Skip to main content

Abstract

This chapter will identify and draw on guidance available for researchers to explain the six key components of patient and public involvement (PPI) in research and how they can be implemented in practice. It will consider in particular:

  • The principles of patient and public involvement in research

  • Who to involve

  • When to involve them

  • How to involve them

  • The practicalities of involvement

  • What may go wrong and planning to deal with it

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 84.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 109.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD 109.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  • Backhouse, T., Kenkmann, A., Lane, K., Penhale, B., Poland, F., & Killett, A. (2016). Older care-home residents as collaborators or advisors in research: A systematic review. Age and Ageing. https://doi.org/10.1093/ageing/afv201.

  • Jacobs, L., Komashie, A., Lombardo, C., & Clarke, G. (2017). Patient and public involvement (PPI) in research handbook. Cambridge: CLAHRC EoE.

    Google Scholar 

  • Keenan, J., Poland, F., Boote, J., Howe, A., Wythe, H., Varley, A., Vicary, P., Irvine, L., & Wellings, A. (2019). ‘We’re passengers sailing in the same ship, but we have our own berths to sleep in’: Evaluating patient and public involvement within a regional research programme: An action research project informed by normalisation process theory. PLoS One, 14(5), e0215953.

    Article  Google Scholar 

  • Mathie, E., Wythe, H., Munday, D., Millac, P., Rhodes, G., Roberts, N., et al. (2018). Reciprocal relationships and the importance of feedback in patient and public involvement: A mixed methods study. Health Expectations, 21(5), 899–908.

    Article  Google Scholar 

  • NHS England. (2017). Working with our patient and public voice (PPV) partners – Reimbursing expenses and paying involvement payments (v2). Redditch: NHS England.

    Google Scholar 

  • NIHR. (2018). National standards for public involvement in research V1 March 2018. NIHR.

    Google Scholar 

  • NIHR INVOLVE. (2012). Briefing notes for researchers: Public involvement in NHS, public health and social care research. Eastleigh: INVOLVE.

    Google Scholar 

  • Nuffield Department of Primary Care Health Sciences. (2015). Guide for researchers working with patient and public involvement (PPI) representatives. Oxford: Nuffield Department of Primary Care Health Sciences.

    Google Scholar 

  • Poland, F., Charlesworth, G., Leung, P., & Birt, L. (2019). Embedding patient and public involvement: Managing tacit and explicit expectations. Health Expectations, 22(6), 1231–1239.

    Article  Google Scholar 

  • Turk, A., Boylan, A. M., & Locock, L. (approx 2017). A researcher’s guide to patient and public involvement. Oxford: Oxford NIHR Biomedical Research Centre.

    Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Jurgen Grotz .

Rights and permissions

Reprints and permissions

Copyright information

© 2020 The Author(s)

About this chapter

Check for updates. Verify currency and authenticity via CrossMark

Cite this chapter

Grotz, J., Ledgard, M., Poland, F. (2020). PPI in Research Practice. In: Patient and Public Involvement in Health and Social Care Research. Palgrave Macmillan, Cham. https://doi.org/10.1007/978-3-030-55289-3_3

Download citation

  • DOI: https://doi.org/10.1007/978-3-030-55289-3_3

  • Published:

  • Publisher Name: Palgrave Macmillan, Cham

  • Print ISBN: 978-3-030-55288-6

  • Online ISBN: 978-3-030-55289-3

  • eBook Packages: Social SciencesSocial Sciences (R0)

Publish with us

Policies and ethics