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Transition Research: Approaches to Measurement and Outcomes

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Transitioning Care from Pediatric to Adult Pulmonology

Part of the book series: Respiratory Medicine ((RM))

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Abstract

Transition from pediatric to adult care for adolescents and young adults with and without chronic illness has been a growing area of research for many years. However, most research has focused on single disease experiences with limited outcomes and most often at a one institution. This review will describe common qualitative and quantitative research outcomes used in transition research and outline an agenda for future research utilizing the quadruple aim framework, including improved patient experiences, better health outcomes, lower cost of care, and improved provider experience.

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References

  1. Surgeon general’s conference: growing up and getting medical care: youth with special health care needs: a summary of conference proceedings. U.S Public Health Service; 1989.

    Google Scholar 

  2. Children with special health care needs: NSCH data brief; 2020.

    Google Scholar 

  3. Lebrun-Harris LA, et al. Transition planning among US youth with and without special health care needs. Pediatrics. 2018;142(4):e20180194.

    Article  PubMed  Google Scholar 

  4. Bodenheimer T, Sinsky C. From triple to quadruple aim: care of the patient requires care of the provider. Ann Fam Med. 2014;12(6):573–6.

    Article  PubMed  PubMed Central  Google Scholar 

  5. Pope C, van Royen P, Baker R. Qualitative methods in research on healthcare quality. Qual Saf Health Care. 2002;11(2):148–52.

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  6. Padgett DK. Qualitative and mixed methods in public health. Thousand Oaks: SAGE Publications, Inc; 2012.

    Book  Google Scholar 

  7. Broad KL, et al. Youth experiences of transition from child mental health services to adult mental health services: a qualitative thematic synthesis. BMC Psychiatry. 2017;17(1):380.

    Article  PubMed  PubMed Central  Google Scholar 

  8. Coyne I, et al. Healthcare transition for adolescents and young adults with long-term conditions: qualitative study of patients, parents and healthcare professionals’ experiences. J Clin Nurs. 2019;28(21–22):4062–76.

    Article  PubMed  Google Scholar 

  9. Fegran L, et al. Adolescents’ and young adults’ transition experiences when transferring from paediatric to adult care: a qualitative metasynthesis. Int J Nurs Stud. 2014;51(1):123–35.

    Article  PubMed  Google Scholar 

  10. Jamieson N, et al. Children’s experiences of cystic fibrosis: a systematic review of qualitative studies. Pediatrics. 2014;133(6):e1683.

    Article  PubMed  Google Scholar 

  11. Tuchman LK, Slap GB, Britto MT. Transition to adult care: experiences and expectations of adolescents with a chronic illness. Child Care Health Dev. 2008;34(5):557–63.

    Article  CAS  PubMed  Google Scholar 

  12. van Staa AL, et al. Crossing the transition chasm: experiences and recommendations for improving transitional care of young adults, parents and providers. Child Care Health Dev. 2011;37(6):821–32.

    Article  PubMed  Google Scholar 

  13. Tong A, et al. Adolescent views on transition in diabetes and nephrology. Eur J Pediatr. 2013;172(3):293–304.

    Article  PubMed  Google Scholar 

  14. Chong LSH, et al. Children’s experiences of congenital heart disease: a systematic review of qualitative studies. Eur J Pediatr. 2018;177(3):319–36.

    Article  PubMed  Google Scholar 

  15. McLoughlin A, Matthews C, Hickey TM. “They’re kept in a bubble”: healthcare professionals' views on transitioning young adults with congenital heart disease from paediatric to adult care. Child Care Health Dev. 2018;44(5):736–45.

    Article  CAS  PubMed  Google Scholar 

  16. Cruikshank M, et al. Transitional care in clinical networks for young people with juvenile idiopathic arthritis: current situation and challenges. Clin Rheumatol. 2016;35(4):893–9.

    Article  PubMed  Google Scholar 

  17. Burke L, et al. The transition of adolescents with juvenile idiopathic arthritis or epilepsy from paediatric health-care services to adult health-care services: a scoping review of the literature and a synthesis of the evidence. J Child Health Care. 2018;22(3):332–58.

    Article  PubMed  Google Scholar 

  18. White PH, et al. Six core elements of transition 3.0: an implementation guide. In: Got transition. Washington, DC: The National Alliance to Advance Adolescent Health; 2020.

    Google Scholar 

  19. Schwartz LA, et al. Measures of readiness to transition to adult health care for youth with chronic physical health conditions: a systematic review and recommendations for measurement testing and development. J Pediatr Psychol. 2014;39(6):588–601.

