Abstract
This chapter focusses on supporting and coordinating care for people with learning disabilities who might experience multiple health conditions in contemporary healthcare systems. The chapter presents an adapted version of the ‘House of Care’ for carers, supporters and professionals to reflect on their knowledge and understanding of the person, including their physical, emotional and spiritual needs. This knowledge is vital in facilitating and supporting the individual to have their competing healthcare needs met by social and primary care staff. Several significant support structures such as purchasing services, ensuring staff have the right information and that carers and care workers have the right education and attributes to work across organisational boundaries and maintain a shared purpose, are also identified. These are exemplified with scenarios and narratives from the author’s experience and practice.
Keywords
- Holistic care
- Multimorbidity
- Learning disabilities
- Partnership
- Digital care
- Social prescribing
- Navigation
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Academy of Medical Royal Colleges. Coordinating care: in primary, community and outpatients settings. London: Academy of Medical Royal Colleges; 2015. https://www.aomrc.org.uk/wp-content/uploads/2016/05/Coordinating_care_pcos_1015.pdf. Accessed 10 Nov 2019.
Baillie L. Working in partnership with patients and carers. Nurs Stand. 2016;31(15):42–5.
Benner P. From novice to expert. Excellence and power in clinical nursing practice. London: Prentice Hall; 2001.
Coulter A, Roberts S, Dixon A. Delivering better services for people with long-term conditions: building the house of care. London: The King’s Fund; 2013. https://www.kingsfund.org.uk/sites/default/files/field/field_publication_file/delivering-better-services-for-people-with-long-term-conditions.pdf. Accessed 16 Dec 2019
Department of Health. Chronic disease management—a compendium of information. London: Department of Health; 2004.
Fortin M, Lapointe L, Hudon C, Vanasse A, Ntetu AL, Maltais D. Multimorbidity and quality of life in primary care: a systematic review. Health Qual Life Outcomes. 2004;2:51. https://doi.org/10.1186/1477-7525-2-51.
Heslop P, Blair P, Fleming P, Hoghton M, Marriott A, Russ L. The confidential inquiry into premature deaths of people with learning disabilities (CIPOLD) Final report. Bristol: University of Bristol; 2013. http://www.bristol.ac.uk/media-library/sites/cipold/migrated/documents/fullfinalreport.pdf. Accessed 16 Dec 2019
Kings Fund. What is social prescribing? 2017. https://www.kingsfund.org.uk/publications/social-prescribing. Accessed 10 Nov 2019.
Marsden D, Bridgeman L. Health matters: an evaluation of health action planning pilot at enhancedcare unit. Journal of the Association of Practitioners in Learning Disabilities. 2004;21(2):12–6.
Marsden D, Giles R. The 4C framework for making reasonable adjustments for people with learning disabilities. Nurs Stand. 2017;31(21):45–53.
Marsden D, Treston R. Reasonable adjustments workshop evaluation report. 2018. https://www.ekhuft.nhs.uk/patients-and-visitors/about-us/people-with-learning-disabilities/hekss-reasonable-adjustments/. Accessed 10 Nov 2019.
Marsden S. Anticipatory care calendar validation report. 2018. https://www.kentcht.nhs.uk/wp-content/uploads/2019/01/Anticipatory-care-calendar-validation-report.pdf. Accessed 10 Nov 2019.
McCormack B, McCance T. The person-centred practice framework. In: McCormack B, McCance T, editors. Person centred practice in nursing and healthcare. Oxford: Wiley Blackwell; 2017.
McDonald K, Schultz E, Albin L, Pineda N, Lonhart J, Sundaram V et al. Care coordination measures atlas. AHRQ publication no. 14-0037-EF. 2014. https://www.ahrq.gov/sites/default/files/publications/files/ccm_atlas.pdf. Accessed 10 Nov 2019.
McEvoy L, Duffy A. Holistic practice—a concept analysis. Nurse Educ Pract. 2008;8:412–9.
Mueser KT, Corrigan PW, Hilton DW, Tanzman B, Schaub A, Gingerich S, et al. Illness management and recovery: a review of the research. Psychiatr Serv. 2002;53:1272–84.
NHS Digital. General data protection regulation (GDPR) guidance. 2018. https://digital.nhs.uk/data-and-information/looking-after-information/data-security-and-information-governance/information-governance-alliance-iga/general-data-protection-regulation-gdpr-guidance. Accessed 16 Aug 2019.
NHS Digital. Helping doctors and nurses to improve care for patients with a learning disability. 2019. https://digital.nhs.uk/news-and-events/latest-news/reasonable-adjustments-flagging. Accessed 16 Aug 2019.
NICE. Multimorbidity: clinical assessment and management. NG56. London: NICE; 2016.
Nunes BP, Flores TR, Mielke GI, Thumé E, Facchini LA. Multimorbidity and mortality in older adults: a systematic review and meta-analysis. Arch Gerontol Geriatr. 2016;67:130–8.
O’Brien J, Pearpoint J. The PATH & MAPS handbook. Person-centred ways to build community. Toronto: Inclusion Press; 2010.
Payne RA, Abel GA, Guthrie B, Mercer SW. The effect of physical multimorbidity, mental health conditions and socioeconomic deprivation on unplanned admissions to hospital: a retrospective cohort study. Can Med Assoc J. 2013;185(5):E221–8. https://doi.org/10.1503/cmaj.
Smith J, Swallow V, Coyne I. Involving parents in managing their child's long-term condition—a concept synthesis of family-centered care and partnership-in-care. J Pediatr Nurs. 2015;30:143–59.
Smuts J. Holism and evolution. New York: Macmillan; 1926.
University of Bristol. Learning Disability Mortality Review (LeDeR) Programme Annual Report 2017. 2018. https://www.hqip.org.uk/wp-content/uploads/2018/05/LeDeR-annual-report-2016-2017-Final-6.pdf. Accessed 16 Aug 2019.
University of Bristol. Learning Disability Mortality Review (LeDeR) Programme Annual Report 2018. 2019. http://www.bristol.ac.uk/media-library/sites/sps/leder/LeDeR_Annual_Report_2018%20published%20May%202019.pdf. Accessed 16 Aug 2019.
Vargas I, Mogollón-Pérez AS, De Paepe P, Silva MRF, Unger JP, Vázquez ML. Do existing mechanisms contribute to improvements in care coordination across levels of care in health services networks? Opinions of the health personnel in Colombia and Brazil. BMC Health Serv Res. 2015;15:213. https://doi.org/10.1186/s12913-015-0882-4.
Wallace E, Salisbury C, Guthrie B, Lewis C, Fahey T, Smith S. Managing patients with multimorbidity in primary care. BMJ. 2015;350:h176. https://doi.org/10.1136/bmj.h176.
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Marsden, D., Cooper, S. (2020). Providing Holistic Care. In: Heslop, P., Hebron, C. (eds) Promoting the Health and Well-Being of People with Learning Disabilities. Springer, Cham. https://doi.org/10.1007/978-3-030-43488-5_6
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DOI: https://doi.org/10.1007/978-3-030-43488-5_6
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