Abstract
Survivors of critical illness and treatment in the intensive care unit (ICU) often experience physical or psychological symptoms as part of the post-intensive care syndrome (PICS). Both patients and their families risk symptoms of posttraumatic stress disorder, anxiety, or depression. ICU diaries are used to support the process of psychological recovery. They complement the medical record by addressing the patient directly and describing in layman’s terms what happened in the ICU. The diaries are usually written by nurses but may also be coauthored by other staff, family, or friends, depending on local practice. ICU diaries describe admission to the unit and patient progress through stages of crisis and stabilization in the ICU. Qualitative evaluation of ICU diaries has suggested improvement of illness communication and psychological well-being in patients and families. Quantitative evaluation is inconclusive with some evidence of effect on psychological sequelae but lacking discussion of potential harms.
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References
Desai SV, Law TJ, Needham DM. Long-term complications of critical care. Crit Care Med. 2011;39(2):371–9.
Turnbull AE, Rabiee A, Davis WE, Nasser MF, Venna VR, Lolitha R, et al. Outcome measurement in ICU survivorship research from 1970 to 2013: a scoping review of 425 publications. Crit Care Med. 2016;44(7):1267–77.
Needham DM, Davidson J, Cohen H, Hopkins RO, Weinert C, Wunsch H, et al. Improving long-term outcomes after discharge from intensive care unit: report from a stakeholders’ conference. Crit Care Med. 2012;40(2):502–9.
Parker AM, Sricharoenchai T, Raparla S, Schneck KW, Bienvenu OJ, Needham DM. Posttraumatic stress disorder in critical illness survivors: a metaanalysis. Crit Care Med. 2015;43(5):1121–9.
Rabiee A, Nikayin S, Hashem MD, Huang M, Dinglas VD, Bienvenu OJ, et al. Depressive symptoms after critical illness: a systematic review and meta-analysis. Crit Care Med. 2016;44(9):1744–53.
Nikayin S, Rabiee A, Hashem MD, Huang M, Bienvenu OJ, Turnbull AE, et al. Anxiety symptoms in survivors of critical illness: a systematic review and meta-analysis. Gen Hosp Psychiatry. 2016;43:23–9.
Davidson JE, Jones C, Bienvenu OJ. Family response to critical illness: postintensive care syndrome-family. Crit Care Med. 2012;40(2):618–24.
Johnson CC, Suchyta MR, Darowski ES, Collar EM, Kiehl AL, Van J, et al. Psychological sequelae in family caregivers of critically III intensive care unit patients. A systematic review. Ann Am Thorac Soc. 2019;16(7):894–909.
Ullman AJ, Aitken LM, Rattray J, Kenardy J, Le Brocque R, MacGillivray S, et al. Intensive care diaries to promote recovery for patients and families after critical illness: a Cochrane systematic review. Int J Nurs Stud. 2015;52(7):1243–53.
Egerod I, Risom SS, Thomsen T, Storli SL, Eskerud RS, Holme AN, et al. ICU-recovery in Scandinavia: a comparative study of intensive care follow-up in Denmark, Norway and Sweden. Intensive Crit Care Nurs. 2013;29(2):103–11.
Nydahl P, Egerod I, Hosey M, Needham DM, Jones C, Bienvenu OJ. Report on the third international ICU diary conference. Critical Care Nurse. 2020;40(5):e18–25.
Egerod I, Schwartz-Nielsen KH, Hansen GM, Laerkner E. The extent and application of patient diaries in Danish ICUs in 2006. Nurs Crit Care. 2007;12(3):159–67.
Aitken LM, Rattray J, Hull A, Kenardy JA, Le Brocque R, Ullman AJ. The use of diaries in psychological recovery from intensive care. Crit Care. 2013;17(6):253.
Gjengedal E, Storli SL, Holme AN, Eskerud RS. An act of caring - patient diaries in Norwegian intensive care units. Nurs Crit Care. 2010;15(4):176–84.
Egerod I, Christensen D. Analysis of patient diaries in Danish ICUs: a narrative approach. Intensive Crit Care Nurs. 2009;25(5):268–77.
