Skip to main content

Peer Support for Adolescents with Chronic Illness

  • Chapter
  • First Online:
Peer Support in Medicine

Abstract

Adolescence is a sensitive period of development when the influence of peers is most intense, and adolescents focus on developing their peer relationships and identity outside of their parents. It is also the period when health risk behaviours (e.g. smoking) first arise; and for adolescents with chronic illnesses, peer relationships may be disrupted by managing a chronic illness. Thus, peer support, mentorship and education are approaches that may be best suited to improving health and health-related outcomes of adolescent populations. Studies among adolescents have demonstrated promise in improving knowledge and attitudes, reducing risk behaviours and improving self-management behaviours for chronic illness, among other outcomes. When developing and implementing peer interventions for adolescents, involving peer mentors, assessing adolescents’ preferences prior to program development, providing choice and flexibility in program options, offering long-term programs where possible and conducting formative evaluation can ensure effectiveness of the pro gram.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 54.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 69.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  1. Williams PG, Holmbeck GN, Greenley RN. Adolescent health psychology. J Consult Clin Psychol. 2002;70:828.

    Article  PubMed  Google Scholar 

  2. Bishop AJ, Inderbitzen MH. Peer acceptance and friendship: an investigation of their relation to self-esteem. J Early Adolesc. 1995;15(4):476–89.

    Article  Google Scholar 

  3. Brown BB, Larson J. Peer relationships in adolescence. In: Handbook of adolescent psychology. New York: Wiley; 2009.

    Google Scholar 

  4. Bagwell CL, Newcomb AF, Bukowski WM, Bagwell CL, Newcomb AF, Bukowski WM. Preadolescent friendship and peer rejection as predictors of adult adjustment. Child Dev. 1998;69(1):140–53.

    Article  CAS  PubMed  Google Scholar 

  5. Dennis CL. Peer support within a health care context: a concept analysis. Int J Nurs Stud. 2003;40:321–32.

    Article  PubMed  Google Scholar 

  6. Strange V. Peer education. In: MacDowall W, Bonnell C, Davies M, editors. Health promotion practice. Berkshire: Open University Press; 2006. p. 97–111.

    Google Scholar 

  7. Parkin S, McKeganey N. The rise and rise of peer education approaches. Drugs Educ Prev Policy. 2000;7(3):293–310.

    Article  Google Scholar 

  8. Kirby D, Obasi A, Laris BA. The effectiveness of sex education and HIV education interventions in schools in developing countries. World Health Organ Tech Rep Ser. 2006;938:103.

    PubMed  Google Scholar 

  9. McAlister AL, Perry CL, Parcel GS. How individuals, environments, and health behaviors interact: Social cognitive theory. In Glanz K, Rimer BK, Viswanath K (Eds.), Health behavior and health education: Theory, research, and practice. Jossey-Bass. 2008;169–88.

    Google Scholar 

  10. Simons R, Conger R, Whitbeck L. A multistage social learning model of the influences of family and peers upon adolescent substance abuse. J Drug Issues. 1988;18(3):293–315.

    Article  Google Scholar 

  11. Bandura A. Social cognitive theory of self-regulation. Organ Behav Hum Decis Process. 1991;50:248–87.

    Article  Google Scholar 

  12. Petosa RL, Smith LH. Peer mentoring for health behavior change: a systematic review. Am J Health Educ. 2014;45(6):351–7.

    Article  Google Scholar 

  13. Sheffield JK, Fiorenza E, Sofronoff K. Adolescents’ willingness to seek psychological help: promoting and preventing factors. J Youth Adolesc. 2004;33(6):495–507.

    Article  Google Scholar 

  14. Swendeman D, Arnold EM, Harris D, Fournier J, Comulada WS, Reback C, et al. Text-messaging, online peer support group, and coaching strategies to optimize the HIV prevention continuum for youth: protocol for a randomized controlled trial. J Med Internet Res. 2019;8:e11165.

    Google Scholar 

  15. Nabunya P, Ssewamala FM, Mukasa MN, Byansi W, Nattabi J. Peer mentorship program on HIV/AIDS knowledge, beliefs, and prevention attitudes among orphaned adolescents: an evidence based practice. Vulnerable Child Youth Stud [Internet]. 2015;10(4):345–56. Available from: https://doi.org/10.1080/17450128.2015.1115157.

  16. Yip C, Gates M, Gates A, Hanning RM. Peer-led nutrition education programs for school-aged youth: a systematic review of the literature. Health Educ Res. 2016;31:82–97.

    PubMed  Google Scholar 

  17. Maticka-Tyndale E, Barnett JP. Peer-led interventions to reduce HIV risk of youth: a review. Eval Program Plann. 2010;33:98–112.

