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Bioinformatics and Issues of Conclusion a Contract for Provision of Medical Services

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Economic Systems in the New Era: Stable Systems in an Unstable World (IES 2020)

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Abstract

The article analyzes the possibilities of commercialization of scientific research results of the human genome and its positive impact on research activities, provided that the information is properly protected. As shown by the legal regulation of scientific research of the human genome in certain states, the secret of private life (privacy) is the main content of the contract practiced in the field of medical services. Genetic information, although similar to medical secrecy when entering into a contract for the provision of medical services, differs in a public element in connection with the use of digital technologies in scientific research. The requirement to protect genome privacy is a mutual obligation of the parties in the contract. This parties do not always give proper attention to such issue. Legal regulation of genomic research will help to formulate a pragmatic attitude to the problem and find a balance between the risk and benefits of human knowledge.

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References

  1. Abstracts from the 3rd International Genomic Medicine Conference (3ird IGMC 2015). BMC Genomics 2016. vol. 17 (2016). https://doi.org/10.1186/s12864-016-2858-0, https://bmcgenomics.biomedcentral.com/track/pdf/10.1186/s12864-016-2858-0. Accessed 01 July 2020

  2. Clayton, E.W., Evans, B.J., Hazel, J.W., Rothstein, M.A.: The law of genetic privacy: applications, implications, and limitations. Journal of Law and the Biosciences, 6(1), 1–36 (2019). https://doi.org/10.1093/jlb/lsz007

  3. DeLisi, Ch.: Genomes: 15 years later a perspective by Charles DeLisi, HGP Pioneer. Human Genome News, 11, 3–4 (2001). https://web.ornl.gov/sci/techresources/Human_Genome/publicat/hgn/v11n3/hgn11no3-4color.pdf. Accessed 17 July 2020

  4. Dillon, N.: Golden State Killer Suspect Arrested After Cops Swiped His DNA from Car Door Handle and Tissue, N.Y. DAILY NEWS (2018). https://www.nydailynews.com/news/crime/ny-news-golden-state-killer-dna-collected-car-door-trash-20180601-story.html. Accessed 17 July 2020

  5. Green, N.P.O., Stout, G.W., Taylor, D.J.: Biological Science. Cambridge University Press, Cambridge (2005)

    Google Scholar 

  6. Health Insurance Portability and Accountability Act (HIPAA) (1996). https://www.govinfo.gov/content/pkg/PLAW-104publ191/pdf/PLAW-104publ191.pdf. Accessed 17 July 2020

  7. Public Law 110 - 233 - Genetic Information Nondiscrimination Act of 2008 (2008). https://www.govinfo.gov/app/details/PLAW-110publ233. Accessed 17 July 2020

  8. Ryan, F.: The Mysterious World of the Human Genome, Prometheus, New York (2017)

    Google Scholar 

  9. Schrödinger, E.: Die gegenwärtige Situation in der Quantenmechanik. Naturwissenschaften, 23, 844–849 (1935). https://doi.org/10.1007/bf01491987

  10. Solovyov, V.S.: The Philosophical Principle of Integral Knowledge. Harvest, Minsk (1999)

    Google Scholar 

  11. Spencer, W.: The Journey of Man: A Genetic Odyssey. Princeton University Press, London (2003)

    Google Scholar 

  12. Taylor, M., Wilson, J.: Reasonable expectations of privacy and disclosure of health data. Med. Law Rev., 27(3), 432–460 (2018). https://doi.org/10.1093/medlaw/fwz009

  13. The Guardian: What is the Welcome Trust? (2015). https://www.theguardian.com/environment/2015/mar/16/what-is-the-wellcome-trust. Accessed 17 July 2020

  14. Trivelpiece, A.W.: Report on the human genome initiative for the Office of Health and Environmental Research (1987). https://web.ornl.gov/sci/techresources/Human_Genome/project/herac2.shtml. Accessed 17 July 2020

  15. Turton, G.: Informed consent to medical treatment post-montgomery: causation and coincidence. Med. Law Rev. 27(1), 108–134 (2019). https://doi.org/10.1093/medlaw/fwy026

  16. Vaught, J.: International biobanking in the era of precision medicine. In: Abstracts from the 3rd International Genomic Medicine Conference (3ird IGMC 2015). BMC Genomics 2016. vol. 17(Suppl 6:08), p. 3 (2016). https://bmcgenomics.biomedcentral.com/track/pdf/10.1186/s12864-016-2858-0. Accessed 01 July 2020

  17. Weitzman, J., Weitzman, M. (eds.) 30-Second Genetics: The 50 Most Revolutionary Discoveries in Genetics, each Explained in Half a Minute, Ivy Press, Brighton (2017)

    Google Scholar 

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Acknowledgements

Article on the implementation of the RFBR grant for project no. 18-29-14025 on the topic: “Legal regulation of genomic research and the use of their results: comparative legal aspect of research”.

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Correspondence to N. G. Doronina .

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Doronina, N.G., Semilutina, N.G., Tsirina, M.A. (2021). Bioinformatics and Issues of Conclusion a Contract for Provision of Medical Services. In: Ashmarina, S.I., Horák, J., Vrbka, J., Šuleř, P. (eds) Economic Systems in the New Era: Stable Systems in an Unstable World. IES 2020. Lecture Notes in Networks and Systems, vol 160. Springer, Cham. https://doi.org/10.1007/978-3-030-60929-0_14

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  • DOI: https://doi.org/10.1007/978-3-030-60929-0_14

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