Abstract
Children with severe motor impairment often have complex communication disorders, which, in the absence of appropriate intervention, will influence their development and their participation in all aspects of life. Augmentative and alternative communication (AAC) intervention is based on the child’s potential rather than on their impairment. A multimodal general communication system (GCS) is needed, based on both the natural “unaided” means of communication and the use of “aided” communication tools. The GCS will need to be constantly adapted over time, according to the changes in the individual’s interpersonal communication and participation needs, in the different contexts of their everyday life education, employment, leisure time, independent living, etc. The AAC project, with the active involvement and approval of the person with complex communication needs (CCN), their family and caregivers, is implemented within the ICF participation model. A longitudinal approach to AAC intervention and its integration with the general rehabilitation project is necessary. Guidelines for the general assessment (communication, movement, language) and the different AAC intervention phases are described briefly, starting with communication in early childhood
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Notes
- 1.
AbleNet, Inc., Roseville, MN (USA), https://www.ablenetinc.com/
- 2.
Crick Software Ltd., Northampton (UK), https://www.cricksoft.com
- 3.
Widgit Software, Cubbington (UK), https://www.widgit.com
- 4.
Blissymbol Communication, Oxford (UK), http://www.blissymbols.co.uk
References
Arvedson JC, Brodsky L (2002) Pediatric swallowing and feeding: assessment and management. Singular Thomson Learning, Albany
ASHA (2004) American speech-language-hearing association—special interest division 12: augmentative and alternative communication—roles and responsibility of speech-language pathologist with respect to Augmentative and Alternative Communication. Technical Report—ASHA Supplement, vol 24
ASHA (2007) American speech-language-hearing association—ad hoc committee on childhood apraxia of speech—childhood apraxia of speech. https://www.asha.org/policy/tr2007-00278/
Baumgart D, Johnson J, Helmstetter E (1990) Augmentative and Alternative Communication systems for persons with moderate and severe disabilities. Paul H. Brookes Publishing Co., Baltimore
Beukelman DR, Light JC (2020) Augmentative and Alternative Communication; supporting children and adults with complex communication needs, 5th edn. Paul H. Brookes Publishing Co., Baltimore
Beukelman DR, Mirenda P (1988) Communication options for persons who cannot speak: assessment and evaluation. In: Coston CA (ed), Proceedings of the National Planners Conference on Assistive Device Service Delivery, Association for the Advanced of Rehabilitation Technology, Washington, DC, pp 151–165
Blackstone S (2010) Communication access for children: the role of augmentative and alternative communication technologies and strategies in pediatric rehabilitation. J Pediatr Rehabil Med 3(2010):247–250. https://doi.org/10.3233/PRM-2010-0145
Blackstone S, Hunt Berg M (2003) Social networks: a communication inventory for individuals with complex communication needs and their communication partners. Augmentative Communication Inc., Monterey
Blockberger S, Johnston J (2003) Grammatical morphology acquisition by children with complex communication needs. Augment Altern Commun 2003(19):207–221. https://doi.org/10.1080/07434610310001598233
Bloomberg K, Johnson H, West D (2004) InterAACtion: strategies for intentional and unintentional communicators, Communication Resource Centre, SCOPE. http://www.scopevic.org.au
Bloomberg K, West D, Johnson H, Iacono T (2009) The triple C: checklist of communication competence—revised. Victoria, Australia, Scope Communication Resource Centre
Bolton S, Dashiell S (1991) Interaction checklist for augmentative communication—revised ed. PRO-ED, Austin
Brady NC, Bruce S, Goldman A, Erickson K, Mineo B, Ogletree BT, Paul D, Romski M, Sevcik R, Siegel E, Schoonover J, Snell M, Sylvester L, Wilkinson K (2016) Communication services and supports for individuals with severe disabilities: guidance for assessment and intervention. Am J Intellect Dev Disabil 2016:121,121–121,138. https://doi.org/10.1352/1944-7558-121.2.121
Butterworth G, Cochran E (1980) Towards a mechanism of joint visual attention in human infancy. Int J Behav Dev 1980(3):253–272. https://doi.org/10.1177/016502548000300303
Chomsky N (1965) Aspects of the theory of syntax. M.I.T. Press, Cambridge
Costigan FA, Light J (2011) Functional seating for school-age children with cerebral palsy: an evidence-based tutorial. Lang Speech Hear Serv Sch 2011:42. https://doi.org/10.1044/0161-1461(2010/10-0001)
Cress CJ, Marvin C (2003) Common questions about AAC services in early intervention. Augment Altern Commun 19(4):254–272. https://doi.org/10.1080/07434610310001598242
Curry SK, Robinson NB (2010) Assistive technology for young children. Paul Brookes Publishing
Darley FL, Aronson AE, Brown JR (1975) Motor speech disorders. Saunders, Philadelphia
Duffy JR (2013) Motor speech disorders: substrates, differential diagnosis, and management, 3rd edn. Elsevier Mosby, St. Louis
Giannoni P, Zerbino L (2000) Fuori schema. Chap. 9. Springer, pp 273–286
Goossens’ C (1989) Aided communication intervention before assessment; a case study of a child. Augment Altern Commun 1989(5):14–26. https://doi.org/10.1080/07434618912331274926
Goossens’ C, Crain S (1992) Utilizing switch interfaces with children who are severely physically challenged. Pro-Ed Inc.
