Skip to main content

Domiciliary Noninvasive Ventilation: Strategies for Improving Adherence to Home Use

  • Chapter
  • First Online:
Enhancing Patient Engagement in Pulmonary Healthcare

Part of the book series: Respiratory Medicine ((RM))

  • 594 Accesses

Abstract

Domiciliary noninvasive ventilation (NIV) is increasingly used in patients with chronic respiratory failure. Good adherence to NIV decreases hospitalization rates and requires the collaboration among patients, family members, professionals, prescribing centers, companies, third-party payers, and other stakeholders. Ventilator malfunction is a rare event; however, mistakes in interaction between users and the ventilator may cause problems. Therefore, discharge plans and training on the equipment, illustrating potential problems and identifying possible solutions, are essential.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 69.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 89.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD 109.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Similar content being viewed by others

References

  1. Ambrosino N, Vitacca M. The patient needing prolonged mechanical ventilation: a narrative review. Multidiscip Respir Med. 2018;13:6. https://doi.org/10.1186/s40248-018-0118-7.

    Article  PubMed  PubMed Central  Google Scholar 

  2. Lloyd-Owen SJ, Donaldson GC, Ambrosino N, Escarabill J, Farre R, Fauroux B, Robert D, Schoenhofer B, Simonds AK, Wedzicha JA. Patterns of home mechanical ventilation use in Europe: results from the Eurovent survey. Eur Respir J. 2005;25(6):1025–31.

    Article  CAS  Google Scholar 

  3. Rose L, McKim DA, Katz SL, Leasa D, Nonoyama M, Pedersen C, Goldstein RS, Road JD, CANuVENT Group. Home mechanical ventilation in Canada: a national survey. Respir Care. 2015;60(5):695–704. https://doi.org/10.4187/respcare.03609.

    Article  PubMed  Google Scholar 

  4. Garner DJ, Berlowitz DJ, Douglas J, Harkness N, Howard M, McArdle N, Naughton MT, Neill A, Piper A, Yeo A, Young A. Home mechanical ventilation in Australia and New Zealand. Eur Respir J. 2013;41(1):39–45. https://doi.org/10.1183/09031936.00206311.

    Article  PubMed  Google Scholar 

  5. Kohnlein T, Windisch W, Kohler D, Drabik A, Geiseler J, Hartl S, Karg O, Laier-Groeneveld G, Nava S, Schönhofer B, Schucher B, Wegscheider K, Criée CP, Welte T. Non-invasive positive pressure ventilation for the treatment of severe stable chronic obstructive pulmonary disease: a prospective, multicentre, randomised, controlled clinical trial. Lancet Respir Med. 2014;2(9):698–705. https://doi.org/10.1016/S2213-2600(14)70153-5.

    Article  PubMed  Google Scholar 

  6. Murphy PB, Rehal S, Arbane G, Bourke S, Calverley PMA, Crook AM, Dowson L, Duffy N, Gibson GJ, Hughes PD, Hurst JR, Lewis KE, Mukherjee R, Nickol A, Oscroft N, Patout M, Pepperell J, Smith I, Stradling JR, Wedzicha JA, Polkey MI, Elliott MW, Hart N. Effect of home noninvasive ventilation with oxygen therapy vs oxygen therapy alone on hospital readmission or death after an acute COPD exacerbation: a randomized clinical trial. JAMA. 2017;317(21):2177–86. https://doi.org/10.1001/jama.2017.4451.

    Article  PubMed  PubMed Central  Google Scholar 

  7. Simonds AK. Home mechanical ventilation: an overview. Ann Am Thorac Soc. 2016;13(11):2035–44.

    Article  Google Scholar 

  8. Vitacca M, Ambrosino N. Non-invasive ventilation as an adjunct to exercise training in chronic ventilatory failure: a narrative review. Respiration. 2019;97(1):3–11. https://doi.org/10.1159/000493691.

    Article  PubMed  Google Scholar 

  9. Nonoyama ML, McKim DA, Road J, Guerriere D, Coyte PC, Wasilewski M, Avendano M, Katz SL, Amin R, Goldstein R, Zagorski B, Rose L. Healthcare utilisation and costs of home mechanical ventilation. Thorax. 2018:thoraxjnl-2017-211138. https://doi.org/10.1136/thoraxjnl-2017-211138. [Epub ahead of print].

