Abstract
Silence on the subject of death is evident in contemporary nursing homes, where almost every person has one or more incurable medical conditions, up to one-third dying within 6 weeks of admission (Tjernberg & Bökberg, 2020); yet its name is not readily spoken. With a dominant focus on wellness, describing ways in which living in a nursing home may be enhanced, the subject of death is seldom brought to the fore.
This chapter emphasises the importance of preparation for death and how the conversation needs to include staff and other health professionals, residents, families and volunteers. Different perceptions and perspectives on the subject are described, including grief, loss and bereavement. Procedural matters are discussed, with information about notification, certification and documentation. Examples show the disparate community responses to death and dying, including various cultural characteristics.
While (some of) the stories are based on factual situations, real names and other details have been altered to protect the identity of the persons concerned. Resemblance to any particular person is therefore purely coincidental.
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References
Baker, B. (2007). Old age in a new age: The promise of transformative nursing homes. Vanderbilt University Press.
Barbato, M. (2009). The dying game. International Conference on Ageing and spirituality, Aukland, NZ.
Becker, E. (1973). The denial of death. The Free Press.
Bergman, J., & Laviana, A. (2016). Opportunities to maximize value with integrated palliative care. Journal of Multidisciplinary Healthcare, (9), 219–226.
Callahan, D. (1990). What kind of life: the limits of medical progress. Simon and Schuster.
Chochinov, H. (2012). Dignity therapy: Final words for final days. Oxford University Press.
Djivre, S., Levin, E., Schinke, R., & Porter, E. (2012). Five residents speak: The meaning of living with dying in a long-term care home. Death Studies, 36(6), 486–518.
Faber, H. (1984). Striking sails: A pastoral-psychological view of growing older in our society (K. R. Mitchell, Trans.). Abingdon Press.
Ferrah, N., Ibrahim, J., Kipsaina, C., & Bugeja, L. (2017). Death following recent admission into nursing home from community living: A systematic review into the transition process. 1–21. https://doi.org/10.1177/0898264316686575.
Fleming, J., & Farquhar, M. (2016). Death and the oldest old: Attitudes and preferences for end-of-life care: Qualitative research within a population-based cohort study. PLoS One, 1–25. https://doi.org/10.1371/journal.pone.0150686
Hertz, R. (1960). Death and the right hand (R. a. C. Needham, Trans.). Cohen & West.
Hitchcock, K. (2015). Dear life: On caring for the elderly. Quarterly Essay, 57, 1–78.
Hudson, P., Hall, C., Boughey, A., & Roulston, A. (2018). Bereavement support standards and bereavement care pathway for quality palliative care. Palliative & Supportive Care, 16(4), 375–387. https://doi.org/10.1017/S1478951517000451
Hudson, P., Kristjanson, L., Ashby, M., Kelly, B., Schofield, P., Hudson, R., Aranda, S., O’Connor, M., & Street, A. (2006). Desire for hastened death in patients with advanced disease and the evidence base of clinical guidelines: A systematic review. Palliative Medicine, 20, 693–701.
Hudson, R. (2014). Palliative care for the older person: Cloak or cover-up? Journal of Religion, Spirituality, & Aging, 26(2–3), 186–200.
Hudson, R., & O’Connor, M. (2007). Palliative care and aged care: A guide to practice. Ausmed Publications.
Ibrahim, J. (2018). Spotlight on the harsh reality of suicide in Australian nursing homes. Australian Nursing & Midwifery Journal, 25(9), 4.
Ibrahim, J. E., Bugeja, L., Willoughby, M., Bevan, M., Kipsaina, C., Young, C., Pham, T., & Ranson, D. L. (2017). Premature deaths of nursing home residents: An epidemiological analysis. Medical Journal of Australia, 206(10), 442–447.
Ilyich, I. (1976). Limits to medicine: The expropriation of health. Marion Boyars.
Jain, B., Kennedy, B., Bugeja, L. C., & Ibrahim, J. E. (2020). Suicide among nursing home residents: Development of recommendations for prevention using a nominal group technique. Journal of Aging & Social Policy, 32(2), 157–171.
Johnstone, M.-J. (2012). Bioethics, cultural differences and the problem of moral disagreements in end-of-life care: A terror management theory. Journal of Medicine and Philosophy, 37, 181–200.
Johnstone, M.-J. (2013). ‘Death with dignity’ – Doubts and demands. Australian Nursing and Midwifery Journal, 21(4), 26.
Joosten, M. (2016). A long time coming. Scribe.
Kidder, T. (1993). Old friends. Houghton Mifflin Company.
Kuhl, D. (2002). What dying people want. ABC Books.
Lewis, C. (1961). A grief observed. Faber and Faber.
