Abstract
From a pharmacoepidemiological point of view, administrative real-world register data originating from routine medical practice are essential in post-approval observational studies. Finland, Sweden, and Norway are located in the north of Europe, and their combined population is around 20 million people.
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References
Baghestan E, Børdahl PE, Rasmussen SA et al (2007) A validation of the diagnosis of obstetric sphincter tears in two Norwegian databases, the Medical Birth Registry and the Patient Administration System. Acta Obstet Gynecol Scand 86(2):205–209. https://doi.org/10.1080/00016340601111364
Bakken IJ, Ariansen AMS, Knudsen GP et al (2019) The Norwegian Patient Registry and the Norwegian Registry for Primary Health Care: research potential of two nationwide health-care registries. Scand J Public Health 1403494819859737. https://doi.org/10.1177/1403494819859737
Bakken IJ, Gystad SO, Christensen ØOS et al (2012) Comparison of data from the Norwegian Patient Register and the Cancer Registry of Norway. Tidsskrift for Den Norske Lægeforening: Tidsskrift for Praktisk Medicin, Ny Række 132(11):1336–1340. https://doi.org/10.4045/tidsskr.11.1099
Barlow L, Westergren K, Holmberg L et al (2009) The completeness of the Swedish Cancer Register: a sample survey for year 1998. Acta Oncologica (Stockholm, Sweden) 48(1):27–33. https://doi.org/10.1080/02841860802247664
Cancer Registry of Norway (2020) Clinical registries. https://www.kreftregisteret.no/en/The-Registries/Clinical-Registries/. Accessed 6 Jan 2020
Finnish Cancer Registry (2019) Description of statistics and their quality. https://cancerregistry.fi/statistics/statistical-descriptions-quality-reports/. Accessed 31 Dec 2019
Finnish Institute for Health and Welfare (2020a) Congenital anomalies—quality description. https://thl.fi/en/web/thlfi-en/statistics/information-on-statistics/quality-descriptions/congenital-anomalies. Accessed 17 Jan 2020
Finnish Institute for Health and Welfare (2020b) Medical birth register—quality description. https://thl.fi/en/web/thlfi-en/statistics/information-on-statistics/quality-descriptions/parturients-delivers-and-newborns. Accessed 6 Jan 2020
Finnish Institute for Health and Welfare (2020c) Trends in access to specialised health care—quality description. https://thl.fi/en/web/thlfi-en/statistics/information-on-statistics/quality-descriptions/trends-in-access-to-specialised-health-care. Accessed 2 Jan 2020
Furu K (2008) Establishment of the nationwide Norwegian prescription database (NorPD)—new opportunities for research in pharmacoepidemiology in Norway. Norsk epidemiologi 18(2):129–136
Furu K, Kieler H, Haglund B et al (2015) Selective serotonin reuptake inhibitors and venlafaxine in early pregnancy and risk of birth defects: population based cohort study and sibling design. BMJ 350(apr17 3):h1798. https://doi.org/10.1136/bmj.h1798
Furu K, Skurtveit S, Langhammer A et al (2007) Use of anti-asthmatic medications as a proxy for prevalence of asthma in children and adolescents in Norway: a nationwide prescription database analysis. Eur J Clin Pharmacol 63(7):693–698. https://doi.org/10.1007/s00228-007-0301-9
Furu K, Wettermark B, Andersen M et al (2010) The Nordic countries as a cohort for pharmacoepidemiological research. Basic Clin Pharmacol Toxicol 106(2):86–94. https://doi.org/10.1111/j.1742-7843.2009.00494.x
Gissler M (2010) Registration of births and induced abortions in the Nordic countries. Finn Yearb Popul Res XLV:171–178
Gissler M, Shelley J (2002) Quality of data on subsequent events in a routine medical birth register. Med Inform Internet Med 27(1):33–38. https://doi.org/10.1080/14639230110119234
Helsedirektoratet (2020a) Norwegian Patient Registry—contents and quality (In Norwegian: Innhold og kvalitet i NPR). https://www.helsedirektoratet.no/tema/statistikk-registre-og-rapporter/helsedata-og-helseregistre/norsk-pasientregister-npr/innhold-og-kvalitet-i-npr. Accessed 5 Jan 2020 (in Norwegian)
Helsedirektoratet (2020b) Norwegian Registry for Primary Health Care (in Norwegian: Kommunalt pasient- og brukerregister (KPR). https://www.helsedirektoratet.no/tema/statistikk-registre-og-rapporter/helsedata-og-helseregistre/kommunalt-pasient-og-brukerregister-kpr. Accessed 5 Jan 2020 (in Norwegian)