    Article  PubMed  Google Scholar 

  18. MacArthur GJ, Harrison S, Caldwell DM, Hickman M, Campbell S, ORCID: http://orcid.org/0000-0002-7966-0700, Hickman M, ORCID: http://orcid.org/0000-0001-9864-459X RAI-O http://orcid.org/Harriso, Georgie JM, et al. Peer-led interventions to prevent tobacco, alcohol and/or drug use among young people aged 11–21 years: a systematic review and meta-analysis. Albrecht Armstrong, Borenstein, Borenstein, Botvin, Botvin, Campbell, Dishion, Eckhardt, Elder, Ellickson, Ellickson, Ellickson, Faggiano, Foxcroft, Foxcroft, Fromme, Fuller, Gates, Guyatt, Harden, Harden, Higgins, Ioannidis, Kelly, Kim, Kincaid, Klepp, A, editor. Addiction [Internet]. 2016;111(3):391–407. Available from: http://ovidsp.ovid.com/ovidweb.cgi?T=JS&PAGE=reference&D=emed17&NEWS=N&AN=616593099.

  19. Rose-Clarke K, Bentley A, Marston C, Prost A, et al. Peer-facilitated community-based interventions for adolescent health in low- and middle-income countries: a systematic review. PLoS One [Internet]. 2019;14(1):e0210468. Available from: https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0210468&type=printable.

  20. Campbell R, Starkey F, Holliday J, Audrey S, Bloor M, Parry-Langdon N, et al. An informal school-based peer-led intervention for smoking prevention in adolescence (ASSIST): a cluster randomised trial. Lancet. 2008;371(9624):1595–602.

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  21. Lo E, Coles R, Humbert ML, Polowski J, Henry CJ, Whiting SJ. Beverage intake improvement by high school students in Saskatchewan, Canada. Nutr Res. 2008;28(3):144–50.

    Article  CAS  PubMed  Google Scholar 

  22. Rosenblum A, Magura S, Fong C, Curry P, Norwood C, Casella D. Effects of peer mentoring on HIV-affected Youths’ substance use risk and association with substance using friends. J Soc Serv Res. 2006;32:45–60.

    Article  Google Scholar 

  23. Wysocki T, Hough BS, Ward KM, Green LB. Diabetes mellitus in the transition to adulthood: adjustment, self-care, and health status. J Dev Behav Pediatr. 1992;13:194–201.

    Article  CAS  PubMed  Google Scholar 

  24. Forgeron PA, King S, Stinson JN, McGrath PJ, MacDonald AJ, Chambers CT. Social functioning and peer relationships in children and adolescents with chronic pain: a systematic review. Pain Res Manag. 2010;15(1):27–41.

    Article  PubMed  PubMed Central  Google Scholar 

  25. Engström I. Mental health and psychological functioning in children and adolescents with inflammatory bowel disease: a comparison with children having other chronic illnesses and with healthy children. J Child Psychol Psychiatry. 1992;33(3):563–82.

    Article  PubMed  Google Scholar 

  26. Cortina S, McGraw K, de Alarcon A, Ahrens A, Rothenberg ME, Drotar D. Psychological functioning of children and adolescents with eosinophil-associated gastrointestinal disorders. Child Health Care. 2010;39(4):266–78.

    Article  PubMed  PubMed Central  Google Scholar 

  27. LeBovidge JS, Lavigne JV, Donenberg GR, Miller ML. Psychological adjustment of children and adolescents with chronic arthritis: a meta-analytic review. J Pediatr Psychol. 2003;28(1):29–39.

    Article  PubMed  Google Scholar 

  28. Noll RB, Vannatta K, Koontz K, Kalinyak K, Bukowski WM, Davies WH. Peer relationships and emotional well-being of youngsters with sickle cell disease. Child Dev. 1996;67(2):423–36.

    CAS  PubMed  Google Scholar 

  29. Trzepacz AM, Vannatta K, Davies WH, Stehbens JA, Noll RB. Social, emotional, and behavioral functioning of children with hemophilia. J Dev Behav Pediatr. 2003;24(4):225–32.

    Article  PubMed  Google Scholar 

  30. Warner EL, Kent EE, Trevino KM, Parsons HM, Zebrack BJ, Kirchhoff AC. Social well-being among adolescents and young adults with cancer: a systematic review. Cancer. 2016;122(7):1029–37.

    Article  PubMed  PubMed Central  Google Scholar 

  31. Kohut SA, Stinson J, van Wyk M, Giosa L, Luca S. Systematic review of peer support interventions for adolescents with chronic illness. Int J Child Adolesc Health. 2014;7:183.