  10. Satici C, Arpinar Yigitbas B, Seker B, Demirkol MA, Kosar AF. Does adherence to domiciliary NIMV decrease the subsequent hospitalizations rates and cost for patients diagnosed with COPD? COPD. 2018;15(3):303–9. https://doi.org/10.1080/15412555.2018.

    Article  PubMed  Google Scholar 

  11. Borel JC, Pepin JL, Pison C, Vesin A, Gonzalez-Bermejo J, Court-Fortune I, Timsit JF. Long-term adherence with non-invasive ventilation improves prognosis in obese COPD patients. Respirology. 2014;19(6):857–65. https://doi.org/10.1111/resp.12327.

    Article  PubMed  Google Scholar 

  12. Yazar EE, Özlü T, Sarıaydın M, Taylan M, Ekici A, Aydın D, Coşgun İG, Durmuş KN. Prospective cross-sectional multicenter study on domiciliary noninvasive ventilation in stable hypercapnic COPD patients. Int J Chron Obstruct Pulmon Dis. 2018;13:2367–74. https://doi.org/10.2147/COPD.S164384.

    Article  PubMed  PubMed Central  Google Scholar 

  13. Kelly JL, Jaye J, Pickersgill RE, Chatwin M, Morrell MJ, Simonds AK. Randomized trial of ‘intelligent’ autotitrating ventilation versus standard pressure support non-invasive ventilation: impact on adherence and physiological outcomes. Respirology. 2014;19(4):596–603. https://doi.org/10.1111/resp.12269.

    Article  PubMed  Google Scholar 

  14. Huang XA, Du YP, Li LX, Wu FF, Hong SQ, Tang FX, Ye ZQ. Comparing the effects and compliance between volume assured and pressure support non-invasive ventilation in patients with chronic respiratory failure. Clin Respir J. 2019;13(5):289–98. https://doi.org/10.1111/crj.13009. [Epub 2019 Mar 25].

  15. Hannan LM, Rautela L, Berlowitz DJ, McDonald CF, Cori JM, Sheers N, Chao C, O’Donoghue FJ, Howard ME. Randomised controlled trial of polysomnographic titration of non-invasive ventilation. Eur Respir J. 23;53(5):1802118. https://doi.org/10.1183/13993003.02118-2018. [Print 2019 May].

  16. Zampogna E, Spanevello A, Lucioni AM, Facchetti C, Sotgiu G, Saderi L, Ambrosino N, Visca D. Adherence to continuous positive airway pressure in patients with obstructive sleep apnoea. A ten year real life study. Respir Med. 2019;150:95–100. https://doi.org/10.1016/j.rmed.2019.02.017.

    Article  PubMed  Google Scholar 

  17. Boussaïd G, Lofaso F, Santos DB, Vaugier I, Pottier S, Prigent H, Orlikowski D, Bahrami S. Factors influencing compliance with non-invasive ventilation at long-term in patients with myotonic dystrophy type 1: a prospective cohort. Neuromuscul Disord. 2016;26(10):666–74. https://doi.org/10.1016/j.nmd.2016.07.014.

    Article  PubMed  Google Scholar 

  18. American Association for Respiratory Care. Clinical practice guideline: discharge planning of the respiratory care patient. Respir Care. 1995;40(12):1308–12.

    Google Scholar 

  19. Windisch W, Geiseler J, Simon K, Walterspacher S, Dreher M, on behalf of the Guideline Commission. German national guideline for treating chronic respiratory failure with invasive and non-invasive ventilation: revised edition 2017 – Part 1. Respiration. 2018;96(1):66–97. https://doi.org/10.1159/000488001.

    Article  PubMed  Google Scholar 

  20. Windisch W, Geiseler J, Simon K, Walterspacher S, Dreher M, on behalf of the Guideline Commission. German national guideline for treating chronic respiratory failure with invasive and non-invasive ventilation: revised edition 2017 – Part 2. Respiration. 2018;96(2):171–203. https://doi.org/10.1159/000488667.

