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Insiders and Outsiders: A Case Study of Fostering Research Partnerships Between Academic Health Centers and Corrections Institutions

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Broadly Engaged Team Science in Clinical and Translational Research

Abstract

Hepatitis C is a blood-borne viral infection which can lead to liver disease and death. In 2013, an effective, well-tolerated, short-course oral treatment for hepatitis C was approved by the FDA. Despite widespread dissemination of curative hepatitis C virus (HCV) treatment in the community, HCV treatment in the corrections system has lagged behind with only 1% of people infected with HCV who are incarcerated in prisons and jails receiving treatment. A literature review revealed that most of the discussions about increasing HCV testing and treatment access in jails did not adequately reflect the views of crucial stakeholders—county sheriffs and correctional administrators. In this chapter, we discuss the development of partnerships with correctional administrators and the successful award of funding aimed at improving HCV testing and treatment access for correctional populations. We also describe the Stakeholder Framework we used in our research, as well as the lessons we learned in gathering these different perspectives.

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Notes

  1. 1.

    Merriam Webster defines prisons as “an institution (such as one under state jurisdiction) for confinement of persons convicted of serious crimes” and jail is “such a place under the jurisdiction of a local government (such as a county) for the confinement of persons awaiting trial or those convicted of minor crimes.”

References

  1. Barua S, Greenwald R, Grebely J, Dore GJ, Swan T, Taylor LE (2015) Restrictions for medicaid reimbursement of Sofosbuvir for the treatment of hepatitis C virus infection in the United States. Ann Intern Med 163(3):215–223. https://doi.org/10.7326/M15-04062

    Article  PubMed  Google Scholar 

  2. Beckman AL, Bilinski A, Boyko R et al (2016) New hepatitis C drugs are very costly and unavailable to many state prisoners. Health Aff (Millwood) 35(10):1893–1901

    Article  Google Scholar 

  3. Massachusetts Cultural Resource Information System. http://mhc-macris.net/Details.aspx?MhcId=BRN.78

  4. Barnes HE (1921) The historical origin of the prison system in America. J Am Inst Crim Law Criminol 12(1):35–60. https://doi.org/10.2307/1133652

    Article  Google Scholar 

  5. Dumont DM, Gjelsvik A, Redmond N, Rich JD (2013) Jails as public health partners: incarceration and disparities among medically underserved men. Int J Mens Health 12(3):213–227. https://doi.org/10.3149/jmh.1203.213

    Article  PubMed  PubMed Central  Google Scholar 

  6. Rich JD, Wakeman SE, Dickman SL (2011) Medicine and the epidemic of incarceration in the United States. N Engl J Med 364(22):2081–2083. https://doi.org/10.1056/NEJMp1102385

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  7. Glaser JB, Greifinger RB (1993) Correctional health care: a public health opportunity. Ann Intern Med 118(2):139–145. https://doi.org/10.7326/0003-4819-118-2-199301150-00010

    Article  CAS  PubMed  Google Scholar 

  8. (1976) Estelle v. Gamble. 429 U.S. 97

    Google Scholar 

  9. Reverby SM (2019) Can there be acceptable prison health care? Looking back on the 1970s. Public Health Rep 134(1):89–93. https://doi.org/10.1177/0033354918805985

    Article  PubMed  Google Scholar 

  10. Comfort N (2009) The prisoner as model organism: malaria research at Stateville Penitentiary. Stud Hist Phil Biol Biomed Sci 40(3):190–203. https://doi.org/10.1016/j.shpsc.2009.06.007

    Article  Google Scholar 

  11. Hornblum AM (1999) Ethical lapses in dermatologic “research”. Arch Dermatol 135(4):383–385. https://doi.org/10.1001/archderm.135.4.383

    Article  CAS  PubMed  Google Scholar 

  12. Protection of Human Subjects (2009). 45, vol 46. Office for Human Research Protections

    Google Scholar 

  13. Lerner BH (2007) Subjects or objects? Prisoners and human experimentation. N Engl J Med 356(18):1806–1807. https://doi.org/10.1056/NEJMp068280