Irgens LM (2000) The Medical Birth Registry of Norway. Epidemiological research and surveillance throughout 30 years. Acta Obstet Gynecol Scand 79(6):435–439. https://doi.org/10.1034/j.1600-0412.2000.079006435.x
Källén B (2015) Registration of congenital malformations in the Swedish Health Registers. Report of The Swedish National Board of Health and Welfare
Kansaneläkelaitos (2019) Finnish prescription register: quality description. (in Finnish: Laatuseloste: Tilasto korvatuista resepteistä). https://www.kela.fi/laatuseloste15. Accessed 23 Dec 2019 (in Finnish)
Korhonen P, Malila N, Pukkala E et al (2002) The Finnish cancer registry as follow-up source of a large trial cohort–accuracy and delay. Acta Oncologica (Stockholm, Sweden) 41(4):381–388
Langhoff-Roos J, Krebs L, Klungsøyr K et al (2014) The Nordic medical birth registers–a potential goldmine for clinical research. Acta Obstet Gynecol Scand 93(2):132–137. https://doi.org/10.1111/aogs.12302
Larsen IK, Småstuen M, Johannesen TB et al (2009) Data quality at the cancer registry of Norway: an overview of comparability, completeness, validity and timeliness. Eur J Cancer (Oxford, England: 1990) 45(7):1218–1231. https://doi.org/10.1016/j.ejca.2008.10.037
Leinonen MK, Miettinen J, Heikkinen S et al (2017) Quality measures of the population-based Finnish cancer registry indicate sound data quality for solid malignant tumours. Eur J Cancer 77:31–39. https://doi.org/10.1016/j.ejca.2017.02.017
Lovdata (2020) Regulations on the collection and treatment of health information in the Norwegian Patient Register (in Norwegian: Forskrift om innsamling og behandling av helseopplysninger i Norsk pasientregister). https://lovdata.no/dokument/SF/forskrift/2007-12-07-1389. Accessed 17 Jan 2020 (in Norwegian)
Ludvigsson JF, Andersson E, Ekbom A et al (2011) External review and validation of the Swedish national inpatient register. BMC Public Health 11:450. https://doi.org/10.1186/1471-2458-11-450
Mattsson K, Källén K, Rignell-Hydbom A et al (2016) Cotinine validation of self-reported smoking during pregnancy in the Swedish Medical Birth Register. Nicotine Tob Res: Official J Soc Res Nicotine Tob 18(1):79–83. https://doi.org/10.1093/ntr/ntv087
Nilsson M, Tavelin B, Axelsson B (2014) A study of patients not registered in the Swedish Cancer Register but reported to the Swedish Register of Palliative Care 2009 as deceased due to cancer. Acta Oncologica (Stockholm, Sweden) 53(3):414–419. https://doi.org/10.3109/0284186X.2013.819115
NorPEN (2019) Nordic PharmacoEpidemiological Network. http://www.norpen.org/pages/publications.html. Accessed 3 Jan 2019
Norwegian Institute of Public Health (2019) Norwegian prescription database. https://www.fhi.no/hn/helseregistre-og-registre/reseptregisteret/. Accessed 30 Dec 2019
Norwegian Institute of Public Health (2020a) How to apply for access to data. http://www.fhi.no/en/op/data-access-from-health-registries-health-studies-and-biobanks/data-access/applying-for-access-to-data/. Accessed 17 Jan 2020
Norwegian Institute of Public Health (2020b) Norwegian Cause of Death Registry. http://www.fhi.no/en/hn/health-registries/cause-of-death-registry/. Accessed 17 Jan 2020
Pedersen AG, Ellingsen CL (2015) Data quality in the causes of death registry. Tidsskrift for Den Norske Lægeforening: Tidsskrift for Praktisk Medicin, Ny Række 135(8):768–770. https://doi.org/10.4045/tidsskr.14.1065
Persson F, Bodegard J, Lahtela JT et al (2018) Different patterns of second-line treatment in type 2 diabetes after metformin monotherapy in Denmark, Finland, Norway and Sweden (D360 Nordic): a multinational observational study. Endocrinol, Diabetes Metab 1(4):e00036. https://doi.org/10.1002/edm2.36
Privacy Europe (2019) General Data Protection Regulation (GDPR). https://gdpr.eu/. Accessed 7 Jan 2019
Pukkala E, Engholm G, Højsgaard Schmidt LK et al (2018) Nordic cancer registries—an overview of their procedures and data comparability. Acta Oncologica (Stockholm, Sweden) 57(4):440–455. https://doi.org/10.1080/0284186X.2017.1407039
Socialstyrelsen (2019) The Swedish prescribed drug register (in Swedish: Läkemedelsregistret). https://www.socialstyrelsen.se/statistik-och-data/register/alla-register/lakemedelsregistret/. Accessed 30 Dec 2019 (in Swedish)