Goossens’ C, Crain S, Elder P (1992) Engineering the preschool environment for interactive symbolic communication. Southeast Augmentative Communication Conference Publications
Hayden DA (2004) PROMPT: a tactually grounded treatment approach to speech production disorders. In: Stockman I (ed) Movement and action in learning and development: clinical implications for pervasive developmental disorders. Elsevier, San Diego, pp 255–297
Higginbotham DJ, Shane H, Russel S, Caves K (2007) Access to AAC: present, past and future. Augment Altern Commun 2007(23):243–257. https://doi.org/10.1080/07434610701571058
Hill KJ, Romich BA (2006) AAC evidence-based clinical practice: a model for success. http://www.aacinstitute.org/Resources/Press/EBPpaper/EBPpaper.html
Hustad KC, Gorton K, Lee J (2010) Classification of speech and language profiles in 4-year-old children with cerebral palsy: a prospective preliminary study. J Speech Lang Hear Res 2010(53):1496–1513. https://doi.org/10.1044/1092-4388(2010/09-0176)
Iacono T, Carter M, Hook J (1998) Identification of intentional communication in students with severe and multiple disabilities. Augment Altern Commun 1998(14):102–114. https://doi.org/10.1080/07434619812331278246
Kent RD (2004) Models of speech motor control: implications from recent developments in neurophysiological and neurobehavioral science. In: Maassen B, Kent R, Peters H, Van Lieshout P, Wouther H (eds) Speech motor control in normal and disordered speech. Oxford University Press, pp 3–28
Kent Walsh JE, McNaughton D (2005) Communication Partner Instruction in AAC: present practices and future directions. Augment Altern Commun 2005(21):195–204. https://doi.org/10.1080/07434610400006646
Light J (1989) Toward a definition of communicative competence for individuals using Augmentative and Alternative Communication systems. Augment Altern Commun 1989(5):137–144. https://doi.org/10.1080/07434618912331275126
Light J (1997) “Let’s go star fishing”: reflections on the context of language learning for children who use aided AAC. Augment Altern Commun 1997(13):158–171. https://doi.org/10.1080/07434619712331277978
Light J, Gulens M (2000) Rebuilding communicative competence and self-determination. In: Beukelman, Yorkston, Reichle (eds) Augmentative and Alternative Communication for adults with acquired neurological disorders. Paul H. Brookes, Baltimore, pp 137–179
Light J, McNaughton D (2014) Communicative competence for individuals who require Augmentative and Alternative Communication: a new definition for a new era? Augment Altern Commun 30:1–18. https://doi.org/10.3109/07434618.2014.885080
Light J, Parsons AR, Drager K (2002) “There’s more to life than cookies”: developing interactions for social closeness with beginning communicators who use AAC. In: Reichle, Beukelman (eds) Light. Exemplary practice for beginning communicators: implications for AAC. Paul Brookes Publishing
Lindsay P (1989) Literacy and the disabled: an unfilled promise or the impossible dream? Presentation at the Pacific Conference on Technology in Education and Rehabilitation. Vancouver, Canada
Lowit A, Kent R (2010) Assessment of motor speech disorders. Plural Publishing, San Diego
Lund S, Light S (2007) Long-term outcome for individual who use augmentative and alternative communication: part III. Contributing factors. Augment Altern Commun 2007(23):323–335. https://doi.org/10.1080/02656730701189123
McNaughton D, Balandin S et al (2010) Health transitions for youth with complex communication needs: the importance of health literacy and communication strategies. J Pediatr Rehabil Med 2010(3):311–318. https://doi.org/10.3233/PRM-2010-0143
McNeil M (2008) Clinical management of sensorimotor speech disorders. Thieme, New York
Millar S, Aitken S (2003) Personal communication passports: guidelines for good practice. Call Centre ed.
