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Educational Considerations for Children with Prader-Willi Syndrome

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Management of Prader-Willi Syndrome

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Abstract

Children with Prader-Willi syndrome (PWS) present unique characteristics, needs, and challenges to traditional educational environments. Providing an optimal education experience requires that parents, educators, related service providers and administrators be familiar with the unique and complex issues affecting the student with PWS so that they may better meet the educational needs of that student. This chapter provides an overview of the many and varied considerations involved in providing educational opportunities for students with PWS from infancy through adolescence. It delineates specific considerations associated with both chronological and developmental age and offers practical suggestions for maximizing the student’s educational experience. In addition, it provides information on current United States (US) federal legislation affecting children with disabilities, including the Individuals with Disabilities Act of 2004, known as IDEA 2004.

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References

  1. 20 U.S.C. §1400(d)(1).

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  2. 20 U.S.C. §6301.

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  3. 20 U.S.C. §1412(a)(3).

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  4. 20 U.S.C. §1412(a)(1)(A).

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  5. 20 U.S.C. §1435.

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  6. 20 U.S.C. §1432(4)(B).

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  7. 20 U.S.C. §1436.

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  8. 20 U.S.C. §1414(c)(1).

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  9. 20 U.S.C. §1414(d)(1)(A).

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Author information

Authors and Affiliations

  1. William and Mary College of Law Pele Clinic Special Education Advocacy Training, Williamsburg, VA, USA

    Stacy Ward

  2. Prader-Willi Syndrome Association | USA, Sarasota, FL, USA

    Stacy Ward & Evan Farrar

Authors
  1. Stacy Ward
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  2. Evan Farrar
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Corresponding author

Correspondence to Stacy Ward .

Editor information

Editors and Affiliations

  1. Departments of Psychiatry & Behavioral Sciences and Pediatrics, University of Kansas Medical Center, Kansas City, KS, USA

    Merlin G. Butler

  2. Department of Pediatrics, University of Texas Medical Branch, Galveston, TX, USA

    Phillip D. K. Lee

  3. Department of Pediatrics, Saint Louis University, St. Louis, MO, USA

    Barbara Y. Whitman

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© 2022 The Author(s), under exclusive license to Springer Nature Switzerland AG

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Ward, S., Farrar, E. (2022). Educational Considerations for Children with Prader-Willi Syndrome. In: Butler, M.G., Lee, P.D.K., Whitman, B.Y. (eds) Management of Prader-Willi Syndrome. Springer, Cham. https://doi.org/10.1007/978-3-030-98171-6_11

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  • DOI: https://doi.org/10.1007/978-3-030-98171-6_11

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  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-030-98170-9

  • Online ISBN: 978-3-030-98171-6

  • eBook Packages: MedicineMedicine (R0)

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