    Google Scholar 

  32. Lehmkuhl HD, Merlo LJ, Devine K, Gaines J, Storch EA, Silverstein JH, et al. Perceptions of type 1 diabetes among affected youth and their peers. J Clin Psychol Med Settings. 2009;16(3):209–15.

    Article  PubMed  PubMed Central  Google Scholar 

  33. Stinson JN, Toomey PC, Stevens BJ, Kagan S, Duffy CM, Huber A, et al. Asking the experts: exploring the self-management needs of adolescents with arthritis. Arthritis Care Res. 2008;59(1):65–72.

    Article  Google Scholar 

  34. Mackner LM, Ruff JM, Vannatta K. Focus groups for developing a peer mentoring program to improve self-management in pediatric inflammatory bowel disease. J Pediatr Gastroenterol Nutr. 2014;59(4):487–92.

    Article  PubMed  PubMed Central  Google Scholar 

  35. Stinson JN, Sung L, Gupta A, White ME, Jibb LA, Dettmer E, et al. Disease self-management needs of adolescents with cancer: perspectives of adolescents with cancer and their parents and healthcare providers. J Cancer Surviv. 2012;6(3):278–86.

    Article  CAS  PubMed  Google Scholar 

  36. Kulandaivelu Y, Lalloo C, Ward R, Zempsky WT, Kirby-Allen M, Breakey V, et al. Exploring the needs of adolescents with sickle cell disease to inform a digital self-management and transitional care program: a qualitative study. JMIR Pediatr Parent. 2018;1:e11058.

    Article  PubMed  PubMed Central  Google Scholar 

  37. Breakey VR, Bouskill V, Nguyen C, Luca S, Stinson JN, Kohut SA. Online peer-to-peer mentoring support for youth with hemophilia: qualitative needs assessment. JMIR Pediatr Parent. 2018;1(2):e10958.

    Google Scholar 

  38. Wiemann CM, Graham SC, Garland BH, Hergenroeder AC, Raphael JL, Sanchez-Fournier BE, et al. Development of a group-based, peer-mentor intervention to promote disease self-management skills among youth with chronic medical conditions. J Pediatr Nurs [Internet]. 2019;48:1–9. Available from: https://doi.org/10.1016/j.pedn.2019.05.013.

  39. Hughes J, Wood E, Smith G. Exploring kidney patients experiences of receiving individual peer support. Health Expect. 2009;12(4):396–406.

    Article  PubMed  PubMed Central  Google Scholar 

  40. Bergeron S, Noskoff K, Hayakawa J, Frediani J. Empowering adolescents and young adults to support, lead, and thrive: development and validation of an AYA Oncology Child Life Program. J Pediatr Nurs [Internet]. 2019;47:1–6. Available from: https://doi.org/10.1016/j.pedn.2019.04.001.

    Article  Google Scholar 

  41. Lu Y, Pyatak EA, Peters AL, Wood JR, Kipke M, Cohen M, et al. Patient perspectives on peer mentoring: type 1 diabetes management in adolescents and young adults. Diabetes Educ. 2015;41(1):59–68.

    Article  PubMed  Google Scholar 

  42. Ahola Kohut S, LeBlanc C, O’Leary K, McPherson AC, Jelen A, McCarthy E, Nguyen C, Stinson J. Peer mentoring needs and wants of youth with chronic conditions: a qualitative analysis. Child Care Health Dev. 2019. Status: Manuscript under review.

    Google Scholar 

  43. Sattoe JN, Jedeloo S, Van Staa A. Effective peer-to-peer support for young people with end-stage renal disease: a mixed methods evaluation of Camp COOL. BMC Nephrol. 2013;14(1):1–14.

    Article  Google Scholar 

  44. Stewart M, Barnfather A, Magill-Evans J, Ray L, Letourneau NN. Brief report: an online support intervention: perceptions of adolescents with physical disabilities. J Adolesc. 2011;34:795–800.

    Article  PubMed  Google Scholar 

  45. Lim PK, Cheng TS, Hui YCA, Lim STJ, Lek N, Yap F, et al. D-buddy peer support for better health outcomes in adolescents with diabetes mellitus. Int J Pediatr Endocrinol [Internet]. 2015;2015(S1):P15. Available from: http://www.ijpeonline.com/content/2015/S1/P15.

    Article  Google Scholar 

  46. Kew KM, Carr R, Crossingham I. Lay-led and peer support interventions for adolescents with asthma. Cochrane Database Syst Rev. 2017;2017(4).

    Google Scholar 

  47. Stinson J, Ahola Kohut S, Forgeron P, Amaria K, Bell M, Kaufman M, et al. The iPeer2Peer program: a pilot randomized controlled trial in adolescents with juvenile idiopathic arthritis. Pediatr Rheumatol [Internet]. 2016;14(1):1–10. Available from: https://doi.org/10.1186/s12969-016-0108-2.

