scholar 

  • Raphael, B. (1994). The anatomy of bereavement. Jason Aronson, Incorporated.

    Google Scholar 

  • Richmond, J (1990). Unpublished and paraphrased conference presentation.

    Google Scholar 

  • Sanderson, C., Miller-Lewis, L., Rawlings, D., Parker, D., & Tieman, J. (2019). “I want to die in my sleep”-how people think about death, choice, and control: Findings from a massive open online course. Annals of Palliative Medicine, 1–9.

    Google Scholar 

  • Smith, R. (2000). A good death. British Medical Journal, 320(7228), 129–130.

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  • Somerville, M. (2017). The importance of stories in the euthanasia debate. Mercatornet.. https://mercatornet.com/the-importance-of-stories-in-the-euthanasia-debate/8888/

  • Sprung, C., Somerville, M., & Radbruch, L. (2018). Physician-assisted suicide and euthanasia: Emerging issues from a global perspective. Journal of Palliative Care, 33(4), 197–202.

    Article  PubMed  Google Scholar 

  • Steinhauser, K., & Tulsky, J. (2015). Defining a ‘good death’. In N. Cherny , M. Fallon, S. Kaasa, R. Portenoy, & C. D (Eds.), Oxford textbook of palliative medicine (5th ed.). Oxford University Press. https://doi.org/10.1093/med/9780199656097.003.0008.

  • Stevens, J., McFarlane, J., & Stirling, K. (2000). Ageing and dying. In A. Kellehear (Ed.), Death & dying in Australia (pp. 173–189). Oxford University Press.

    Google Scholar 

  • Testoni, I., Wieser, M. A., Kapelis, D., Pompele, S., Bonaventura, M., & Crupi, R. (2020). Lack of truth-telling in palliative care and its effects among nurses and nursing students. Behavioral Science, 10(5), 88.

    Article  Google Scholar 

  • Tisdale, S. (2019). Advice for future corpses (and those who love them): A practical perspective on death and dying. Gallery Books.

    Google Scholar 

  • Tjernberg, J., & Bökberg, C. (2020). Older persons’ thoughts about death and dying and their experiences of care in end-of-life: A qualitative study. BMC Nursing, 19(1), 1–10.

    Article  Google Scholar 

  • Tolstoy, L. (1960). The death of Ivan Ilyich (R. Edmonds, Trans.). Penguin.

    Google Scholar 

  • Wiersman, E., Marcella, J., McAnulty, J., & Kelley, M. (2019). ‘That just breaks my heart’: Moral concerns of direct care workers providing palliative care in LTC homes. Canadian Journal on Aging, 1–13.

    Google Scholar 

  • Williams, S., Hwang, K., Watt, J., Batchelor, F., Gerber, K., Hayes, B., & Brijnath, B. (2020). How are older people’s care preferences documented towards the end of life? Collegian, 27(3), 313–318.

    Article  Google Scholar 

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Hudson, R. (2022). Death and Dying. In: Ageing in a Nursing Home. Springer, Cham. https://doi.org/10.1007/978-3-030-98267-6_6

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  • DOI: https://doi.org/10.1007/978-3-030-98267-6_6

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