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Quality of Life in Female Adolescents with Bleeding Disorders

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Hematology in the Adolescent Female

Abstract

Inherited bleeding disorders in adolescent girls often manifest as heavy menstrual bleeding and impact quality of life, especially health-related quality of life (HRQOL). Currently there are many validated tools to assess bleeding severity, as well as measure menstrual blood loss; however, the metrics to measure quality of life in adolescents are lacking. Furthermore, the metrics used for adults do not necessarily apply to the adolescent population. In this chapter, we have explained and outlined the available metrics for measuring HRQOL, their pros and cons, and the areas that need more research in this particular population.

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Author information

Authors and Affiliations

  1. University of California Davis, Hemostasis and Thrombosis Center, Professor Department of Pediatrics, Hematology Oncology, Sacramento, CA, USA

    Anjali Pawar

  2. Michigan State University Center for Bleeding and Clotting Disorders, Emerita Pediatric Hematology/Oncology, Department of Pediatrics and Human Development, B216 Clinical Center, East Lansing, MI, USA

    Roshni Kulkarni

Authors
  1. Anjali Pawar
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  2. Roshni Kulkarni
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Correspondence to Anjali Pawar .

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Editors and Affiliations

  1. Department of Pediatrics, Baylor College of Medicine, Houston, TX, USA

    Lakshmi V. Srivaths

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Pawar, A., Kulkarni, R. (2020). Quality of Life in Female Adolescents with Bleeding Disorders. In: Srivaths, L. (eds) Hematology in the Adolescent Female. Springer, Cham. https://doi.org/10.1007/978-3-030-48446-0_12

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  • DOI: https://doi.org/10.1007/978-3-030-48446-0_12

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  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-030-48445-3

  • Online ISBN: 978-3-030-48446-0

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