    Article  PubMed  Google Scholar 

  21. Crimi C, Pierucci P, Carlucci A, Cortegiani A, Gregoretti C. Long-Term ventilation in neuromuscular patients: review of concerns, beliefs, and ethical dilemmas. Respiration. 2019;97(3):185–96. https://doi.org/10.1159/000495941.

    Article  PubMed  Google Scholar 

  22. Evans R, Catapano MA, Brooks D, Goldstein RS, Avendano M. Family caregiver perspectives on caring for ventilator-assisted individuals at home. Can Respir J. 2012;19(6):373–99.

    Article  Google Scholar 

  23. Escarrabil J, Norregaard O. Discharging the patient on home ventilation. In: Elliott M, Nava S, Schonofer B, editors. Non-invasive ventilation and weaning. 2nd ed: Taylor & Francis. Florida, USA; 2018. p. 207–15.

    Google Scholar 

  24. Dale CM, King J, Nonoyama M, Carbone S, McKim D, Road J, Rose L, CANuVENT Group. Transitions to home mechanical ventilation: the experiences of Canadian ventilator-assisted adults and their family caregivers. Ann Am Thorac Soc. 2018;15(3):357–64. https://doi.org/10.1513/AnnalsATS.201708-663OC.

    Article  PubMed  Google Scholar 

  25. Cameron JI, Chu LM, Matte A, Tomlinson G, Chan L, Thomas C, et al. One-year outcomes in caregivers of critically ill patients. N Engl J Med. 2016;374(19):1831–41. https://doi.org/10.1056/NEJMoa1511160.

    Article  CAS  PubMed  Google Scholar 

  26. Norregaard O. Patient and caregiver education. In Elliott M, Nava S, Schonofer B. Non-invasive ventilation and weaning. 2nd Taylor & Francis. Florida, USA, 2018. pp 200–206.

    Google Scholar 

  27. Karim HMR, Burns KEA, Ciobanu LD, El-Khatib M, Nicolini A, Vargas N, et al. Noninvasive ventilation: education and training. A narrative analysis and an international consensus document. Adv Respir Med. 2019;87(1):36–45. https://doi.org/10.5603/ARM.a2019.0006. [Epub 2019 Mar 4].

  28. Arnal JM, Texereau J, Garnero A. Practical insight to monitor home NIV in COPD patients. COPD. 2017;14(4):401–10. https://doi.org/10.1080/15412555.2017.

    Article  PubMed  Google Scholar 

  29. Farre R, Lloyd-Owen SJ, Ambrosino N, Donaldson G, Escarrabill J, Fauroux B, Robert D, Schoenhofer B, Simonds A, Wedzicha JA. Quality control of equipment in home mechanical ventilation: a European survey. Eur Respir J. 2005;26(1):86–94.

    Article  CAS  Google Scholar 

  30. Chatwin M, Heather S, Hanak A, Polkey MI, Simonds AK. Analysis of home support and ventilator malfunction in 1,211 ventilator-dependent patients. Eur Respir J. 2010;35(2):310–6. https://doi.org/10.1183/09031936.00073409.

    Article  CAS  PubMed  Google Scholar 

  31. Ambrosino N, Vitacca M, Dreher M, Isetta V, Montserrat JM, Tonia T, Turchetti G, Winck JC, Burgos F, Kampelmacher M, Vagheggini G, ERS Tele-Monitoring of Ventilator-Dependent Patients Task Force. Tele-monitoring of ventilator-dependent patients: a European Respiratory Society statement. Eur Respir J. 2016;48(3):648–63. https://doi.org/10.1183/13993003.01721-2015.

    Article  PubMed  Google Scholar 

  32. Donner CF, Raskin J, ZuWallack R, Nici L, Ambrosino N, Balbi B, Blackstock F, Casaburi R, Dreher M, Effing T, Goldstein R, Krishnan J, Lareau SC, Make BJ, Maltais F, Meek P, Morgan M, Pépin JL, Rabbito C, Rochester CL, Silverman AR, Singh S, Spruit MA, Vitacca M, Williams L. Incorporating telemedicine into the integrated care of the COPD patient a summary of an interdisciplinary workshop held in Stresa, Italy, 7-8 September 2017. Respir Med. 2018;143:91–102. https://doi.org/10.1016/j.rmed.2018.09.003.

