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Living with Long-Term Disability and Care: A Perspective on the Adequacy of Provision and Areas for Improvements

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Social Policy, Service Users and Carers

Abstract

This chapter presents Julia Smith’s experiences of living with an acquired physical impairment for close to four decades. The focus is on Julia’s experiences of long-term care provided by a wide-ranging group of professionals and service providers. Julia details that there have been a large number of changes which have been personally significant in terms of the care and support received or not received. In particular, there have been marked changes in the structure of the social care sector and organisations, which have affected the roles of the people working within them and which in turn have impacted to varying degrees the care and support Julia received. The chapter concludes with an analysis of changes that could be made to improve the care provided to people needed long-term care.

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Correspondence to Julia Louise Therese Smith .

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Smith, J.L.T., Sealey, C. (2021). Living with Long-Term Disability and Care: A Perspective on the Adequacy of Provision and Areas for Improvements. In: Sealey, C., Fillingham, J., Unwin, P. (eds) Social Policy, Service Users and Carers. Palgrave Macmillan, Cham. https://doi.org/10.1007/978-3-030-69876-8_7

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  • DOI: https://doi.org/10.1007/978-3-030-69876-8_7

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  • Publisher Name: Palgrave Macmillan, Cham

  • Print ISBN: 978-3-030-69875-1

  • Online ISBN: 978-3-030-69876-8

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