Millar DC, Light JC, Schlosser RW (2006) The impact of Augmentative and Alternative Communication intervention on the speech production of individuals with developmental disabilities. Journal of Speech. Lang Hear Res 2006(49):248–264. https://doi.org/10.1044/1092-4388(2006/021)
Mirenda P, Mathy-Laikko P (1989) Augmentative and Alternative Communication applications for persons with severe congenital communication disorders: an introduction. Augment Altern Commun 1989(5):3–13. https://doi.org/10.1080/07434618912331274916
Mirenda P, Iacono T, William R (1990) Communication options for persons with severe and profound disabilities: state of art and future directions. J Assoc Pers Sev Handicaps 15:3–21. https://doi.org/10.1177/154079699001500102
Moore SL, (2007) David H. Rose, Anne Meyer, Teaching Every Student in the Digital Age: Universal Design for Learning, Education Tech Research Dev 55, 521–525 (2007), https://doi.org/10.1007/s11423-007-9056-3 (2007).
Musselwhite C (1986) Adaptive play for special needs children. College Hill, San Diego
National Joint Committee for the Communication Needs of Persons with Severe Disability (USA) (1992) Communication Bill of Rights—guidelines for meeting the communication needs of persons with severe disabilities. Asha 34(Suppl 7):2–3
National Joint Committee for the Communication Needs of Persons with Severe Disability (USA) (2016) Communication Bill of Rights (revised) in Brady et al. (2016) Communication services and supports for individual with severe disabilities. Am J Intellect Dev Disabil 121:121–138. https://doi.org/10.1352/1944-7558-121.2.121
Netsell R (1986) A neurobiologic view of speech production and the dysarthrias. College-Hill Press, San Diego
Netsell R (2001) Speech aeromechanics and the dysarthrias: implications for children with traumatic brain injury. J Head Trauma Rehabil 2001(16):415–425. https://doi.org/10.1097/00001199-200110000-00002
Nip ISB, Green JR, Marx DB (2011) The co-emergence of cognition, language and speech motor control in early development: a longitudinal correlation study. J Commun Disord 2011(44):149–160. https://doi.org/10.1016/j.jcomdis.2010.08.002
Odding E, Roebroeck ME, Stam HJ (2006) The epidemiology of cerebral palsy: incidence, impairments and risk factors. Disabil Rehabil 2006(28):183–191. https://doi.org/10.1080/09638280500158422
Paul R and Norbury F (2012) Language Disorders from Infancy through Adolescence, Listening, Speaking, Reading, Writing, and Communicating, 4th Edition, C.V.Mosby Co. Publ.
Pellegrino L (2002) Cerebral palsy. In: Bastshaw ML (ed) Children with disabilities, 5th edn. Paul H Brookes, Baltimore, pp 443–466
Pennington L, Miller N, Robson S, Steen N (2010) Intensive speech and language therapy for older children with cerebral palsy: a systems approach. Dev Med Child Neurol 2010(52):337–344. https://doi.org/10.1111/j.1469-8749.2009.03366.x
Pepper J, Weitzman E (2004) It takes two to talk. A practical guide for parents of children with language delay. The Hanen Program
Raghavendra P, Bornman J, Granlund ME, Björck-Ändersson E (2007) The World Health Organization’s International Classification of Functioning, Disability and Health: implications for clinical and research practice in the field of Augmentative and Alternative Communication. Augment Altern Commun 2007(23):349–361. https://doi.org/10.1080/07434610701650928
Riecker A, Mathiak K, Wildgruber D, Erb M, Hertrich I, Grodd W, Ackermann H (2005) fMRI reveals two distinct cerebral networks subserving speech motor control. Neurology 2005(64):700–706. https://doi.org/10.1212/01.WNL.0000152156.90779.89
Romski M, Sevcik R (1988) Augmentative communication system acquisition and use: a model for teaching and assessing progress. NSSLHA J 1988(16):61–74
Romski M, Sevcik R, Adamson L (1997) Framework for studying how children with developmental disabilities develop language through augmented means. Augment Altern Commun 1997(13):172–178. https://doi.org/10.1080/07434619712331277988
Romski M, Sevcik R, Barton-Hulsey A, Whitmore AS (2015) Early intervention and AAC: what a difference 30 years makes. Augment Altern Commun 31(3):181–202. https://doi.org/10.3109/07434618.2015.1064163
Rose D, Universal Design for Learning, J of Special Ed Tech, March 1, 2000, https://doi.org/10.1177/016264340001500208 (2000).