    Article  PubMed  Google Scholar 

  33. Ambrosino N, Fracchia C. The role of tele-medicine in patients with respiratory diseases. Expert Rev Respir Med. 2017;11(11):893–900. https://doi.org/10.1080/17476348.2017.1383898.

    Article  CAS  PubMed  Google Scholar 

  34. Vitacca M, Comini L, Tabaglio E, Platto B, Gazzi L. Tele-assisted palliative homecare for advanced chronic obstructive pulmonary disease: a feasibility study. J Palliat Med. 2019;22(2):173–8. https://doi.org/10.1089/jpm.2018.0321.

    Article  PubMed  Google Scholar 

  35. Vitacca M, Bianchi L, Guerra A, Fracchia C, Spanevello A, Balbi B, Scalvini S. Tele-assistance in chronic respiratory failure patients: a randomised clinical trial. Eur Respir J. 2009;33(2):411–8. https://doi.org/10.1183/09031936.00005608.

    Article  CAS  PubMed  Google Scholar 

  36. Chatwin M, Hawkins G, Panicchia L, Woods A, Hanak A, Lucas R, Baker E, Ramhamdany E, Mann B, Riley J, Cowie MR, Simonds AK. Randomised crossover trial of telemonitoring in chronic respiratory patients (TeleCRAFT trial). Thorax. 2016;71(4):305–11.

    Article  CAS  Google Scholar 

  37. Pinto A, Almeida JP, Pinto S, Pereira J, Oliveira AG, de Carvalho M. Home telemonitoring of non-invasive ventilation decreases healthcare utilisation in a prospective controlled trial of patients with amyotrophic lateral sclerosis. J Neurol Neurosurg Psychiatry. 2010;81(11):1238–42. https://doi.org/10.1136/jnnp.2010.206680.

    Article  PubMed  Google Scholar 

  38. Vitacca M, Paneroni M, Grossetti F, Ambrosino N. Is there any additional effect of tele-assistance on long-term care programmes in hypercapnic COPD patients? A retrospective study. COPD. 2016;13(5):576–82. https://doi.org/10.3109/15412555.2016.1147542.

    Article  PubMed  Google Scholar 

  39. Borel JC, Palot A, Patout M. Technological advances in home non-invasive ventilation monitoring: reliability of data and effect on patient outcomes. Respirology. 2019;24:1143. https://doi.org/10.1111/resp.13497. [Epub ahead of print].

    Article  PubMed  Google Scholar 

  40. Mansell SK, Cutts S, Hackney I, Wood MJ, Hawksworth K, Creer DD, Kilbride C, Mandal S. Using domiciliary non-invasive ventilator data downloads to inform clinical decision-making to optimise ventilation delivery and patient compliance. BMJ Open Respir Res. 2018;5(1):e000238. https://doi.org/10.1136/bmjresp-2017-000238.

    Article  PubMed  PubMed Central  Google Scholar 

  41. Masefield S, Vitacca M, Dreher M, Kampelmacher M, Escarrabill J, Paneroni M, Powell P, Ambrosino N. Attitudes and preferences of home mechanical ventilation users from four European countries: an ERS/ELF survey. ERJ Open Res. 2017;3(2):00015-2017. https://doi.org/10.1183/23120541.00015-2017.

    Article  PubMed  PubMed Central  Google Scholar 

  42. Crimi C, Noto A, Princi P, Cuvelier A, Masa JF, Simonds A, Elliott MW, Wijkstra P, Windisch W, Nava S. Domiciliary non-invasive ventilation in COPD: an international survey of indications and practices. COPD. 2016;13(4):483–90. https://doi.org/10.3109/15412555.2015.1108960.

    Article  PubMed  Google Scholar 

  43. Clini EM, Ambrosino N, Crisafulli E, Vagheggini G. NIV in chronic COPD. In: Elliott M, Nava S, Schonofer B, editors. Non-invasive ventilation and weaning. 2nd ed: Taylor & Francis, Florida, USA; 2018. p. 258–65.

