Abstract
Cancer deaths are increasing each year. If end-of-life care is to be improved and sustainable, a culture change is required: a culture change that changes crisis care to planned care. Advance care planning (ACP) improves care and decreases unnecessary hospital admissions and thus costs.
Changing a culture requires training and technology. Clinicians require training to create advance care plans. Sharing care plans requires technology. Digital care plans need to be editable in real time by all members of the multidisciplinary team in the acute and community sector and the plans need to be viewable by all the urgent care services. This way the patient is virtually supported 24/7.
To start the process of planning, patients in their last year of life need to be identified. This can be done algorithmically or through designed processes (e.g. triggers process).
Once identified, through advance care planning, patients can co-design their future plans and include in it their faiths, cultural beliefs, wishes and preferences.
Routine data that are collected and accessible by all service providers can identify best practice that can then be shared. Data can therefore drive up standards of caring for the dying.
Dying is a family, social, cultural and spiritual event. Modern medicine has medicalised death and increased hospitalisation of the dying. Future care of the dying requires training and technology to decrease medicalisation of death, making it a more personalised, social and spiritual event determined by the individual patient.
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Riley, J., Droney, J. (2021). Transforming End-of-Life Care Through Advance Care Planning and Sharing of Information Digitally. In: Silbermann, M. (eds) Palliative Care for Chronic Cancer Patients in the Community. Springer, Cham. https://doi.org/10.1007/978-3-030-54526-0_14
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