Abstract
Pancreatic cancer is the deadliest cancer we know and only a very few surviving patients have a possibility to be active in patients’ advocacy groups. The knowledge about pancreatic cancer, the symptoms of the disease and possible curative or palliative treatments is also very bad among the general population. These are two reasons why pancreatic cancer has not had the rightful attention by politicians and other decision makers. Lately this has changed and there are now several initiatives by patient advocacy groups, health professional organisations and governmental bodies to strengthen awareness, research and funding about pancreatic cancer. In the US the Recalcitrant Cancer Research Act improved the framework for scientific research. In Europe the EU iPAAC Joint Action specifically addresses pancreatic cancer as one of the neglected cancers and with focus on cancer by the EU Commissioner for Research, Science and Innovation, the EU Commissioner for Health and Food safety, and by Europe’s beating cancer plan there is hope that necessary actions will be taken to improve research resources and care for patients with pancreatic cancer.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
Ferlay J, Partensky C, Bray F. More deaths from pancreatic cancer than breast cancer in the EU by 2017. Acta Oncol. 2016;55(9–10):1158–60.
Rahib L, Smith BD, Aizenberg R, Rosenzweig AB, Fleshman JM, Matrisian LM. Projecting cancer incidence and deaths to 2030: the unexpected burden of thyroid, liver, and pancreas cancers in the United States. Cancer Res. 2014;74(11):2913–21.
Pancreatic Cancer Europe. [Inequality report]. https://www.pancreaticcancereurope.eu/campaign/the-pancreatic-cancer-europe-inequality-report/.
Aapro M, Astier A, Audisio R, Banks I, Bedossa P, Brain E, et al. Identifying critical steps towards improved access to innovation in cancer care: a European CanCer Organisation position paper. Eur J Cancer. 2017;82:193–202.
Hojgaard L, Lowenberg B, Selby P, Lawler M, Banks I, Law K, et al. The European Cancer Patient’s Bill of Rights, update and implementation 2016. ESMO Open. 2016;1(6):e000127.
Beating cancer: mission possible—toward effective cancer control in Europe. https://www.europeancancerleagues.org/mac-manifesto-2019/.
EPAAC. http://www.epaac.eu/home.
Albreht T, Martin-Moreno J, Jelenc M, Gorgojo L, Harris M. European guide for quality national cancer control programmes. Ljubljana: National Institute of Public Health; 2015.
CANCON. https://cancercontrol.eu/archived/who-we-are/index.html.
iPAAC. https://www.ipaac.eu/.
Pancreatic Cancer Action. https://pancreaticcanceraction.org/.
World Pancreatic Cancer Day. http://www.worldpancreaticcancerday.org/#.
Pancreatic Cancer Europe. https://www.pancreaticcancereurope.eu/.
DiCE. https://digestivecancers.eu/.
PanCAN. https://www.pancan.org/.
Lustgarten Foundation. https://www.lustgarten.org/.
PurpleStride. https://www.pancan.org/get-involved/purplestride/.
ClinicalTrials.Org. https://clinicaltrials.gov/ct2/home.
National Cancer Research Institute. https://www.ncri.org.uk/trends-in-disease-site-spend/.
Recalcitrant Cancer Research Act. https://www.congress.gov/bill/112th-congress/house-bill/733.
NCI funding. https://www.cancer.gov/about-nci/budget/fact-book/data/research-funding.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2021 Springer Nature Switzerland AG
About this chapter
Cite this chapter
Naredi, P., Albreht, T. (2021). Oncopolitics in Pancreatic Cancer. In: Søreide, K., Stättner, S. (eds) Textbook of Pancreatic Cancer. Springer, Cham. https://doi.org/10.1007/978-3-030-53786-9_10
Download citation
DOI: https://doi.org/10.1007/978-3-030-53786-9_10
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-030-53785-2
Online ISBN: 978-3-030-53786-9
eBook Packages: MedicineMedicine (R0)