    Google Scholar 

  44. Pallero M, Puy C, Güell R, Pontes C, Martí S, Torres F, Antón A, Muñoz X. Ambulatory adaptation to noninvasive ventilation in restrictive pulmonary disease: a randomized trial with cost assessment. Respir Med. 2014;108(7):1014–22. https://doi.org/10.1016/j.rmed.2014.04.016.

    Article  PubMed  Google Scholar 

  45. Bertella E, Banfi P, Paneroni M, Grilli S, Bianchi L, Volpato E, Vitacca M. Early initiation of night-time NIV in an outpatient setting: a randomized non-inferiority study in ALS patients. Eur J Phys Rehabil Med. 2017;53(6):892–9. https://doi.org/10.23736/S1973-9087.17.04511-7.

    Article  PubMed  Google Scholar 

  46. Vitacca M, Nava S, Confalonieri M, Bianchi L, Porta R, Clini E, Ambrosino N. The appropriate setting of noninvasive pressure support ventilation in stable COPD patients. Chest. 2000;118(5):1286–93.

    Article  CAS  Google Scholar 

  47. Dellaca RL, Rotger M, Aliverti A, Navajas D, Pedotti A, Farre R. Noninvasive detection of expiratory flow limitation in COPD patients during nasal CPAP. Eur Respir J. 2006;27(5):983–91.

    Article  CAS  Google Scholar 

  48. Suh ES, Murphy PB, Hart N. Home mechanical ventilation for chronic obstructive pulmonary disease: what next after the HOT-HMV trial? Respirology. 2019;24(8):732–9. https://doi.org/10.1111/resp.13484. [Epub 2019 Feb 7].

  49. Murphy PB, Arbane G, Ramsay M, Suh ES, Mandal S, Jayaram D, Leaver S, Polkey MI, Hart N. Safety and efficacy of auto-titrating noninvasive ventilation in COPD and obstructive sleep apnoea overlap syndrome. Eur Respir J. 2015;46(2):548–51. https://doi.org/10.1183/09031936.00205714.

    Article  PubMed  Google Scholar 

  50. Vitacca M, Barbano L, D’Anna S, Porta R, Bianchi L, Ambrosino N. Comparison of five bilevel pressure ventilators in patients with chronic ventilator failure: a physiologic study. Chest. 2002;122(6):2105–14.

    Article  Google Scholar 

  51. Esendağlı D, Sarınç Ulaşlı S, Esquinas A. Humidification therapy; long-term effects in COPD and OSAS patients. Tuberk Toraks. 2018;66(1):57–63. https://doi.org/10.5578/tt.66532.

    Article  PubMed  Google Scholar 

  52. Ambrosino N, Clini E. Long-term mechanical ventilation and nutrition. Respir Med. 2004;98(5):413–20.

    Article  Google Scholar 

  53. Dupuis-Lozeron E, Gex G, Pasquina P, Bridevaux PO, Borel JC, Soccal PM, Windisch W, Pépin JL, Janssens JP, Adler D. Development and validation of a simple tool for the assessment of home noninvasive ventilation: the S3-NIV questionnaire. Eur Respir J. 2018;52(5):1801182. https://doi.org/10.1183/13993003.011822018.

    Article  PubMed  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2020 Springer Nature Switzerland AG

About this chapter

Check for updates. Verify currency and authenticity via CrossMark

Cite this chapter

Ambrosino, N. (2020). Domiciliary Noninvasive Ventilation: Strategies for Improving Adherence to Home Use. In: Moy, M., Blackstock, F., Nici, L. (eds) Enhancing Patient Engagement in Pulmonary Healthcare. Respiratory Medicine. Humana, Cham. https://doi.org/10.1007/978-3-030-44889-9_12

Download citation

  • DOI: https://doi.org/10.1007/978-3-030-44889-9_12

  • Published:

  • Publisher Name: Humana, Cham

  • Print ISBN: 978-3-030-44888-2

  • Online ISBN: 978-3-030-44889-9

  • eBook Packages: MedicineMedicine (R0)

Publish with us

Policies and ethics