Abstract
Melander uses the increasingly debated disease endometriosis as an example to explore ongoing processes of negotiating a disease in unfolding forum interactions. Methodologically, the chapter explores a possible combination of discourse analytical tools with concepts from Actor-Network Theory, which more distinctly emphasize the unfolding practices, and ties the ongoing societal process to concrete linguistic practice. As the analysis demonstrates, the interlocutors make use of various shifts between general and particular aspects of the disease, most often represented by personal experiences. Such personal narratives can strengthen a claim put forward, as well as nuance and broaden the disease category. Melander also demonstrates the more or less established prerequisites that underline the interactions, thus pointing to the possible ways of discussing illness experiences in the forum.
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The questions marks are most likely a typing error, with quotations marks as the intended punctuation marks. The original website text uses quotation marks.
References
Ballard, Karen, Karen Lowton, and Jeremy Wright. 2006. What’s the delay? A qualitative study of women’s experiences of reaching a diagnosis of endometriosis. Fertility and Sterility 86 (5): 1296–1301.
Barker, Kristin K. 2008. Electronic support groups, patient-consumers, and medicalization: The case of contested illness. Journal of Health and Social Behavior 49 (1): 20–36.
Benwell, Bethan, and Elizabeth Stokoe. 2006. Discourse and Identity. Edinburgh: Edinburgh University Press.
Billig, Michael. 1985. Prejudice, categorization and particularization: From a perceptual to a rhetorical approach. European Journal of Social Psychology 15 (1): 79–103.
Billig, Michael. 1996. Arguing and Thinking: A Rhetorical Approach to Social Psychology. Cambridge: Cambridge University Press.
Briggs, Charles L. 2005. Communicability, racial discourse, and disease. Annual Review of Anthropology 34: 269–291.
Bury, Mike. 2001. Illness narratives: Fact or fiction? Sociology of Health & Illness 23 (3): 263–285.
Callon, Michel, and Bruno Latour. 1981. Unscrewing the big Leviathan: How actors macro-structure reality and how sociologists help them to do so. In Advances in Social Theory and Methodology: Toward an Integration of Micro-and Macro-Sociologies, ed. Karin Knorr and Aaron Cicourel, 277–303. London: Routledge & Kegan Paul.
Conrad, Peter, Julia Bandini, and Alexandria Vasquez. 2016. Illness and the internet: From private to public experience. Health 20 (1): 22–32.
Edwards, Derek. 1991. Categories are for talking: On the cognitive and discursive bases of categorization. Theory & Psychology 1 (4): 515–542.
Edwards, Derek. 2014. Rhetoric, cognition and discursive psychology. In Rhetoric, Ideology and Social Psychology: Essays in Honour of Michael Billig, ed. Charles Antaki and Susan Condor, 29–42. London: Routledge.
Fairclough, Norman. 1992. Discourse and Social Change. Cambridge: Polity.
Fox, Nick J., Katie J. Ward, and Alan J. O’Rourke. 2005a. The ‘expert patient’: Empowerment or medical dominance? The case of weight loss, pharmaceutical drugs and the internet. Social Science & Medicine 60 (6): 1299–1309.
Fox, Nick, Katie Ward and Alan O'Rourke. 2005b. Pro‐anorexia, weight‐loss drugs and the internet: An ‘anti‐recovery’ explanatory model of anorexia. Sociology of Health & Illness 27 (7): 944–971.
Hagren Idevall, Karin. 2015. Punktualiseringar av islam, muslimer, svenskar och det svenska samhället: Diskriminering och privilegiering i kommentarsfältsdiskussioner. [Punctualizations of Islam, Moslems, Swedes and the Swedish society: Discrimination and privileging in comments sections]. In Från social kategorisering till diskriminering. Fyra studier av språk och diskriminering och ett modellförslag, ed. Mats Landqvist, 41–71. Huddinge: Södertörn University.
Hamilton, Mary. 2011. Unruly practices: What a sociology of translations can offer to educational policy analysis. Educational Philosophy and Theory 43 (S1): 55–75.
Hanell, Linnea, and Linus Salö. 2017. Nine months of entextualizations. Discourse and knowledge in an online discussion forum thread for expectant parents. In Entangled Discourses: South-North Orders of Visibility, ed. Caroline Kerfoot and Kenneth Hyltenstam, 154–170. New York: Routledge.
Laclau, Ernesto. 1990. New Reflections on the Revolution of Our Time. London: Verso.
Latour, Bruno. 1999. On recalling ANT. In Actor Network Theory and After, ed. John Law and John Hassard, 15–25. Oxford: Blackwell.
Latour, Bruno. 2005. Reassembling the Social: An Introduction to Actor-Network-Theory. Oxford: University Press.
Law, John. 1992. Notes on the theory of the actor-network: Ordering, strategy, and heterogeneity. System Practice 5 (4): 379–393.
Lee, Mihan. 2017. Don’t give up! A cyber-ethnography and discourse analysis of an online infertility patient forum. Culture, Medicine, and Psychiatry 41 (3): 341–367.
Markham, Annette, and Elizabeth Buchanan. 2012. Ethical decision-making and internet research: Recommendations from the AoIR ethics working Committee (Version 2.0). https://aoir.org/reports/ethics2.pdf. (15 December‚ 2017.)
Michael, Mike. 1996. Constructing Identities: The Social, the Nonhuman and Change. London: Sage.
Morrow, Phillip R. 2006. Telling about problems and giving advice in an Internet discussion forum: Some discourse features. Discourse Studies 8 (4): 531–548.
Orvesto Internet. 2018. https://www.kantarsifo.se/rapporter-undersokningar/rackviddsmatningar/orvesto-internet. (10 July, 2018.)
Pomerantz, Anita. 1986. Extreme case formulations: A way of legitimizing claims. Human Studies 9 (2–3): 219–229.
Räisänen, Christine, and Anneli Linde. 2004. Technologizing discourse to standardize projects in multi-project organizations: Hegemony by consensus? Organization 11 (1): 101–121.
Stommel, Wyke, and Tom Koole. 2010. The online support group as a community: A micro-analysis of the interaction with a new member. Discourse Studies 12 (3): 357–378.
Stommel, Wyke, and Joyce Lamerichs. 2017. Interaction in online support groups: Advice and beyond. In The Routledge Handbook of Language and Health Communication, ed. Heidi Ehernberger Hamilton and Wen-ying Sylvia Chou, 198–211. Abingdon, Oxon: Routledge.
van Leeuwen, Theo. 2008. Discourse and Practice: New Tools for Critical Discourse Analysis. Oxford: Oxford University Press.
von Rohr, Marie-Thérèse Rudolf, Franziska Thurnherr, and Miriam A. Locher. 2019. Linguistic expert creation in online health practices. In Analyzing Digital Discourse. New Insights and Future Directions, ed. Patricia Bou-Franch and Pilar Blitvich Garcés-Conejos, 219–250. Cham: Palgrave MacMillan.
Whelan, Emma. 2007. ‘No one agrees except for those of us who have it’: Endometriosis patients as an epistemological community. Sociology of Health & Illness 29 (7): 957–982.
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Melander, I. (2021). Illness Negotiations and the Particular: Exploring Online Forum Interactions About Endometriosis. In: Johansson, M., Tanskanen, SK., Chovanec, J. (eds) Analyzing Digital Discourses. Palgrave Macmillan, Cham. https://doi.org/10.1007/978-3-030-84602-2_12
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