Nielsen AH, Egerod I, Hansen TB, Angel S. Intensive care unit diaries: developing a shared story strengthens relationships between critically ill patients and their relatives: a hermeneutic-phenomenological study. Int J Nurs Stud. 2019;92:90–6.
Scruth EA, Oveisi N, Liu V. Innovation and technology: electronic intensive care unit diaries. AACN Adv Crit Care. 2017;28(2):191–9.
Nielsen AH, Angel S, Egerod I, Hansen TB. The effect of diaries written by relatives for intensive care patients on posttraumatic stress (DRIP study): protocol for a randomized controlled trial and mixed methods study. BMC Nurs. 2018;17:37.
Bolton N. Diaries for recovery from critical illness. Clin Nurse Spec. 2016;30(1):17–8.
Egerod I, Bagger C. Patients’ experiences of intensive care diaries--a focus group study. Intensive Crit Care Nurs. 2010;26(5):278–87.
Storli SL, Lindseth A, Asplung K. “Being somewhere else”*delusion or relevant experience? A phenomenological investigation into the meaning of lived experience from being in intensive care. Int J Qual Stud Health Well Being. 2007;2:144–59.
Heindl P, Bachlechner A. The creation of a patient and family diary to assist in coping with the intensive care unit (German: coping mit dem Intensivtagebuch - das Schaffen einer gemeinsamen Erinnerung). QuPuG. 2015;1(2):92–100.
Nielsen AH, Angel S. Relatives perception of writing diaries for critically ill. A phenomenological hermeneutical study. Nurs Crit Care. 2015; https://doi.org/10.1111/nicc.12147.
Aitken LM, Rattray J, Kenardy J, Hull AM, Ullman AJ, Le Brocque R, et al. Perspectives of patients and family members regarding psychological support using intensive care diaries: an exploratory mixed methods study. J Crit Care. 2017;38:263–8.
Backman CG, Walther SM. Use of a personal diary written on the ICU during critical illness. Intensive Care Med. 2001;27(2):426–9.
Åkerman E, Ersson A, Fridlund B, Samuelson K. Preferred content and usefulness of a photodiary as described by ICU-patients--a mixed method analysis. Aust Crit Care. 2013;26(1):29–35.
Jensen JF, Overgaard D, Bestle MH, Christensen DF, Egerod I. Towards a new orientation: a qualitative longitudinal study of an intensive care recovery programme. J Clin Nurs. 2017;26(1–2):77–90.
Heindl P, Bachlechner A, Nydahl P, Egerod I. Extent and application of patient diaries in Austria: process of continuing adaptation. Nurs Crit Care. 2019;24(6):343–8.
Knowles RE, Tarrier N. Evaluation of the effect of prospective patient diaries on emotional well-being in intensive care unit survivors: a randomized controlled trial. Crit Care Med. 2009;37(1):184–91.
Garrouste-Orgeas M, Coquet I, Perier A, Timsit JF, Pochard F, Lancrin F, et al. Impact of an intensive care unit diary on psychological distress in patients and relatives*. Crit Care Med. 2012;40(7):2033–40.
Jones C, Backman C, Capuzzo M, Egerod I, Flaatten H, Granja C, et al. Intensive care diaries reduce new onset post traumatic stress disorder following critical illness: a randomised, controlled trial. Crit Care. 2010;14(5):R168.
Egerod I, Storli SL, Akerman E. Intensive care patient diaries in Scandinavia: a comparative study of emergence and evolution. Nurs Inq. 2011;18(3):235–46.
Nielsen AH, Angel S, Egerod I, Lund TH, Renberg M, Hansen TB. The effect of family-authored diaries on posttraumatic stress disorder in intensive care unit patients and their relatives: a randomised controlled trial (DRIP-study). Aust Crit Care. 2020;33(2):123–9.
Garrouste-Orgeas M, Flahault C, Fasse L, Ruckly S, Amdjar-Badidi N, Argaud L, et al. The ICU-Diary study: prospective, multicenter comparative study of the impact of an ICU diary on the wellbeing of patients and families in French ICUs. Trials. 2017;18(1):542.
Blair KTA, Eccleston SD, Binder HM, McCarthy MS. Improving the patient experience by implementing an ICU diary for those at risk of post-intensive care syndrome. J Patient Exp. 2017;4(1):4–9.