Socialstyrelsen (2020a) Cause of death register (in Swedish: Dödsorsaksregistret). https://www.socialstyrelsen.se/statistik-och-data/register/alla-register/dodsorsaksregistret/. Accessed 17 Jan 2020 (in Swedish)
Socialstyrelsen (2020b) Cause of death register: missing information and quality (in Swedish: Dödorsaksregistret: Bortfall och kvalitet). https://www.socialstyrelsen.se/statistik-och-data/register/alla-register/dodsorsaksregistret/bortfall-och-kvalitet/. Accessed 6 Jan 2020 (in Swedish)
Socialstyrelsen (2020c) Medical birth register: missing information and quality (in Swedish: Bortfall och kvalitet om medicinska födelseregistret). https://www.socialstyrelsen.se/statistik-och-data/register/alla-register/medicinska-fodelseregistret/bortfall-och-kvalitet/. Accessed 6 Jan 2020 (in Swedish)
Socialstyrelsen (2020d) The national patient register—Socialstyrelsen. https://www.socialstyrelsen.se/en/statistics-and-data/registers/register-information/the-national-patient-register/. Accessed 5 Jan 2020
Socialstyrelsen (2020e) Order data and statistics (in Swedish: Beställa data och statistik). https://bestalladata.socialstyrelsen.se/data-for-forskning/tid-och-kostnader/. Accessed 17 Jan 2020 (in Swedish)
Socialstyrelsen (2020f) The Swedish prescribed drug register—missing information and quality (In Swedish: Läkemedelsregistret - Bortfall och kvalitet). https://www.socialstyrelsen.se/statistik-och-data/register/alla-register/lakemedelsregistret/bortfall-och-kvalitet/. Accessed 2 Jan 2020
Statistics Finland (2020a) Causes of death in 2018. http://www.stat.fi/til/ksyyt/2018/ksyyt_2018_2019-12-16_kat_001_en.html. Accessed 17 Jan 2020
Statistics Finland (2020b) Quality description: causes of death 2017. https://www.stat.fi/til/ksyyt/2017/ksyyt_2017_2018-12-17_laa_001_en.html. Accessed 6 Jan 2020
Sund R (2012) Quality of the Finnish hospital discharge register: a systematic review. Scand J Public Health 40(6):505–515. https://doi.org/10.1177/1403494812456637
Swedish Association of Local Authorities and Regions (2020a) National quality registers in Sweden (in Swedish: Nationella Kvalitetsregister). www.kvalitetsregister.se. Accessed 6 Jan 2020 (in Swedish)
Swedish Association of Local Authorities and Regions (2020b) Primary care quality Sweden. https://skr.se/tjanster/englishpages/activities/primarycarequality.10073.html. Accessed 5 Jan 2020
Terveyden ja hyvinvoinnin laitos (2020a) Collection of data in occupational healthcare (in Finnish: Työterveyshuollon tietojen tiedonkeruu). https://thl.fi/tilastot-ja-data/ohjeet-tietojen-toimittamiseen/tyoterveyshuollon-tietojen-tiedonkeruu. Accessed 6 Jan 2020 (in Finnish)
Terveyden ja hyvinvoinnin laitos (2020b) National healthcare quality registers (in Finnish: Terveydenhuollon kansalliset laaturekisterit). https://thl.fi/web/sote-uudistus/arviointi-ja-tietoikkuna/terveydenhuollon-kansalliset-laaturekisterit. Accessed 6 Jan 2020 (in Finnish)
The National Board of Health and Welfare (2020) Swedish cancer registry. https://www.socialstyrelsen.se/en/statistics-and-data/registers/register-information/swedish-cancer-register/. Accessed 6 Jan 2020
Wallerstedt SM, Wettermark B, Hoffmann M (2016) The first decade with the Swedish Prescribed drug register—a systematic review of the output in the scientific literature. Basic Clin Pharmacol Toxicol 119(5):464–469. https://doi.org/10.1111/bcpt.12613
Wettermark B, Hammar N, Fored CM et al (2007) The new Swedish prescribed drug register–opportunities for pharmacoepidemiological research and experience from the first six months. Pharmacoepidemiol Drug Saf 16(7):726–735. https://doi.org/10.1002/pds.1294
Wettermark B, Zoëga H, Furu K et al (2013) The Nordic prescription databases as a resource for pharmacoepidemiological research—a literature review. Pharmacoepidemiol Drug Saf 22(7):691–699. https://doi.org/10.1002/pds.3457
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Prami, T., Juuti, R., Iso-Mustajärvi, I. (2021). Pharmacoepidemiological Research Data Sources in the Nordic Countries—Administrative Registers in Finland, Sweden, and Norway. In: Sturkenboom, M., Schink, T. (eds) Databases for Pharmacoepidemiological Research. Springer Series on Epidemiology and Public Health. Springer, Cham. https://doi.org/10.1007/978-3-030-51455-6_6
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