Luther, M. (1956). Luther’s works (Vol. 13). Concordia Publishing House.
Murphy, B. J., Bugeja, L. C., Pilgrim, J. L., & Ibrahim, J. (2018). Suicide among nursing home residents in Australia: A national population-based retrospective analysis of medico-legal death investigation information. International Journal of Geriatric Psychiatry, 33(5), 786–796.
Neuhaus, R. (2000). Born toward dying. First Things, 100(February 2000), 15–22.
Nightingale, F. (1969). Notes on nursing: what it is, and what it is not. Dover Publications, inc. (First published by Appleton and Company in 1860).
Nuland, S. (1994). How we die: Reflections on life’s final chapter. Alfred A Knopf.
O’Connor, M., & Allison, M. (2020). Facilitating a good death in residential aged care settings, with support from community palliative care. Australian Nursing and Midwifery Journal, 26(10), 41.
Omori, M., Jayasuriya, J., Scherer, S., Dow, B., Vaughan, M., & Savvas, S. (2020). The language of dying: Communication about end-of-life in residential aged care. Death Studies, 1–11. https://doi.org/https://doi.org/10.1080/07481187.2020.1762263.
Palliative Care Australia, Alzheimer’s Australia, COTA Australia, Aged & Community Services Australia, Leading Aged Services Australia, Catholic Health Australia, & Aged Care guild. (2017). Principles for palliative and end-of-life care in residential aged care.
Parliament of Victoria. (1987). Inquiry into options for dying with dignity: Second and final report (19). Parliament of Victoria,.
Pilotlight Australia. (2007). Dying to know: Bringing death to life. Hardie Grant Books.
Radbruch, L., De Lima, L., Knaul, F., Wenk, R., Ali, Z., Bhatnaghar, S., Blanchard, C., Bruera, E., Buitrago, R., & Burla, C. (2020). Redefining palliative care–a new consensus-based definition. Journal of Pain and Symptom Management, 60(4), 754–764.
Raphael, B. (1994). The anatomy of bereavement. Jason Aronson, Incorporated.
Richmond, J (1990). Unpublished and paraphrased conference presentation.
Sanderson, C., Miller-Lewis, L., Rawlings, D., Parker, D., & Tieman, J. (2019). “I want to die in my sleep”-how people think about death, choice, and control: Findings from a massive open online course. Annals of Palliative Medicine, 1–9.
Smith, R. (2000). A good death. British Medical Journal, 320(7228), 129–130.
Somerville, M. (2017). The importance of stories in the euthanasia debate. Mercatornet.. https://mercatornet.com/the-importance-of-stories-in-the-euthanasia-debate/8888/
Sprung, C., Somerville, M., & Radbruch, L. (2018). Physician-assisted suicide and euthanasia: Emerging issues from a global perspective. Journal of Palliative Care, 33(4), 197–202.
Steinhauser, K., & Tulsky, J. (2015). Defining a ‘good death’. In N. Cherny , M. Fallon, S. Kaasa, R. Portenoy, & C. D (Eds.), Oxford textbook of palliative medicine (5th ed.). Oxford University Press. https://doi.org/10.1093/med/9780199656097.003.0008.
Stevens, J., McFarlane, J., & Stirling, K. (2000). Ageing and dying. In A. Kellehear (Ed.), Death & dying in Australia (pp. 173–189). Oxford University Press.
Testoni, I., Wieser, M. A., Kapelis, D., Pompele, S., Bonaventura, M., & Crupi, R. (2020). Lack of truth-telling in palliative care and its effects among nurses and nursing students. Behavioral Science, 10(5), 88.
Tisdale, S. (2019). Advice for future corpses (and those who love them): A practical perspective on death and dying. Gallery Books.
Tjernberg, J., & Bökberg, C. (2020). Older persons’ thoughts about death and dying and their experiences of care in end-of-life: A qualitative study. BMC Nursing, 19(1), 1–10.
Tolstoy, L. (1960). The death of Ivan Ilyich (R. Edmonds, Trans.). Penguin.
Wiersman, E., Marcella, J., McAnulty, J., & Kelley, M. (2019). ‘That just breaks my heart’: Moral concerns of direct care workers providing palliative care in LTC homes. Canadian Journal on Aging, 1–13.
Williams, S., Hwang, K., Watt, J., Batchelor, F., Gerber, K., Hayes, B., & Brijnath, B. (2020). How are older people’s care preferences documented towards the end of life? Collegian, 27(3), 313–318.
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Hudson, R. (2022). Death and Dying. In: Ageing in a Nursing Home. Springer, Cham. https://doi.org/10.1007/978-3-030-98267-6_6
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