Johansson M, Wahlin I, Magnusson L, Hanson E. Nursing staff's experiences of intensive care unit diaries: a qualitative study. Nurs Crit Care. 2019;24(6):407–13.
McIlroy PA, King RS, Garrouste-Orgeas M, Tabah A, Ramanan M. The effect of ICU diaries on psychological outcomes and quality of life of survivors of critical illness and their relatives: a systematic review and meta-analysis. Crit Care Med. 2019;47(2):273–9.
Nielsen AH, Angel S, Hansen TB, Egerod I. Structure and content of diaries written by close relatives for intensive care unit patients: a narrative approach (DRIP study). J Adv Nurs. 2019;75(6):1296–305.
Flinterud SI, Moi AL, Gjengedal E, Narvestad Grenager L, Muri AK, Ellingsen S. The creation of meaning - intensive care nurses’ experiences of conducting nurse-led follow-up on intensive care units. Intensive Crit Care Nurs. 2019;53:30–6.
Ednell AK, Siljegren S, Engstrom A. The ICU patient diary - a nursing intervention that is complicated in its simplicity: a qualitative study. Intensive Crit Care Nurs. 2017;40:70–6.
Nydahl P, Backman CG, Bereuther J, Thelen M. How much time do nurses need to write an ICU diary? Nurs Crit Care. 2014;19(5):222–7.
Egerod I, Christensen D, Schwartz-Nielsen KH, Agard AS. Constructing the illness narrative: a grounded theory exploring patients’ and relatives’ use of intensive care diaries. Crit Care Med. 2011;39(8):1922–8.
Moi AL, Storli SL, Gjengedal E, Holme AN, Lind R, Eskerud R, et al. The provision of nurse-led follow-up at Norwegian intensive care units. J Clin Nurs. 2018;27(13–14):2877–86.
Strandberg S, Vesterlund L, Engstrom A. The contents of a patient diary and its significance for persons cared for in an ICU: a qualitative study. Intensive Crit Care Nurs. 2018;45:31–6.
Garrouste-Orgeas M, Flahault C, Vinatier I, Rigaud JP, Thieulot-Rolin N, Mercier E, et al. Effect of an ICU diary on posttraumatic stress disorder symptoms among patients receiving mechanical ventilation: a randomized clinical trial. JAMA. 2019;322(3):229–39.
Engstrom A, Grip K, Hamren M. Experiences of intensive care unit diaries: ‘touching a tender wound’. Nurs Crit Care. 2009;14(2):61–7.
Nydahl P, Fischill M, Deffner T, Neudeck V, Heindl P. [Diaries for intensive care unit patients reduce the risk for psychological sequelae: systematic literature review and meta-analysis]. Medizinische Klinik, Intensivmedizin und Notfallmedizin 2019;114(1):68–76.
Roulin MJ, Spirig R. Developing a care program to better know the chronically critically ill. Intensive Crit Care Nurs. 2006;22(6):355–61.
Perier A, Revah-Levy A, Bruel C, Cousin N, Angeli S, Brochon S, et al. Phenomenologic analysis of healthcare worker perceptions of intensive care unit diaries. Crit Care. 2013;17(1):R13.
Egerod I, Christensen D. A comparative study of ICU patient diaries vs. hospital charts. Qual Health Res. 2010;20(10):1446–56.
Locke M, Eccleston S, Ryan CN, Byrnes TJ, Mount C, McCarthy MS. Developing a diary program to minimize patient and family post-intensive care syndrome. AACN Adv Crit Care. 2016;27(2):212–20.
Mikkelsen G. The meaning of personal diaries to children and families in the paediatric intensive care unit: a qualitative study. Intensive Crit Care Nurs. 2018;45:25–30.
Herrup EA, Wieczorek B, Kudchadkar SR. Feasibility and perceptions of PICU diaries. Pediatr Crit Care Med. 2018;20(2):e83–90.
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Egerod, I., Nydahl, P. (2021). ICU Diaries. In: Haines, K.J., McPeake, J., Sevin, C.M. (eds) Improving Critical Care Survivorship. Springer, Cham. https://doi.org/10.1007/978-3-030-68680-2_6
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DOI: https://doi.org/10.1007/978-3-030-68680-2_6
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