    Article  PubMed  PubMed Central  Google Scholar 

  20. Sawicki GS, et al. Measuring the transition readiness of youth with special healthcare needs: validation of the TRAQ--Transition Readiness Assessment Questionnaire. J Pediatr Psychol. 2011;36(2):160–71.

    Article  PubMed  Google Scholar 

  21. Wood DL, et al. The Transition Readiness Assessment Questionnaire (TRAQ): its factor structure, reliability, and validity. Acad Pediatr. 2014;14(4):415–22.

    Article  PubMed  Google Scholar 

  22. Cohen SE, et al. Self-management and transition readiness assessment: concurrent, predictive and discriminant validation of the STARx questionnaire. J Pediatr Nurs. 2015;30(5):668–76.

    Article  PubMed  Google Scholar 

  23. Ferris M, et al. Self-management and transition readiness assessment: development, reliability, and factor structure of the STARx questionnaire. J Pediatr Nurs. 2015;30(5):691–9.

    Article  CAS  PubMed  Google Scholar 

  24. Straus EJ. Challenges in measuring healthcare transition readiness: taking stock and looking forward. J Pediatr Nurs. 2019;46:109–17.

    Article  PubMed  Google Scholar 

  25. Prochaska JO, DiClemente CC, Norcross JC. In search of how people change: applications to addictive behaviors. Am Psychol. 1992;47(9):1102–14.

    Article  CAS  PubMed  Google Scholar 

  26. Nazareth M, et al. A parental report of youth transition readiness: the parent STARx questionnaire (STARx-P) and re-evaluation of the STARx child report. J Pediatr Nurs. 2018;38:122–6.

    Article  PubMed  Google Scholar 

  27. Ferris ME, et al. A clinical tool to measure the components of health-care transition from pediatric care to adult care: the UNC TR(x)ANSITION scale. Ren Fail. 2012;34(6):744–53.

    Article  PubMed  Google Scholar 

  28. Zhong Y, et al. Longitudinal self-management and/or transition readiness per the TRxANSITION index among patients with chronic conditions in pediatric or adult care settings. J Pediatr. 2018;203:361–370.e1.

    Article  PubMed  Google Scholar 

  29. Gabriel P, et al. Outcome evidence for structured pediatric to adult health care transition interventions: a systematic review. J Pediatr. 2017;188:263–269.e15.

    Article  PubMed  Google Scholar 

  30. Betz CL, et al. Systematic review: health care transition practice service models. Nurs Outlook. 2016;64(3):229–43.

    Article  PubMed  Google Scholar 

  31. Duguépéroux I, et al. Clinical changes of patients with cystic fibrosis during transition from pediatric to adult care. J Adolesc Health. 2008;43(5):459–65.

    Article  PubMed  Google Scholar 

  32. Tuchman L, Schwartz M. Health outcomes associated with transition from pediatric to adult cystic fibrosis care. Pediatrics. 2013;132(5):847–53.

    Article  PubMed  Google Scholar 

  33. McQuillan RF, et al. Benefits of a transfer clinic in adolescent and young adult kidney transplant patients. Can J Kidney Health Dis. 2015;2:45.

    Article  PubMed  PubMed Central  Google Scholar 

  34. Vidal M, et al. Impact of a special therapeutic education programme in patients transferred from a paediatric to an adult diabetes unit. Eur Diabetes Nurs. 2004;1(1):23–7.

    Article  Google Scholar 

  35. McDonagh JE, et al. The impact of a coordinated transitional care programme on adolescents with juvenile idiopathic arthritis. Rheumatology. 2007;46(1):161–8.

    Article  CAS  PubMed  Google Scholar 

  36. Annunziato RA, et al. Strangers headed to a strange land? A pilot study of using a transition coordinator to improve transfer from pediatric to adult services. J Pediatr. 2013;163(6):1628–33.

    Article  PubMed  Google Scholar 

  37. Prestidge C, et al. Utility and cost of a renal transplant transition clinic. Pediatr Nephrol. 2012;27(2):295–302.

    Article  PubMed  Google Scholar 

  38. Chaudhry SR, Keaton M, Nasr SZ. Evaluation of a cystic fibrosis transition program from pediatric to adult care. Pediatr Pulmonol. 2013;48(7):658–65.

    Article  PubMed  Google Scholar 

  39. Pape L, et al. Different models of transition to adult care after pediatric kidney transplantation: a comparative study. Pediatr Transplant. 2013;17(6):518–24.

