Abstract
Clinicians, public health professionals, and others involved in the care of an infant and family after SUID can feel ill prepared to offer support and guidance in the aftermath of this tragic loss. This chapter focuses on family experiences, likely responses, available resources, and the clinician’s role following SUID. Infants die from SUID both with and without risk factors, and they often have predictable questions. Coping after SUID is an isolating and extremely difficult experience for parents. Most of their relationships are tested. Rates of Prolonged Grief Disorder are extremely high when compared to other kinship groups. Concrete contributions include guiding the family through the forensic system and advocating for their need to find answers. The family will be helped by counseling about grief and anticipating solutions to social complexities. In any interaction, assessing their coping, saying their child’s name, and letting them tell their story will have therapeutic value.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
Garstang J, Griffiths F, Sidebotham P. What do bereaved parents want from professionals after the sudden death of their child: a systematic review of the literature. BMC Pediatr. 2014;14:269. PMCID: PMC4287432. Epub 2014/10/15.
Camperlengo L, Shapiro-Mendoza CK, Gibbs F. Improving sudden unexplained infant death investigation practices: an evaluation of the Centers for Disease Control and Prevention’s SUID Investigation Training Academies. Am J Forensic Med Pathol. 2014;35(4):278–82.
Fleming PJ, Blair PS, Sidebotham PD, Hayler T. Investigating sudden unexpected deaths in infancy and childhood and caring for bereaved families: an integrated multiagency approach. BMJ. 2004;328(7435):331–4. PMCID: PMC338105.
Mitchell RA, DiAngelo C, Morgan D. Medicolegal Death Investigation of sudden unexpected infant deaths. Pediatr Ann. 2017;46(8):e297–e302.
Erck Lambert AB, Parks SE, Camperlengo L, Cottengim C, Anderson RL, Covington TM, et al. Death Scene Investigation and autopsy practices in sudden unexpected infant deaths. J Pediatr. 2016;174:84–90.e1. PMCID: PMC5063238. Epub 2016/04/22.
Petrikin JE, Willig LK, Smith LD, Kingsmore SF. Rapid whole genome sequencing and precision neonatology. Seminars in perinatology. 2015;39(8):623–31. PMCID: PMC4657860. Epub 2015/11/02.
The National Association of Medical Examiners. NAME Inspection and Accreditation Checklist. 2018. p. 23.
Goldstein RD, Nields HM, Kinney HC. A New approach to the investigation of sudden unexpected death. Pediatrics. 2017;140(2):e20170024.
Martin K. When a baby dies of SIDS: the parents’ grief and search for reason. New York: Routledge; 2016.
Filiano JJ, Kinney HC. A perspective on neuropathologic findings in victims of the sudden infant death syndrome: the triple-risk model. Biol Neonate. 1994;65(3–4):194–7.
Moon RY, Task Force On Sudden Infant Death S. SIDS and other sleep-related infant deaths: evidence base for 2016 updated recommendations for a safe infant sleeping environment. Pediatrics. 2016;138(5):e20162940.
Kinney HC, Thach BT. The sudden infant death syndrome. N Engl J Med. 2009;361(8):795–805. PMCID: 3268262.
Kinney HC, Richerson GB, Dymecki SM, Darnall RA, Nattie EE. The brainstem and serotonin in the sudden infant death syndrome. Ann Rev Pathol. 2009;4:517–50. PMCID: 3268259.
Cummings KJ, Commons KG, Hewitt JC, Daubenspeck JA, Li A, Kinney HC, et al. Failed heart rate recovery at a critical age in 5-HT-deficient mice exposed to episodic anoxia: implications for SIDS. J Appl Physiol. 2011;111(3):825–33. PMCID: 3174796.
Cummings KJ, Hewitt JC, Li A, Daubenspeck JA, Nattie EE. Postnatal loss of brainstem serotonin neurones compromises the ability of neonatal rats to survive episodic severe hypoxia. J Physiol. 2011;589(Pt 21):5247–56. PMCID: 3225677.
Dosumu-Johnson RT, Cocoran AE, Chang Y, Nattie E, Dymecki SM. Acute perturbation of Pet1-neuron activity in neonatal mice impairs cardiorespiratory homeostatic recovery. eLife. 2018;7. PMCID: PMC6199134. Epub 2018/10/24.
Kinney HC, Cryan JB, Haynes RL, Paterson DS, Haas EA, Mena OJ, et al. Dentate gyrus abnormalities in sudden unexplained death in infants: morphological marker of underlying brain vulnerability. Acta Neuropathol. 2015;129(1):65–80. PMCID: 4282685.
Tester DJ, Wong LCH, Chanana P, Jaye A, Evans JM, FitzPatrick DR, et al. Cardiac genetic predisposition in sudden infant death syndrome. J Am Coll Cardiol. 2018;71(11):1217–27.