Rowland C (2004) Communication matrix. Oregon Health and Science University, Portland
Schindler O (1990) Morbidity, epidemiology and systems analysis in phoniatrics: introduction, literature, updating. Folia Phoniatr Logop 1990(43):320–326. https://doi.org/10.1159/000266089
Schlosser R, Lee O (2000) Promoting generalization and maintenance in augmentative and alternative communication: a meta-analysis of 20 years of effectiveness research. Augment Altern Commun 2000(16):208–227. https://doi.org/10.1080/07434610012331279074
Sevcik R, Romski M (1997) Comprehension and language acquisition: evidence from youth with severe cognitive disabilities. In: Adamson, Romsky (eds) Communication and language acquisition: discoveries from atypical development. Paul Brookes Publishing
Sevcik R, Romski M (2002) The role of language comprehension in establishing early augmented conversations. In Reichle, Beukelman, Light (eds) Exemplary Practice for Beginning Communicators: implications for AAC—Paul Brookes Publishing
Siegel E, Cress J (2002) Overview of the emergence of early AAC behaviors: progression from communicative to symbolic skills. In: Reichle, Beukelman, Light (eds) Exemplary Practice for Begininng Communicators: implications for AAC. Paul Brookes Publishing, pp 25–57
Siegel E, Wetherby A (2000) Non symbolic communication. In: Snell ME, Brown F (eds) Instruction of students with severe disabilities, 5th edn. Merrill/Prentice-Hall, Upper Saddle River, pp 409–451
Silverman F (1995) Communication for the speechless, 3rd edn. Needham Heighs, MA, Allyn and Bacon
Smeybe H (1990) A theoretical basis for early communication intervention. Paper presented at the fifth biennial conference of the ISAAC, Stockholm
Smith A, Goffman L (2004) Interaction of motor and language factors in the development of speech production. In: Maassen B, Kent R, Peters H, Van Lieshout P, Wouther H (eds) Speech motor control in normal and disordered speech. Oxford University Press, pp 225–252
Snell M (2002) Using dynamic assessment with learners who communicate non symbolically. Augment Altern Commun 2002:18,163–18,172. https://doi.org/10.1080/07434610212331281251
Soto G, Zangari C (2009) Practically speaking: language, literacy and academic development of students with AAC needs. Paul Brookes Publishing
Swigert NB (2010) The source for dysarthria, 2nd edn. Pro-Ed., Austin
Utley BL (2002) Visual assessment consideration for the design of AAC systems. In: Reichle, Beukelman, Light (eds) Exemplary practice for beginning communicators: implications for AAC—Paul Brookes Publishing
Williams B (2000) More than exception to the rule. In: Fried-Oken, Bersani (eds) Speaking up and spelling it out: personal essays on augmentative and alternative communication. Paul H. Brookes Publishing Co., Baltimore
World Health Organization (WHO) (2001) The international classification of functioning, disability and health (ICF). World Health Organization, Geneva
World Health Organization (WHO) (2007) The international classification of functioning, disability and health; children and youth version (ICF CY). World Health Organization, Geneva
Yogi H, Alves LAC, Guedes R, Ciamponi AL (2018) Determinant factors of malocclusion in children and adolescents with cerebral palsy. Am J Orthod Dentofac Orthop 154(3):405–411. https://doi.org/10.1016/j.ajodo.2017.11.042
York J, Weimann G (1991) Accommodate severe physical disabilities. In: Reichle, York, Sigafoos (eds) Implementing augmentative and alternative communication: strategies for learners with severe disabilities. Paul H. Brookes Publishing Co., Baltimore
Zabala J (1993) The SETT framework. Closing the Gap 2005(23):6
Zangari C, Lloyd LL, Vicker B (1994) Augmentative and Alternative Communication: an historic perspective. Augment Altern Commun 1994(10):27–59. https://doi.org/10.1080/07434619412331276740
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Veruggio, G., Panella, M. (2022). Augmentative and Alternative Communication in Severe Motor Impairment. In: Giannoni, P., Zerbino, L. (eds) Cerebral Palsy. Springer, Cham. https://doi.org/10.1007/978-3-030-85619-9_12
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