Wright, B.A., Physical disability – a psychological approach. 1960.
CrossRef
Google Scholar
People with AIDS Advisory Committee. The Denver principles, vol. 20. Statement from the People with AIDS Advisory Committee; 1983. p. 2019.
Google Scholar
Institute of Medicine. Best care at lower cost: the path to continuously learning health care in America. Committee on the Learning Health Care System; 2013.
Google Scholar
Pomey M, et al. Le partenariat de soins et de services: une voix/voie pour donner un sens à la loi 10?(2015). Le point en administration de la santé. 2015;11(1):38–42.
Google Scholar
Carman KL, et al. Patient and family engagement: a framework for understanding the elements and developing interventions and policies. Health Aff. 2013;32(2):223–31.
CrossRef
Google Scholar
U.S. Department of Health and Human Services FDA Center for Drug Evaluation and Research, et al. Guidance for industry: patient-reported outcome measures: use in medical product development to support labeling claims: draft guidance. Health Qual Life Outcomes. 2006;4:1–20.
CrossRef
Google Scholar
Hsieh C-K, et al. Lifestreams: a modular sense-making toolset for identifying important patterns from everyday life. In Proceedings of the 11th ACM Conference on Embedded Networked Sensor Systems. 2013.
Google Scholar
Use, C.f.M.P.f.H. Reflection paper on the regulatory guidance for the use of health-related quality of life (HRQL) measures in the evaluation of medicinal products. London: European Medicines Agency; 2005.
Google Scholar
Food and Drug Administration. Qualification process for drug development tools guidance for industry and FDA staff. 2014.
Google Scholar
Bourgeois J, et al. Harvesting green miles from my roof: an investigation into self-sufficient mobility with electric vehicles. In Proceedings of the 2015 ACM International Joint Conference on Pervasive and Ubiquitous Computing. 2015.
Google Scholar
Gnanasakthy A, et al. A review of patient-reported outcome labeling in the United States (2011–2015). Value Health. 2017;20(3):420–9.
CrossRef
Google Scholar
Gnanasakthy A, et al. A review of patient-reported outcome labels in the United States: 2006 to 2010. Value Health. 2012;15(3):437–42.
CrossRef
Google Scholar
Promadej-Lanier N, et al. Development and evaluation of a vaginal ring device for sustained delivery of HIV microbicides to non-human primates. J Med Primatol. 2009;38(4):263–71.
CrossRef
Google Scholar
Mayo NE, et al. Montreal accord on Patient-Reported Outcomes (PROs) use series – paper 2: terminology proposed to measure what matters in health. J Clin Epidemiol. 2017;89:119–24.
CrossRef
Google Scholar
Higginson IJ, Carr AJ. Measuring quality of life: using quality of life measures in the clinical setting. BMJ. 2001;322(7297):1297–300.
CrossRef
Google Scholar
Jacobsen PB, Davis K, Cella D. Assessing quality of life in research and clinical practice. Oncology (Williston Park). 2002;16(9 Suppl 10):133–9.
Google Scholar
Basch E, et al. Patient-reported outcomes in cancer drug development and US regulatory review: perspectives from industry, the Food and Drug Administration, and the patient. JAMA Oncol. 2015;1(3):375–9.
CrossRef
Google Scholar
Weigold A, Weigold IK, Russell EJ. Examination of the equivalence of self-report survey-based paper-and-pencil and internet data collection methods. Psychol Methods. 2013;18(1):53–70.
CrossRef
Google Scholar
Coons SJ, et al. Capturing patient-reported outcome (PRO) data electronically: the past, present, and promise of ePRO measurement in clinical trials. Patient-Patient-Cent Outcomes Res. 2015;8(4):301–9.
CrossRef
Google Scholar
Ivry RB, Keele SW. Timing functions of the cerebellum. J Cogn Neurosci. 1989;1(2):136–52.
CrossRef
Google Scholar
Wilson EV. Patient-centered e-health. IGI Global; 2008.
Google Scholar
Andrews C. Social media recruitment. Appl Clin Trials. 2012;21(11):32.
Google Scholar
Centers for Disease Control and Prevention. CDC social media tools guidelines and best practices, 2010. Available at: http://www.cdc.gov/SocialMedia/Tools/guidelines/. Accessed 2 Apr 2010.
De Martino I, et al. Social media for patients: benefits and drawbacks. Curr Rev Musculoskelet Med. 2017;10(1):141–5.
CrossRef
Google Scholar
Comité sur les pratiques collaboratives et la formation interprofessionnelle. Guide d’implantation du partenariat de soins et de services, vers une collaboration optimale entre intervenants et avec le patient. 2013. Montréal, QC: Réseau universitaire integré de santé (RUIS) de l’Université de Montréal.
Google Scholar
Pomey, M.-P. and L. Paule, Patient Engagement: The Quebec Path (Commentary). HealthcarePapers. 2016;16(2):80–5.
Google Scholar