Morris S, Fletcher K, Goldstein R. The grief of parents after the death of a young child. J Clin Psychol Med Settings. 2018;26(3):321–38. Epub 2018/11/30
Moon RY, Patel KM, Shaefer SJ. Sudden infant death syndrome in child care settings. Pediatrics. 2000;106(2 Pt 1):295–300.
Mitchell EA, Thach BT, Thompson JM, Williams S. Changing infants’ sleep position increases risk of sudden infant death syndrome. New Zealand Cot Death Study. Arch Pediatr Adolesc Med. 1999;153(11):1136–41. Epub 1999/11/11
Cote A, Gerez T, Brouillette RT, Laplante S. Circumstances leading to a change to prone sleeping in sudden infant death syndrome victims. Pediatrics. 2000;106(6):E86. Epub 2000/01/11
Juth V, Smyth JM, Carey MP, Lepore SJ. Social constraints are associated with negative psychological and physical adjustment in bereavement. Appl Psychol Health Well Being. 2015;7(2):129–48. Epub 2015/02/24
Lepore SJ, Silver RC, Wortman CB, Wayment HA. Social constraints, intrusive thoughts, and depressive symptoms among bereaved mothers. J Pers Soc Psychol. 1996;70(2):271–82.
Goldstein RD. Unpublished data from NIH ancillary study, Maternal Grief in High Risk Settings. 2016.
Stroebe M, Stroebe W, van de Schoot R, Schut H, Abakoumkin G, Li J. Guilt in bereavement: the role of self-blame and regret in coping with loss. PloS One. 2014;9(5):e96606. PMCID: PMC4018291. Epub 2014/05/14.
Erev I, Glozman I, Hertwig R. What impacts the impact of rare events. J Risk Uncertain. 2008;36(2):153–77.
Hunt CE. Sudden infant death syndrome and other causes of infant mortality: diagnosis, mechanisms, and risk for recurrence in siblings. Am J Respir Crit Care Med. 2001;164(3):346–57.
Christensen ED, Berger J, Alashari MM, Coon H, Robison C, Ho HT, et al. Sudden infant death “syndrome”-insights and future directions from a Utah population database analysis. Am J Med Genet A. 2017;173(1):177–82. Epub 2016/10/30
Warland J, O’Leary J, McCutcheon H, Williamson V. Parenting paradox: parenting after infant loss. Midwifery. 2011;27(5):e163–9.
Morris S, Fletcher K, Goldstein R. The grief of parents after the death of a young child. J Clin Psychol Med Settings. 2019;26(3):321–38. Epub 2018/11/30
Bowlby J. Attachment and loss: retrospect and prospect. Am J Orthopsychiatry. 1982;52(4):664–78. Epub 1982/10/01
Prigerson HG, Horowitz MJ, Jacobs SC, Parkes CM, Aslan M, Goodkin K, et al. Prolonged grief disorder: psychometric validation of criteria proposed for DSM-V and ICD-11. PLoS Med. 2009;6(8):e1000121. PMCID: PMC2711304.
Goldstein RD, Lederman RI, Lichtenthal WG, Morris SE, Human M, Elliott AJ, et al. The grief of mothers after the sudden unexpected death of their infants. Pediatrics. 2018;141(5):e20173651.
Dyregrov A, Dyregrov K. Long-term impact of sudden infant death: a 12- to 15-year follow-up. Death Stud. 1999;23(7):635–61.
Goldstein RD, Petty CR, Morris SE, Human M, Odendaal H, Elliott A, et al. Pre-loss personal factors and prolonged grief disorder in bereaved mothers. Psychol Med. 2018;9:1–9. Epub 2018/11/10
Hofer MA. Relationships as regulators: a psychobiologic perspective on bereavement. Psychosom Med. 1984;46(3):183–97.
Stroebe M, Finkenauer C, Wijngaards-de Meij L, Schut H, van den Bout J, Stroebe W. Partner-oriented self-regulation among bereaved parents: the costs of holding in grief for the partner’s sake. Psychol Sci. 2013;24(4):395–402.
Wijngaards-de Meij L, Stroebe M, Schut H, Stroebe W, van den Bout J, van der Heijden PG, et al. Parents grieving the loss of their child: interdependence in coping. Br J Clin Psychol. 2008;47(Pt 1):31–42.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2020 Springer Nature Switzerland AG
About this chapter
Cite this chapter
Goldstein, R.D. (2020). If the Unthinkable Happens: Families After SUID. In: Moon, R. (eds) Infant Safe Sleep. Springer, Cham. https://doi.org/10.1007/978-3-030-47542-0_11
Download citation
DOI: https://doi.org/10.1007/978-3-030-47542-0_11
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-030-47541-3
Online ISBN: 978-3-030-47542-0
eBook Packages: MedicineMedicine (R0)