    Article  CAS  PubMed  Google Scholar 

  14. Bach-y-Rita G (1974) The prisoner as an experimental subject. JAMA 229(1):45–46. https://doi.org/10.1001/jama.1974.03230390021016

    Article  CAS  PubMed  Google Scholar 

  15. Hodges RE, Bean WB (1967) The use of prisoners for medical research. JAMA 202(6):513–515

    Article  CAS  Google Scholar 

  16. Farmer P, Campos NG (2004) Rethinking medical ethics: a view from below. Dev World Bioeth 4(1):17–41. https://doi.org/10.1111/j.1471-8731.2004.00065.x

    Article  PubMed  Google Scholar 

  17. Charles A, Draper H (2012) ‘Equivalence of care’ in prison medicine: is equivalence of process the right measure of equity? J Med Ethics 38(4):215–218. https://doi.org/10.1136/medethics-2011-100083

    Article  PubMed  Google Scholar 

  18. Collins A, Baumgartner D, Henry K (1995) U.S. prisoners’ access to experimental HIV therapies. Minn Med 78(11):45–48

    CAS  PubMed  Google Scholar 

  19. Dubler NN, Sidel VW (1989) On research on HIV infection and AIDS in correctional institutions. Milbank Q 67(2):171–207

    Article  CAS  Google Scholar 

  20. Potler C (1988) AIDS in prison: a crisis in New York State corrections. Correctional Association of New York, New York

    Google Scholar 

  21. Dubler NN, Bergmann CM, Frankel ME, New York State AACAHCoAiCF (1990) Management of HIV infection in New York State prisons. Columbia Human Rights Law Rev 21(2):363–400

    PubMed  Google Scholar 

  22. Vlahov D, Brewer F, Munoz A, Hall D, Taylor E, Polk BF (1989) Temporal trends of human immunodeficiency virus type 1 (HIV-1) infection among inmates entering a statewide prison system, 1985-1987. J Acquir Immune Defic Syndr 2(3):283–290

    CAS  PubMed  Google Scholar 

  23. Dondero TJ Jr, Pappaioanou M, Curran JW (1988) Monitoring the levels and trends of HIV infection: the Public Health Service’s HIV surveillance program. Public Health Rep 103(3):213–220

    PubMed  PubMed Central  Google Scholar 

  24. Binswanger IA, Stern MF, Deyo RA, Heagerty PJ, Cheadle A, Elmore JG, Koepsell TD (2007) Release from prison – a high risk of death for former inmates. N Engl J Med 356(2):157–165. https://doi.org/10.1056/NEJMsa064115

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  25. Springer SA, Qiu J, Saber-Tehrani AS, Altice FL (2012) Retention on buprenorphine is associated with high levels of maximal viral suppression among HIV-infected opioid dependent released prisoners. PLoS One 7(5):e38335. https://doi.org/10.1371/journal.pone.0038335

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  26. Kim AY, Nagami EH, Birch CE, Bowen MJ, Lauer GM, McGovern BH (2013) A simple strategy to identify acute hepatitis C virus infection among newly incarcerated injection drug users. Hepatology 57(3):944–952. https://doi.org/10.1002/hep.26113

    Article  PubMed  Google Scholar 

  27. McGovern BH, Wurcel A, Kim AY, Schulze zur Wiesch J, Bica I, Zaman MT, Timm J, Walker BD, Lauer GM (2006) Acute hepatitis C virus infection in incarcerated injection drug users. Clin Infect Dis 42(12):1663–1670. https://doi.org/10.1086/504327

    Article  PubMed  Google Scholar 

  28. Spaulding AC, Anderson EJ, Khan MA, Taborda-Vidarte CA, Phillips JA (2017) HIV and HCV in U.S. prisons and jails: the correctional facility as a bellwether over time for the community’s infections. AIDS Rev 19(3):134–147

    Article  Google Scholar 

  29. He T, Li K, Roberts MS, Spaulding AC, Ayer T, Grefenstette JJ, Chhatwal J (2016) Prevention of hepatitis C by screening and treatment in U.S. prisons. Ann Intern Med 164(2):84–92. https://doi.org/10.7326/M15-0617

