Abstract
Many people with Prader-Willi syndrome (PWS) will face significant challenges and difficult decisions throughout their entire lives. Deciding on the appropriateness and type of residential supports is one of the most important considerations facing any person with the syndrome and their family. Guidance from family and significant others, research of options available from well-vetted and respected national sources, and seeking answers to probing questions will greatly assist with making the best decision possible. Long-term successful residential programs, equipped with the foundation to manage and support the unique needs of people with Prader-Willi syndrome, have continued to be developed. This chapter reviews each of the critical elements of a successful residential placement so that those seeking placement for their family member can be aware of the best practices and can be equipped to make sound educated choices.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
Similar content being viewed by others
References
Best Practice Guidelines for Standard of Care in PWS. In: Forster J, editor. Proceedings of the 2008 and 2009 PWS Caregivers’ conferences. IPWSO; 2010.
Norwood C. What questions should I ask? Cleveland: Center for Mental Retardation; 2002.
Author information
Authors and Affiliations
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2022 The Author(s), under exclusive license to Springer Nature Switzerland AG
About this chapter
Cite this chapter
Zicardi, M.K. (2022). Residential Care for Adults With Prader-Willi Syndrome. In: Butler, M.G., Lee, P.D.K., Whitman, B.Y. (eds) Management of Prader-Willi Syndrome. Springer, Cham. https://doi.org/10.1007/978-3-030-98171-6_16
Download citation
DOI: https://doi.org/10.1007/978-3-030-98171-6_16
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-030-98170-9
Online ISBN: 978-3-030-98171-6
eBook Packages: MedicineMedicine (R0)