    Article  CAS  PubMed  Google Scholar 

  40. Cadario F, et al. Transition process of patients with type 1 diabetes (T1DM) from paediatric to the adult health care service: a hospital-based approach. Clin Endocrinol (Oxf). 2009;71(3):346–50.

    Article  CAS  Google Scholar 

  41. Jurasek L, Ray L, Quigley D. Development and implementation of an adolescent epilepsy transition clinic. J Neurosci Nurs. 2010;42(4):181–9.

    Article  PubMed  Google Scholar 

  42. Shaw KL, et al. Development and preliminary validation of the ‘Mind the Gap’ scale to assess satisfaction with transitional health care among adolescents with juvenile idiopathic arthritis. Child Care Health Dev. 2007;33(4):380–8.

    Article  CAS  PubMed  Google Scholar 

  43. Colver A, et al. Facilitating the transition of young people with long-term conditions through health services from childhood to adulthood: the transition research programme. Programme Grants Appl Res. 2019;7(4):1–244.

    Article  Google Scholar 

  44. Burns K, et al. Access to a youth-specific service for young adults with type 1 diabetes mellitus is associated with decreased hospital length of stay for diabetic ketoacidosis. Intern Med J. 2018;48(4):396–402.

    Article  CAS  PubMed  Google Scholar 

  45. Cole R, et al. Evaluation of outcomes in adolescent inflammatory bowel disease patients following transfer from pediatric to adult health care services: case for transition. J Adolesc Health. 2015;57(2):212–7.

    Article  PubMed  Google Scholar 

  46. Holmes-Walker DJ, Llewellyn AC, Farrell K. A transition care programme which improves diabetes control and reduces hospital admission rates in young adults with type 1 diabetes aged 15–25 years. Diabet Med. 2007;24(7):764–9.

    Article  CAS  PubMed  Google Scholar 

  47. Hankins JS, et al. A transition pilot program for adolescents with sickle cell disease. J Pediatr Health Care. 2012;26(6):e45–9.

    Article  PubMed  Google Scholar 

  48. Fredericks EM, et al. Quality improvement targeting adherence during the transition from a pediatric to adult liver transplant clinic. J Clin Psychol Med Settings. 2015;22(2):150–9.

    Article  PubMed  PubMed Central  Google Scholar 

  49. Hergenroeder AC, et al. Functional classification of heart failure before and after implementing a healthcare transition program for youth and young adults transferring from a pediatric to an adult congenital heart disease clinics. Congenit Heart Dis. 2018;13(4):548–53.

    Article  PubMed  Google Scholar 

  50. Jones MR, et al. Transfer from pediatric to adult endocrinology. Endocr Pract. 2017;23(7):822–30.

    Article  PubMed  Google Scholar 

  51. Mackie AS, et al. Transition intervention for adolescents with congenital heart disease. J Am Coll Cardiol. 2018;71(16):1768–77.

    Article  PubMed  Google Scholar 

  52. White PH, Cooley WC. Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics. 2018;142(5):e20182587.

    Article  PubMed  Google Scholar 

  53. Campbell F, et al. Transition of care for adolescents from paediatric services to adult health services. Cochrane Database Syst Rev. 2016;(4):CD009794.

    Google Scholar 

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Author information

Authors and Affiliations

  1. Departments of Internal Medicine and Pediatrics, Indiana University School of Medicine, Indianapolis, IN, USA

    Cory Powers

  2. Division of Pulmonary, Critical Care, Occupational, and Sleep Medicine, Indiana University School of Medicine, Indianapolis, IN, USA

    Cynthia D. Brown

Authors
  1. Cory Powers
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  2. Cynthia D. Brown
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Corresponding author

Correspondence to Cynthia D. Brown .

Editor information

Editors and Affiliations

  1. Division of Pulmonary, Critical Care,Occupational, and Sleep Medicine, Indiana University School of Medicine, Indianapolis, IN, USA

    Cynthia D. Brown

  2. Department of Pulmonary, Critical Care, and Sleep Medicine, Wyoming Medical Center, Casper, WY, USA

    Erin Crowley

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Powers, C., Brown, C.D. (2021). Transition Research: Approaches to Measurement and Outcomes. In: Brown, C.D., Crowley, E. (eds) Transitioning Care from Pediatric to Adult Pulmonology. Respiratory Medicine. Humana, Cham. https://doi.org/10.1007/978-3-030-68688-8_2

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  • DOI: https://doi.org/10.1007/978-3-030-68688-8_2

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  • Publisher Name: Humana, Cham

  • Print ISBN: 978-3-030-68687-1

  • Online ISBN: 978-3-030-68688-8

  • eBook Packages: MedicineMedicine (R0)

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