    Article  PubMed  Google Scholar 

  30. Nguyen JT, Rich JD, Brockmann BW, Vohr F, Spaulding A, Montague BT (2015) A budget impact analysis of newly available hepatitis C therapeutics and the financial burden on a state correctional system. J Urban Health 92(4):635–649. https://doi.org/10.1007/s11524-015-9953-4

    Article  PubMed  PubMed Central  Google Scholar 

  31. Sanger-Katz M (2014) Why the hepatitis cure Solvaldi is a budgetary disaster for prisons. The New York Times, p 3

    Google Scholar 

  32. Wildeman C, Wang EA (2017) Mass incarceration, public health, and widening inequality in the USA. Lancet 389(10077):1464–1474. https://doi.org/10.1016/S0140-6736(17)30259-3

    Article  PubMed  Google Scholar 

  33. Crowley D, Van Hout MC, Murphy C, Kelly E, Lambert JS, Cullen W (2018) Hepatitis C virus screening and treatment in Irish prisons from a governor and prison officer perspective - a qualitative exploration. Health Justice 6(1):23. https://doi.org/10.1186/s40352-018-0081-6

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  34. Khaw FM, Stobbart L, Murtagh MJ (2007) ‘I just keep thinking I haven’t got it because I’m not yellow’: a qualitative study of the factors that influence the uptake of hepatitis C testing by prisoners. BMC Public Health 7:98. https://doi.org/10.1186/1471-2458-7-98

    Article  PubMed  PubMed Central  Google Scholar 

  35. Ly W, Cocohoba J, Chyorny A, Halpern J, Auerswald C, Myers J (2018) Perspectives on integrated HIV and hepatitis C virus testing among persons entering a Northern California jail: a pilot study. J Acquir Immune Defic Syndr 78(2):214–220. https://doi.org/10.1097/QAI.0000000000001664

    Article  PubMed  Google Scholar 

  36. Lafferty L, Rance J, Grebely J, Lloyd AR, Dore GJ, Treloar C, Group ST-CS (2018) Understanding facilitators and barriers of direct-acting antiviral therapy for hepatitis C virus infection in prison. J Viral Hepat 25(12):1526–1532. https://doi.org/10.1111/jvh.12987

    Article  PubMed  Google Scholar 

  37. Jack K, Islip N, Linsley P, Thomson B, Patterson A (2017) Prison officers’ views about hepatitis C testing and treatment: a qualitative enquiry. J Clin Nurs 26(13–14):1861–1868. https://doi.org/10.1111/jocn.13489

    Article  PubMed  Google Scholar 

  38. van der Meulen E (2017) “It goes on everywhere”: injection drug use in Canadian federal prisons. Subst Use Misuse 52(7):884–891. https://doi.org/10.1080/10826084.2016.1264974. 40.

    Article  PubMed  Google Scholar 

  39. Yap L, Carruthers S, Thompson S et al (2014) A descriptive model of patient readiness, motivators, and hepatitis C treatment uptake among Australian prisoners. PLoS One 9(2):e87564

    Article  Google Scholar 

  40. Concannon TW, Meissner P, Grunbaum JA, McElwee N, Guise JM, Santa J, Conway PH, Daudelin D, Morrato EH, Leslie LK (2012) A new taxonomy for stakeholder engagement in patient-centered outcomes research. J Gen Intern Med 27(8):985–991. https://doi.org/10.1007/s11606-012-2037-1

    Article  PubMed  PubMed Central  Google Scholar 

  41. Wurcel A, Stone D, Koutoujian P (2020) State must ensure inmates are protected from coronavirus. Boston Globe

    Google Scholar 

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Correspondence to Alysse G. Wurcel .

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Wurcel, A.G. et al. (2022). Insiders and Outsiders: A Case Study of Fostering Research Partnerships Between Academic Health Centers and Corrections Institutions. In: Lerner, D., Palm, M.E., Concannon, T.W. (eds) Broadly Engaged Team Science in Clinical and Translational Research. Springer, Cham. https://doi.org/10.1007/978-3-030-83028-1_14

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