  48. O’Mahar K, Holmbeck GN, Jandasek B, Zukerman J. A camp-based intervention targeting independence among individuals with spina bifida. J Pediatr Psychol. 2010;35:848–56.

    Article  PubMed  Google Scholar 

  49. Løding R, Wold J, Skavhaug Å, Graue M. Evaluation of peer-group support and problem-solving training in the treatment of adolescents with type 1 diabetes. Eur Diabetes Nurs. 2007;4(1):28–33.

    Article  Google Scholar 

  50. Mosnaim G, Li H, Martin M, Richardson DJ, Belice PJ, Avery E, et al. The impact of peer support and mp3 messaging on adherence to inhaled corticosteroids in minority adolescents with asthma: a randomized, controlled trial. J Allergy Clin Immunol Pract [Internet]. 2013;1(5):485–93. Available from: https://doi.org/10.1016/j.jaip.2013.06.010.

  51. Harden A, Weston R, Oakley A. A review of the effectiveness and appropriateness of peer-delivered health promotion interventions for young people. In: Database of Abstracts of Reviews of Effects (DARE): Quality-assessed Reviews [Internet]. Centre for Reviews and Dissemination (UK); 1999.

    Google Scholar 

  52. Nicholas DB, Picone G, Vigneux A, McCormick K, Mantulak A, McClure M, et al. Evaluation of an online peer support network for adolescents with chronic kidney disease. J Technol Hum Serv. 2009;27(1):23–33.

    Article  Google Scholar 

  53. Kohut SA, Stinson JN, Ruskin D, Forgeron P, Harris L, Van Wyk M, et al. iPeer2Peer program: a pilot feasibility study in adolescents with chronic pain. Pain. 2016;157:1146–55.

    Article  Google Scholar 

  54. Masuda JR, Anderson S, Letourneau N, Sloan Morgan V, Stewart M. Reconciling preferences and constraints in online peer support for youth with asthma and allergies. Health Promot Pract. 2013;14(5):741–50.

    Article  PubMed  Google Scholar 

  55. Strange V, Oakley A, Forrest S. Mixed-sex or single-sex sex education: how would young people like their sex education and why? Gend Educ. 2003;15:201–14.

    Article  Google Scholar 

  56. Cassano J, Nagel K, O’Mara L. Talking with others who “just know”: perceptions of adolescents with cancer who participate in a teen group. J Pediatr Oncol Nurs. 2008;25(4):193–9.

    Article  PubMed  Google Scholar 

  57. Ellickson PL, Bell RM. Drug prevention in junior high: a multi-site longitudinal test. Science. 1990;247(4948):1299–305.

    Article  CAS  PubMed  Google Scholar 

  58. Valente T, Ritt-Olson A, Stacy A, Unger J, Okamoto J, Sussman S. Peer acceleration: effects of a social network tailored substance abuse prevention program among high-risk adolescents. Addiction. 2007;102(11):1804–15.

    Article  PubMed  Google Scholar 

  59. MacArthur GJ, Harrison S, Caldwell D, Hickman M, Campbell R. Peer-led interventions to prevent tobacco, alcohol and/or drug use among young people aged 11–21 years: a systematic review and meta-analysis. Addiction. 2016;111(3):391–407.

    Article  Google Scholar 

  60. Morisky DE, Nguyen C, Ang A, Tiglao TV. HIV/AIDS prevention among the male population: results of a peer education program for taxicab and tricycle drivers in the Philippines. Health Educ Behav. 2005;32(1):57–68.

    Article  PubMed  PubMed Central  Google Scholar 

  61. Ahola Kohut S, Stinson J, Forgeron P, Luca S, Harris L. Been there, done that: the experience of acting as a young adult mentor to adolescents living with chronic illness. J Pediatr Psychol Special Issue Adolesc Young Adult Health. 2017;42(9):962–9.

    Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Sara Ahola Kohut .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2021 Springer Nature Switzerland AG

About this chapter

Check for updates. Verify currency and authenticity via CrossMark

Cite this chapter

Kulandaivelu, Y., Kohut, S.A. (2021). Peer Support for Adolescents with Chronic Illness. In: Avery, J.D. (eds) Peer Support in Medicine. Springer, Cham. https://doi.org/10.1007/978-3-030-58660-7_5

Download citation

  • DOI: https://doi.org/10.1007/978-3-030-58660-7_5

  • Published:

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-030-58659-1

  • Online ISBN: 978-3-030-58660-7

  • eBook Packages: MedicineMedicine (R0)

Publish with us

Policies and ethics